Sleeping with CPAP blog post
Hi,This post is about sleep apnea and blood sugars. Thanks for reading.http://sleepingwithcpap.blogspot.com/See More
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ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this, Mary.
Worse comes to worse, I'll buy a used machine from Second Wind. First I'm going to see if I can get my doctor to prescribe one.
Maybe this is the final answer. Meanwhile, I'm surely happy to have…"
Mary Z replied to ZolliStar's discussion What's the Right Machine?"Zollistar, I think the ASV is hands down the best machine. It took me four years to get hooked up. Because of lingering depression and continued day time sleepiness with a high AHI my doctor suggested a night in the lab with an…"
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"May I ask two dumb-dumb questions? What do "Dx" and "CSA" mean?
And here is a not-so-dumb-dumb question (I hope!): From your experience, do people sleep better using an ASV machine?
I look forward to your answer.
"
RockRpsgt replied to ZolliStar's discussion What's the Right Machine?"You will most likely not be able to get insurance approval for an ASV without a Dx of CSA. I think that saying that an ASV breathes with you is false. ASV does however provide a better breath support and algorithm for auto use. The newer ASV units…"
Mary Z replied to ZolliStar's discussion Beating Sleep Maintenance Insomnia"Zollistar, what a good idea! The music is nice and relaxing on some of them."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"Thanks for this information Lisa. It really helps.
Anyone else?
"
Lisa replied to ZolliStar's discussion What's the Right Machine?"Hi Zollistar, I much prefer using an Apap to a straight Cpap. I changed over a few years ago and found straight away that I had much less of a problem with leaks. Another thing that I have noticed is I used to have ongoing problems with my nose…"
Terry Vella replied to ZolliStar's discussion What's the Right Machine?"He's still going, a bit of a pain sometimes but that's life, thanks for asking."
ZolliStar replied to ZolliStar's discussion What's the Right Machine?"This helps a lot, Terry! Thanks for letting me know.
How is your dog??
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Terry Vella replied to ZolliStar's discussion What's the Right Machine?"ZolliStar, I went straight to an auto so can't really compare but from what I have heard there are two major benefits, first, the comfort factor of not having the high pressure all night and second, it adjusts to what you require, so if you use…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Ginny, they are probably not doing anything against the law- though it may seem like fraud to us it may be an accepted practice. I would rather change DME's. Have you talked to the manager. They don't want to lose your…"
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"It really burns me up that they are doing things like this. Monday I am going to lok up th eMedicare complaint number and give them an ear full.
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RockRpsgt replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"Companies like this will have to pay in the end. Medicare is taking no prisoners in their effort to reform medicare fraud."
RockRpsgt replied to Mary Z's discussion Symptoms"I had zero symptoms. I was testing equipment one night and fell asleep hooked up. When I woke up my doc said I had an AHI of 10 with 30 second events. I have been on PAP ever since."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I just use a large rubber band and safety pin to attach i tho the sheet. It doesn't exactly kink, but rather seems to have almost bends that don't quite ever go away. I have one that doesn't but all the others seem to.…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"My light weight tubing does not have a tendency to kink. It just hangs down from the stand and comes back up to the bed. I tried a hose hanger, but bought the cheaper travel model and it just wasn't up to the task."
Ginny Edmundson replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"I was really surprised when the congestion improved without the humidification. Yes, I use the lighter weight tubing too. Do you have trouble getting the bends and kinks out of them???? I have one favorite that is broken in and I hate…"
Mary Z replied to Ginny Edmundson's discussion New "Rant" about DME/Wisp"The reasoning behind changing the tubing is that it may develop small holes or tears which causing leakage. I am careful with my tubing and don't have any animals or children playing with the tubing. I don't feel like they have…"
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Kath Hope www.hope2Sleep.co.uk
- Female
- Hull, East Yorkshire
- United Kingdom
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Kath Hope www.hope2Sleep.co.uk's Discussions
Holding Breath Whilst Awake?
