Replies to This Discussion

Permalink Reply by Dan Lyons on July 15, 2009 at 8:49pm

Don't forget a surge strip also.

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Permalink Reply by Mary J on July 15, 2009 at 8:51pm

Good idea!

When I first got my set up, I mentioned to the RT that I travel a lot and he got me an extra long cord. Every time I travel (and I'm in a hotel room in Toronoto right now) I'm so thankful he had the foresight to give this to me.

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Permalink Reply by Mike Fritz on July 16, 2009 at 8:57am

I made a bug-out-bag designed to last a week that contains mask parts, cpap parts, small bottles of distilled water, DC/AC convertor, portable oxygen tank, disinfectants, and on and on in case of TSHF.

I live in Tornado Alley/ Ice Storm Alley where the power can be out for weeks at a time so when it happens it is just easier to go in the opposite direction of the disaster until it is over or cleaned up.

Actually everyone should have a survival bug-out-bag designed to keep them alive for a few days in their vehhicle. You can buy them or build them yourself.

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Permalink Reply by Robert Couchman on July 16, 2009 at 10:46am

i'm new to this group so forgive my ignorane but what do we do if theres a power failure 2 hours or 12 hours?

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Permalink Reply by Patricia Ann Shuff on July 16, 2009 at 11:05am

Good ? We are in Houston & due to "IKE" we were without power for about 3 or 4 days but we got a small generator to help out.

Robert Couchman said:

i'm new to this group so forgive my ignorane but what do we do if theres a power failure 2 hours or 12 hours?

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Permalink Reply by Randy Bray on July 16, 2009 at 11:14am

I've had this issue also and had to find an all night market to get the cord. Another tip... If you're going to travel overseas you can usually find power cords, not just adapters, but cords to fit the foreign country's outlets on EBay. I've found this more convenient than adapters on crowded outlets. Ensure that your CPAP/BIPAP is rated to be used overseas. Most are.

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Permalink Reply by Chuck Jonson on July 16, 2009 at 11:28am

also one of those adaptors for a 3 way plug is helpful

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Permalink Reply by SleepyEm on July 16, 2009 at 11:35am

this is so timely! flying w/ my machine this weekend, thanks!

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Permalink Reply by Vicki E Jones on July 16, 2009 at 11:43am

Thank you for a very good tip.

Question for the forum: Can anyone recommend a face mask
(full face mask) for a person that is flat around the nose and has
a retrognathic lower jaw (looks like a receding chin - jaw is back
a bit instead of sticking outj)??? It presents problems in getting a
mask to seal.

I have tried 9 masks so far (full, hybrid, nasal). The only thing that
works is ResMed Swift II nasal pillows, plus I use a chin strap and
I invented a mouth flap to keep my lips from parting and air from
gushing out. The chin strap really doesn't move the jaw forward,
though. I wear an oral appliance that moves it forward a little, but
only a little because I have long-standing TMJ (jaw joint) problems
and that limits moving the lower jaw forward.

Any suggestions? So far, I have tried The Soyala full mask, the
ResMed Mirage Liberty full mask (hybrid), the Respironics
Comfort Lite 2 nasal mask, the Fisher & Paykel Forma full mask,
the ResMed Mirage Quattrofull face mask, the Respironics Comfort Gel
full mask, and two other nasal masks (Comfort Gel and another one).

The Total Face mask is out, because I have extreme dry eye
and already use ointment in my eyes at night. That would
blow more air in the eyes (blows it on the whole face).

Any ideas? What else can I try? I need something for people with
different facial contours.
Thank you to everyone who replies.
Vicki in Illinois

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Permalink Reply by Jim Nadolny, BS, CRT on July 16, 2009 at 12:11pm

When I was in Homecare we always pointed out that the CPAP manuals say not to use an extension cord with the machine. I always thought that it was due to the electrical load of the machine, but with todays smaller units, I have my doubts. Does anyone know why they put that in the manuals? I am going to talk to one of the manufacturers for answers, but would love to hear somefeedback.

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Permalink Reply by bonesigh on July 16, 2009 at 12:43pm

Don't know if this helps or not but this mask goes under the chin. Check it out. FLEXIFIT 431 FULL FACE CPAP MASK.

Vicki E Jones said:

Thank you for a very good tip.

Question for the forum: Can anyone recommend a face mask
(full face mask) for a person that is flat around the nose and has
a retrognathic lower jaw (looks like a receding chin - jaw is back
a bit instead of sticking outj)??? It presents problems in getting a
mask to seal.

I have tried 9 masks so far (full, hybrid, nasal). The only thing that
works is ResMed Swift II nasal pillows, plus I use a chin strap and
I invented a mouth flap to keep my lips from parting and air from
gushing out. The chin strap really doesn't move the jaw forward,
though. I wear an oral appliance that moves it forward a little, but
only a little because I have long-standing TMJ (jaw joint) problems
and that limits moving the lower jaw forward.

Any suggestions? So far, I have tried The Soyala full mask, the
ResMed Mirage Liberty full mask (hybrid), the Respironics
Comfort Lite 2 nasal mask, the Fisher & Paykel Forma full mask,
the ResMed Mirage Quattrofull face mask, the Respironics Comfort Gel
full mask, and two other nasal masks (Comfort Gel and another one).

The Total Face mask is out, because I have extreme dry eye
and already use ointment in my eyes at night. That would
blow more air in the eyes (blows it on the whole face).

Any ideas? What else can I try? I need something for people with
different facial contours.
Thank you to everyone who replies.
Vicki in Illinois

• ▶ Reply

Permalink Reply by Vicki E Jones on July 16, 2009 at 1:13pm

Thank you. When the Respiratory Therapist brings my VPAP machine (ResMed VPAP Adapt SV - I have
both Central Sleep Apnea and Obstructive), I'll ask that she bring the Flexifit 431 in different sizes. I've never tried that. Hope it works for me! -Vicki

bonesigh said:

Don't know if this helps or not but this mask goes under the chin. Check it out. FLEXIFIT 431 FULL FACE CPAP MASK.

Vicki E Jones said:

Thank you for a very good tip.

Question for the forum: Can anyone recommend a face mask
(full face mask) for a person that is flat around the nose and has
a retrognathic lower jaw (looks like a receding chin - jaw is back
a bit instead of sticking outj)??? It presents problems in getting a
mask to seal.

I have tried 9 masks so far (full, hybrid, nasal). The only thing that
works is ResMed Swift II nasal pillows, plus I use a chin strap and
I invented a mouth flap to keep my lips from parting and air from
gushing out. The chin strap really doesn't move the jaw forward,
though. I wear an oral appliance that moves it forward a little, but
only a little because I have long-standing TMJ (jaw joint) problems
and that limits moving the lower jaw forward.

Any suggestions? So far, I have tried The Soyala full mask, the
ResMed Mirage Liberty full mask (hybrid), the Respironics
Comfort Lite 2 nasal mask, the Fisher & Paykel Forma full mask,
the ResMed Mirage Quattrofull face mask, the Respironics Comfort Gel
full mask, and two other nasal masks (Comfort Gel and another one).

The Total Face mask is out, because I have extreme dry eye
and already use ointment in my eyes at night. That would
blow more air in the eyes (blows it on the whole face).

Any ideas? What else can I try? I need something for people with
different facial contours.
Thank you to everyone who replies.
Vicki in Illinois

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