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susan mccord
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- Indianapolis, IN
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susan mccord's Groups
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susan mccord's Discussions
susan mccord's Page
Latest Activity
Right! :-)
Mary, my opinion only! = there's no such thing as a lost opportunity--only an opportunity waiting to be taken...
McCord :-)
Mike, I'm coming on in the middle of this discussion. I can't speak for what kind of foolishness is happening at the AHA--what I CAN tell you is that my own cardiologist who treats me for CAD, is young (probably just past 40)--he's extremely knowled…
Ditto, RL..........told'ja!! Spot on........
Susan McCord :-)
Rock, Mike didn't call you any bad names. (Well, there WAS that one.....) NAH!!, I'm kidding. He did GREAT!! I was prepared to argue with him--didn't feel the need to. He's actually made me think more clearly about the whole notion of patients being…
I will DEFINITELY be there!! Wouldn't miss THIS one for anything!! Two of the most knowledgeable guys on SG, and two of my MOST favorite people on the planet.....
Susan McCord :-)
Yes! Me too!! I've been wondering about it also!
Hi Margaret! Gotta tell you I agree completely with Mark. I was diagnosed with heart disease nearly 5 years ago. My best immediate thought is that you should have a COMPLETE cardiac workup done immediately, preferably by an intervention cardiologist…
I was on CPAP from July '09 until the end of January '10--totally compliant, felt better sleep-wise, but had extreme difficulty with sinus congestion, etc. for a good part of the time I was on it. In December it got to a critical level and stayed th…
WOO-HOO, HINKLE!! WAY TO GO!!
Can't say I'm all that surprised from what I know of you, but you absolutely have my very best wishes and congratulations!!
I'll buy you lunch anytime you're available!!
Susan McCord :-)
Hell, I'D do it if I could figure out #1. how to get the picture taken and #2. how to upload the picture !
There oughtta be SOMETHING fun about this business........
McCord
Profile Information
- My Interest in Sleep Apnea
- I have Sleep Apnea
- Treatment Being Used, if any
- Auto-Adjusting CPAP
- If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
- Respironics M Series Pro with C-Flex Auto-adjusting CPAP
- If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
- FitLife full face mask, size small
susan mccord's Photos
Comment Wall (90 comments)
- At 5:53am on April 9, 2010,
Lala said…
- Hi Susan! Well, they started me on Adderall, I was up to 60 mg and still didnt feel awake. So, we tried Nuvigil. That made my head itch like mad!! I am currently on a similar adderall med, but it has less fillers? It's a purer form, at least that's what the doc said, I take 15 mg in the morning when I first get up around 5 am, another 15 around 8 am and then if I feel I need it, another 15 around 1 or 2 pm. So far, it seems to be helping better then anything I've tried. I know what your saying about being ok with the stimulant meds, they just have such a stigma to them, but your right, I'm not abusing them, and they are helping, so that's what matters.
Well, my goodness....thank God winter is over, eh? Even though it is mightly cold here today. I hope you start to feel energized, I think that's all any of us want. Just to feel energized. Living like all the energy has been sucked out of you literally sucks!! I hope the warmer weather brings you some energy. I'm a firm believer in the healing benefits of the sun. Let the sun warm your skin, feel it on your face, saok it up.....just be sure to wear your sunscreen. Do you have a garden? Gardening is so good for the soul. I was out the other day, sitting in the sun, pulling weeds out of my garden, and though pulling weeds is not alot of fun, just being close to the earth, feeling the earth, and knowing I'm doing something good, felt really great. Well, its time for me to get in the shower and get goin for work. Keep in touch, your one of my favorites too. Take care, Laurie
- At 6:39pm on March 27, 2010,
Lala said…
- Hi Susan,
I'm ok. Learning to deal with the hypersomnia/narcolepsy on top of the sleep apnea. I think I am finally on the right medication, but I'm still feeling uncomfortable with the idea of taking a stimulant. So how are things with you? Sorry it took me so long to get back to you, I havent been on in a long time. Hope all is well!
Laurie
- At 11:35pm on January 26, 2010,
Irma Hudson said…
- Thanks for telling me about how you are doing, Susan./... I am so glad you are doing better! I have been keeping up with your whole thread and have printed out Dr. Park's comment for in case I ever have that much trouble. I went to the internist on Monday and she says my nose is much better, only raw still around the edges in the hole rather than all over, so I guess the the Ayr Gel Spray is doing the job for me. Still having problems though, am discussing getting a new mask and maybe even a data capable machine so we can finally figure out what is going on. I am keeping my fingers crossed for both of us! :-) Hugs, Irma
- At 4:08pm on January 26, 2010,
Trish McKenzie said…
- Thanks for the helpful info, Susan!
- At 11:07pm on January 10, 2010,
susan mccord said…
- Thank you, Irma. I'm a little concerned at this point. My nose is bleeding easily now. I've never had a nosebleed in my life.....I'm trying to decide whether to try CPAP again tonight or just stay off till I talk to one of my MDs tomorrow. Just seems to me I should be feeling better, not worse. I DID feel better for a couple of days and then yesterday, blooey. Isn't that weird? If I felt better, I'd think it was interesting.
I will let you know as soon as I find out what's the next course of action. You've been so supportive--it means a lot to me.
