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Permalink Reply by susan mccord on August 15, 2009 at 11:21pm

Hi Vendetta--I too am diagnosed severe. I'm about 11 months behind you in treatment. Still adjusting to CPAP.

I have NO info about what you describe. My first reaction is I wonder if it's some kind of autonomic body response because your body is used to sleeping with a mask for so long. Kind of a biological warning of danger, if you will. Do you have a nasal mask that comes close to your lips?

They've told me that I should wear my mask any time I sleep, including sleeping in my chair. It might be kinda interesting for you to try wearing the mask when you nap and see if the same thing happens. I'm thinking maybe it won't, but it might be worth a try....again, I'm no expert. That was just my gut response when I read your post. You're bound to get more replies on here--maybe not till in the a.m., so hang tight and see what some of these very knowledgeable folks have to say. I'll be interested in knowing what you find out!!

Susan McCord :-)

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Permalink Reply by susan mccord on August 15, 2009 at 11:27pm

By the way, welcome to SleepGuide! You'll be amazed how much support and info is on this site, along with GREAT people, both patients and professionals who volunteer their time to us. I sent you a "friend" invitation. That just means we'll kinda keep track of each other on SG and be as much support as possible. Just click the button and I'm yours! LOL ! I'm old too!!!!

Susan McCord :-)

susan mccord said:

Hi Vendetta--I too am diagnosed severe. I'm about 11 months behind you in treatment. Still adjusting to CPAP.

I have NO info about what you describe. My first reaction is I wonder if it's some kind of autonomic body response because your body is used to sleeping with a mask for so long. Kind of a biological warning of danger, if you will. Do you have a nasal mask that comes close to your lips?

They've told me that I should wear my mask any time I sleep, including sleeping in my chair. It might be kinda interesting for you to try wearing the mask when you nap and see if the same thing happens. I'm thinking maybe it won't, but it might be worth a try....again, I'm no expert. That was just my gut response when I read your post. You're bound to get more replies on here--maybe not till in the a.m., so hang tight and see what some of these very knowledgeable folks have to say. I'll be interested in knowing what you find out!!

Susan McCord :-)

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Permalink Reply by Vendetta Goodman on August 16, 2009 at 10:44am

Thanks Susan! I am anxious to see what this site has to offer. My doctor is very informative and will give me what information I need when I ask him, and thankfully he is not ever in a hurry when he is with patients. I forget to ask him these things when I am in the office.

I do have a nasal mask that sits on my nose and my upper lip when I sleep, I also occasionally use a full face mask when my allergies are acting up and I cant breathe through my nose. Since I have been on CPAP though I have been sleeping incredibly well and almost feel as if I am addicted to having my mask on! If I should fall asleep in my chair its one of those things not "Planned." If I had a hose that was about 20 feet long I could use it when I am in watching television or whatnot, I just would hate to fight with the thing while I was asleep.... :)

thanks for your answer on this and I look forward to hearing what others have to say on this too.

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Permalink Reply by susan mccord on August 16, 2009 at 11:02am

Vendetta--you can get an extension for your hose, per my DME.

I slept a full 8 hours on CPAP last night FOR THE FIRST TIME!! I can't believe it.....

Susan McCord :-)

Vendetta Goodman said:

Thanks Susan! I am anxious to see what this site has to offer. My doctor is very informative and will give me what information I need when I ask him, and thankfully he is not ever in a hurry when he is with patients. I forget to ask him these things when I am in the office.

I do have a nasal mask that sits on my nose and my upper lip when I sleep, I also occasionally use a full face mask when my allergies are acting up and I cant breathe through my nose. Since I have been on CPAP though I have been sleeping incredibly well and almost feel as if I am addicted to having my mask on! If I should fall asleep in my chair its one of those things not "Planned." If I had a hose that was about 20 feet long I could use it when I am in watching television or whatnot, I just would hate to fight with the thing while I was asleep.... :)

thanks for your answer on this and I look forward to hearing what others have to say on this too.

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Permalink Reply by Dan Lyons on August 16, 2009 at 11:07am

Vendetta,
I am going to venture a guess that it could be caused by several things.

It could have something to do in so far as the position to which you are taking your "nap". Your head's position can be causing the symptoms.

You may be compressing the nerve to those areas. This could be because the airway is becoming restricted in the same manner in which causes an apnea.

On the other hand, it may be a circulatory issue in which blood flow to the soft tissue areas is being constricted, basically starving the area of required O2.

I would definitely contact your physician concerning this situation as it may be symptomatic of a more severe condition.

I also believe that the symptoms manifest themselves as a direct result of your inclined position and the resulting head positioning, to which occurs when you are napping.

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Permalink Reply by susan mccord on August 16, 2009 at 11:13am

One thing that helps me when I go to one of my (seemingly) multitude of MDs is to make a list before I go. I usually leave space in between to either write his answer or have him write it in it I don't know what he's talking about. I have CSR also!!!!! LOL

Susan McCord :-)

Vendetta Goodman said:

Thanks Susan! I am anxious to see what this site has to offer. My doctor is very informative and will give me what information I need when I ask him, and thankfully he is not ever in a hurry when he is with patients. I forget to ask him these things when I am in the office.

I do have a nasal mask that sits on my nose and my upper lip when I sleep, I also occasionally use a full face mask when my allergies are acting up and I cant breathe through my nose. Since I have been on CPAP though I have been sleeping incredibly well and almost feel as if I am addicted to having my mask on! If I should fall asleep in my chair its one of those things not "Planned." If I had a hose that was about 20 feet long I could use it when I am in watching television or whatnot, I just would hate to fight with the thing while I was asleep.... :)

thanks for your answer on this and I look forward to hearing what others have to say on this too.

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