The comment period is over, and the attached represents the revised version, based on your feedback so far. The original, along with the context surrounding it, is set forth in this article
. Given the growth of the community over the past month, and the addition of many knowledgeable members who will probably want to weigh in on the PAPer Bill of Rights, I am recirculating this for your comment and feedback. If you think this is a bad idea in general, and not something we should pursue at all, please feel free to say so. But if you think we should go forward with publicizing this, even if only after substantial revision to this latest draft, please say that, too.
PAPer Bill of Rights
The objective of physicians and clinicians should be more than to get their patients to use positive airway pressure devices; it should be to strive for the devices to be used properly
so that the patient achieves an optimal AHI and a leak rate within manufacturers' established ranges for the mask being used
All new machines developed by manufacturers should (i) be data-capable so that patients have some objective measure of their treatment's success; (ii) be equipped with an adjustable and integrated heated humidifier; (iii) include wireless technology capable of transmitting detailed efficacy data to patients at their option
Positive airway pressure devices should not require a doctor's prescription unless a patient has a history of other respiratory problems or health conditions that would make use of a positive airway pressure device dangerous.
A user must not have to settle for a mask until it is both comfortable and effective for that user, and should be permitted to switch up masks at the sole expense of the manufacturer up to a certain number of masks per year; old masks should be recovered by the manufacturer as a hedge against fraud, and distributed to needy individuals/families
Physicians should inform patients of the existence of out-of-pocket "comfort" features and accessories such as auto-adjusting machines; fleece sleeves for hoses and tubing; etc.
Insurers and Medicare should inform patients of the need to replace masks, tubing, mask cushions and other equipment, and the fact that they will pay for the parts to be replaced, and on what schedule they will do so