Take care. -Susan
- At 10:10pm on January 10, 2010,
Irma Hudson said…
- Goodness, Susan, I am so very sorry to hear that things have become so difficult. I hope you can get the help you need as soon as possible. Surely your sleep doctor will be able to help! I hope you will call first thing in the morning!!
I am sending lots of prayers and wishes for your speedy recovery! Hugs, Irma
- At 7:21pm on January 10, 2010,
Irma Hudson said…
- Hi, Susan, Sorry, I didn't notice this comment :-( Now life is slowing down a bit, and I saw it...glad you got the bottle figured out, that helps make a little more sense, doesn't it? I hope the stuff has been working for you better and better. I know that I am breathing a bit better every day.
It is still extremely dry, low near zero, but tomorrow it will be almost 30 degrees, that should help. We got a lot of snow in the past few weeks... today was the first time we made it to church since before Christmas! I think my breathing will be better when the air is a bit warmer an holds more moisture. Only things we have done before is errands and the grocery store. We are so glad we have a Subaru!
I went to the local Price Chopper and found the Ayr Spray Gel there... it is wonderful to have a local supply. I think it will be a big step in my feeling better. Hugs, Irma
- At 11:32am on January 7, 2010,
Mike said… - no problem -- i'll noodle on how best to post jeff's links on the sinus thread, and let you know what i come up with.
- At 1:05am on January 7, 2010,
Irma Hudson said…
- Hi, Susan, Actually, I only pumped the first time... since then I have just stuffed it in my nose and sprayed :-) Seemed to take two sprays in each nostril this last time. But that's just me, we are all different, and just see what works for you and keep experimenting and paying attention.
I have gotten so much from this group already, it is nice to be able to also have something to contribute. Hope you can sleep well tonight!!! Hugs, Irma
- At 11:37pm on January 6, 2010,
RL said… - "Kermy" is my favorite, the monkey is "Seymour", a mascot for family programs at the Denver Art Museum where I volunteered for a while. I think his name is a play on the phrase "See more".
Latest Activity
Right! :-)
Yup, if you've got insurance, your insurance dictates which local DME providers you can use.
Just because you bought your CPAP elsewhere does NOT mean that your insurance contracted providers can't or won't provide your masks and other accessories.…
Linda, thanks your your help. When I call Apria, I wil ask them why they did not offer me a payment plan.
Good luck!
Hi Candace,
Apria is giving me a payment plan for 10 months, after that I will buy it if I still need it. In the mean time, all of the folks here are so helpful they told me the best cpap to get and low and behold, Apria did not give me a newer mode…
Linda, I read your question re: CPAP Machine and Apria. I also am not impressed with them. I have Kaiser and Kaiser will not pay for my equipment. Apria says that I have to pay all costs up front. Are you on a payment plan with Apria. I have severe…
First, let me say, Thank you for going to bat for us. I think you are doing a fantastic job in spreading OSA awareness and providing us with OSA a place to go for support. Apparently there is no connection between a college degree and intelligence,…
You hit the nail on the head. I had a similar experience last year with another organization, The Alzheimer's Association. I ask for permission to pass out a flyer, "Does Sleep Apnea Cause Alzheimer's Disease?," at one of their annual meetings regar…
Then she should say that... Say anything other than the falsehood that the connection between OSA and heart disease isn't sufficiently proven.
"Respironics recommends that new patients purchase their devices, masks and initial accessories from a homecare company that can provide an individualized patient equipment set-up, clinical and after-sale support, and a program to assist patients wi…
Maybe you should be the communications director for the AHA ;-).
I believe that individuals should be free to make decisions for themselves. This goes for the patients and the providers. The patient is free to decide what to do and who to pay for what services. The provider is free to decide what services he offe…
I'M NOT A 100% SURE OF THE NAME OF MY MASK I THINK IT'S CALLED A PROFILE LITE IT HAS A THICK GEL CUSHION ON THE FORHEAD PIECE AND THE ALL AROUND THE MASK. I STILL END UP WITH RED MARKS ON THE BRIDGE OF MY NOSE AND FOREHEAD BUT THEY FADE IN AN HOUR O…
by no means am i suggesting that this one person believes one thing or another. rather, she is the director of marketing and communications for the AHA. it is her job to communicate the organization's viewpoints to the public, and that's what she wa…
HEY, I read the funny e-mails! HAH, I'm heading north tomorrow...
I received my machine in March with a nasal pillow mask. I switched to a full face mask because I was breathing thru my mouth.I was struggling with getting used to wearing the mask, finally got to the point of wearing it every night.I could not get…
Ah ha, BirdShell!!! You can ignore me, but we managed to lure you out of your hiding place w/this thread, eh??
Too bad too. Danielle, Ashley, Nicole and I are all meeting at La Placita in Saginaw for lunch tomorrow. I'll be thinking of you!!!! Nico…
I agree with your advice,Mike.Once I was treated for a sinus infection,I had replaced everything .Also, it is a good idea to use saline to cleanse the sinuses at least twice daily . You may look into the use of a Nettie Pot,,,,that can throughly cle…
I tried wearing a band aid on the bridge of my nose the other night and it helped, but not enough. Most of the "solutions' that I've found end up causing to much air to leak. I started wearing the bandana (folded in several layers and tied like a he…
I have to comment! I ran Jump Rope for Heart (JRFH) activities/fundraisers in my classes for years. (For more information: http://www.aahperd.org/jump/ and http://www.americanheart.org/presenter.jhtml?identifier=2360 This is a good condensation of t…
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