57 Replies
Just been asked by a Twitter follower who has sleep apnea if it's normal to sometimes hold our breath whilst awake. I do this sometimes and have queried it before with my GP who told me I'm more…Continue
Tags: Breath, Hold, Breathing, Stop
Started this discussion. Last reply by tim mickiewicz d.d.s. Jan 31, 2012.
Surgery to Unblock Nose, then I read of Provent designed to Block the Nose!!
7 Replies
Just came across this newish alternative treatment to CPAP called Provent. I'm about to go into hospital for surgery to unblock my nose (hopefully) and then I'm sat here watching a video of these…Continue
Started this discussion. Last reply by Mike C (at the Beach!) Feb 16, 2011.
NEW TRAVEL OSA THERAPY???
10 Replies
This is a tease and am struggling to find anything out about it. Anyone here know about the new travel device which is supposedly the "missing link in therapy evolution?" It's called the Transcend…Continue
Started this discussion. Last reply by 99 Jan 10, 2011.
Sleep apnea implantable device to be tested in U.S.
6 Replies
Came across this article today:- http://tinyurl.com/3x4oh8r Continue
Started this discussion. Last reply by Kath Hope www.hope2Sleep.co.uk Dec 4, 2010.
Kath Hope www.hope2Sleep.co.uk's Page
Latest Activity
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!"I agree! Here in the UK if you purchase the mask yourself you should get ALL parts. However, if we get them from the sleep clinic (which is free under the NHS) then you only get the bits you need. If your insurance has paid for a…"
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!"Thanks Mary and the others. Can't wait to get my hands on it, as I feel this mask will help so many people who suffer from nasal bridge sores (me included) from traditional masks. I'll have to use a chin strap though, as I…"
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study"So pleased to read this Mary :) There's a similar story on our SleepGuide sister UK site of another man who struggled on, not knowing ASV was for him…"
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!"Why do you think you might not have to wear a chin strap Mary with this one? Interested in this discussion as it's landing here in the UK any time now and we'll be selling it. Can't wait to trial it :)
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Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution"The strip is not a replacement for a HST - it's only a guide to see if people should take further action (bit like a pregnancy testing kit). Here in the UK people often need this kind of evidence to persuade their GP's to refer them…"
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!"Yes, I'm looking forward to hearing how you get on longterm Ginny. We're expecting this in the UK in a few months and I'm hoping it will help people who have problems with the nose-bridge :) I thought you were a full face…"
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution"Seems like the sellers are cashing in on the lack of supply as wel sold them for $46.00 (just converted it). However, our health is more important than money. Hope you can persuade your relative to get help Ginny. Seems like the…"
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution"Mary, the sleep strip is hard to get hold of now, as the manufacturer are having problems (not sure what) and it's out of production and has been for months :( We've had to get a different way of diagnosing people on our Hope2Sleep…"
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study"Great to hear Mary, and just shows too how the depression is worse with a higher AHI. So glad you're feeling better for the holidays :)"
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use"K.S. is right Mary - you are a remarkable woman and have helped loads of people over the years, even though you have your own issues. Are you feeling any better?"
Kath Hope www.hope2Sleep.co.uk replied to Noreen LaVallo's discussion CPAP Masks"Noreen, I wrote a blog recently on masks if it helps http://www.sleepapnoeablog.com/choosing-a-cpap-bipap-masks-for-sleep-apnoea/"
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use"Good to hear you had a nice trip, and especially that you're feeling better. Using your machine 100% of the time is actually the advice you would have given out to others Mary, but sometimes we need to hear our own words from others…"
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use"Aw, sorry to read this Mary - last I heard you were doing so well. Glad to hear you're on a mission to make sure you use your machine on all sleeps, so hope that makes a big difference to you. If not, get straight back to the doc as…"
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study"So very pleased to hear this Mary, and may you continue down this positive route, which you truly deserve :)"
Kath Hope www.hope2Sleep.co.uk replied to ZolliStar's discussion Home Sleep Apnea tests: Are they reliable? Effective?"The Sleep Strip you mention Mary is the one we sell on our website and it's definitely not a toy - it's more like one of those pregnancy test kits you can easily buy at the pharmacies - but for checking for OSA. People in Europe…"
Kath Hope www.hope2Sleep.co.uk left a comment for Ellen"Glad to be of help. I think if a 'newbie' was presented with the FitLife then that would be very off-putting, but when people have tried everything (like I had) then they're willing to try anything. Like I said, I only…"
Profile Information
- My Interest in Sleep Apnea
- I have Sleep Apnea, Other
- Treatment Being Used, if any
- Auto-Adjusting CPAP
- If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
- IntelliPap
- If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
- Resmed Mirage Quattro, Sleepnet Hybrid, Mirage Liberty, Respironics Comfort Gel, Fisher Paykel 432 (you could say I'm a collector lol)
Kath Hope www.hope2Sleep.co.uk's Photos
Comment Wall (25 comments)
- At 9:21pm on April 29, 2012,
Ellen said… - Thanks Kath. My sister in law in USA says someone in her self help group who tried everything else ended up with a total FFM. My sleep tech in Oz has never obtained one to try as we both agree they look so overwhelming. Perhaps when I report your positive experiences as well she will now do so. I am currently using a Chiroflow pillow (water base, conventional pillow top). It works better than any of my previous pillows but it sounds like the FitLife might require the newer design pillow you mention on your site.
- At 8:42am on April 29, 2012, Ellen said…
- A few people have recommended the FitLife FFM but I can not stand leaks and air blowing in my eyes would not be acceptable. Can anyone comment on this particular aspect of this mask ?
- At 3:48pm on May 22, 2011, Chris H said…
- Wow you have been busey ,Congradulations on your new forum.Looks good , Staying with singulair for now .....my gp is not enthuisastic about surgery ...not sure if its the surgon or the procedure he does not like. Good Sleep,Chris
- At 5:56pm on May 20, 2011, Chris H said…
Hi Kath, How are things across the pond? have not seen posts latley,Good Sleep,Chris
- At 4:00pm on March 19, 2011, Chris H said…
- Hi Kath, So you can use your machine and are getting better numbers .Thats good to hear. I just finished levaquin astepro and prednisalone,and started cingulair .The Dr's office messed up my blood work again .Went to an awake meeting this morning the Dr whom spoke was excellent soooo I think I 'll have him give me A look over.Good to hear you are progressing in a better direction.Good Sleep,Chris
- At 5:50pm on March 18, 2011, Chris H said…
- Hi Kath, So can you breathe any better ? Are you back on pap? Or did they take out your appendix by mistake? : )
- At 4:29pm on February 11, 2011, Chris H said…
- Hi Kath, 6 days til your procedure...Best wishes and a speedy recovery to you! I went for more blood testing and started another round of anitbiotics with antihistamine and a steroid too.Still no luck on the lottery, stinks that you cant come across the pond .Good Sleep,Chris
- At 6:39pm on January 20, 2011, Vicki Vargerson said…
- Going to call the group SASH standing for " sleep apnoea self help " basically just a get together so people dont think there alone , and to swap ideas and tips on how to cope ,,iv had to struggle through some nasty periods of panic attacks and being scared to go to bed ,, and im sure im not alone ,,so any ideas and tips on how to make it a success would be great ,,
- At 6:24pm on January 20, 2011, Vicki Vargerson said…
- Thanks Kath ,im working with the hospital to try set up a support group in norwich and hopefully have monthly meetings !!
- At 6:09pm on January 19, 2011, Chris H said…
- We said that about the custom masks too. So far I only won ten dollars I think dr Park charges a bit more than that : (
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