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Latest Activity

Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Kath Hope www.hope2Sleep.co.uk
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  • Hull, East Yorkshire
  • United Kingdom
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Kath Hope www.hope2Sleep.co.uk's Groups

Kath Hope www.hope2Sleep.co.uk's Discussions

Holding Breath Whilst Awake?
57 Replies

Just been asked by a Twitter follower who has sleep apnea if it's normal to sometimes hold our breath whilst awake.  I do this sometimes and have queried it before with my GP who told me I'm more…Continue

Tags: Breath, Hold, Breathing, Stop

Started this discussion. Last reply by tim mickiewicz d.d.s. Jan 31, 2012.

Surgery to Unblock Nose, then I read of Provent designed to Block the Nose!!
7 Replies

Just came across this newish alternative treatment to CPAP called Provent.  I'm about to go into hospital for surgery to unblock my nose (hopefully) and then I'm sat here watching a video of these…Continue

Tags: Nose, Block, Provent

Started this discussion. Last reply by Mike C (at the Beach!) Feb 16, 2011.

NEW TRAVEL OSA THERAPY???
10 Replies

This is a tease and am struggling to find anything out about it.  Anyone here know about the new travel device which is supposedly the "missing link in therapy evolution?"  It's called the Transcend…Continue

Started this discussion. Last reply by 99 Jan 10, 2011.

Sleep apnea implantable device to be tested in U.S.
6 Replies

Came across this article today:-     http://tinyurl.com/3x4oh8r Continue

Started this discussion. Last reply by Kath Hope www.hope2Sleep.co.uk Dec 4, 2010.

 

Kath Hope www.hope2Sleep.co.uk's Page

Latest Activity

Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"I meant to report back here when I'd trialled the Wisp when it eventually arrived in the UK.  Well, I trialled it for several nights and I absol utely loved it.  I really do think Respironics have a real winner here :)  We have…"
Aug 24, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"I agree!  Here in the UK if you purchase the mask yourself you should get ALL parts.  However, if we get them from the sleep clinic (which is free under the NHS) then you only get the bits you need.  If your insurance has paid for a…"
Apr 12, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"Thanks Mary and the others.  Can't wait to get my hands on it, as I feel this mask will help so many people who suffer from nasal bridge sores (me included) from traditional masks.  I'll have to use a chin strap though, as I…"
Apr 5, 2013
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study
"So pleased to read this Mary :)  There's a similar story on our SleepGuide sister UK site of another man who struggled on, not knowing ASV was for him…"
Apr 5, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"Why do you think you might not have to wear a chin strap Mary with this one?  Interested in this discussion as it's landing here in the UK any time now and we'll be selling it.  Can't wait to trial it :) "
Apr 4, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution
"The strip is not a replacement for a HST - it's only a guide to see if people should take further action (bit like a pregnancy testing kit).  Here in the UK people often need this kind of evidence to persuade their GP's to refer them…"
Mar 4, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"Yes, I'm looking forward to hearing how you get on longterm Ginny.  We're expecting this in the UK in a few months and I'm hoping it will help people who have problems with the nose-bridge :)  I thought you were a full face…"
Feb 16, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution
"Seems like the sellers are cashing in on the lack of supply as wel sold them for $46.00 (just converted it).  However, our health is more important than money.  Hope you can persuade your relative to get help Ginny.  Seems like the…"
Feb 16, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution
"Mary, the sleep strip is hard to get hold of now, as the manufacturer are having problems (not sure what) and it's out of production and has been for months :(  We've had to get a different way of diagnosing people on our Hope2Sleep…"
Feb 15, 2013
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study
"Great to hear Mary, and just shows too how the depression is worse with a higher AHI.  So glad you're feeling better for the holidays :)"
Dec 14, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use
"K.S. is right Mary - you are a remarkable woman and have helped loads of people over the years, even though you have your own issues.  Are you feeling any better?"
Nov 8, 2012
Kath Hope www.hope2Sleep.co.uk replied to Noreen LaVallo's discussion CPAP Masks
"Noreen, I wrote a blog recently on masks if it helps http://www.sleepapnoeablog.com/choosing-a-cpap-bipap-masks-for-sleep-apnoea/"
Sep 20, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use
"Good to hear  you had a nice trip, and especially that you're feeling better.  Using your machine 100% of the time is actually the advice you would have given out to others Mary, but sometimes we need to hear our own words from others…"
Aug 29, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use
"Aw, sorry to read this Mary - last I heard you were doing so well.  Glad to hear you're on a mission to make sure you use your machine on all sleeps, so hope that makes a big difference to you.  If not, get straight back to the doc as…"
Aug 21, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study
"So very pleased to hear this Mary, and may you continue down this positive route, which you truly deserve :)"
May 17, 2012
Kath Hope www.hope2Sleep.co.uk replied to ZolliStar's discussion Home Sleep Apnea tests: Are they reliable? Effective?
"The Sleep Strip you mention Mary is the one we sell on our website and it's definitely not a toy - it's more like one of those pregnancy test kits you can easily buy at the pharmacies - but for checking for OSA.  People in Europe…"
May 9, 2012

Profile Information

My Interest in Sleep Apnea
I have Sleep Apnea, Other
Treatment Being Used, if any
Auto-Adjusting CPAP
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
IntelliPap
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Resmed Mirage Quattro, Sleepnet Hybrid, Mirage Liberty, Respironics Comfort Gel, Fisher Paykel 432 (you could say I'm a collector lol)

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Comment Wall (25 comments)

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At 9:21pm on April 29, 2012, Ellen said…
Thanks Kath. My sister in law in USA says someone in her self help group who tried everything else ended up with a total FFM. My sleep tech in Oz has never obtained one to try as we both agree they look so overwhelming. Perhaps when I report your positive experiences as well she will now do so. I am currently using a Chiroflow pillow (water base, conventional pillow top). It works better than any of my previous pillows but it sounds like the FitLife might require the newer design pillow you mention on your site.
At 8:42am on April 29, 2012, Ellen said…
A few people have recommended the FitLife FFM but I can not stand leaks and air blowing in my eyes would not be acceptable. Can anyone comment on this particular aspect of this mask ?
At 3:48pm on May 22, 2011, Chris H said…
Wow you have been busey ,Congradulations on your new forum.Looks good , Staying with singulair for now .....my gp is not enthuisastic about surgery ...not sure if its the surgon or the procedure he does not like. Good Sleep,Chris 
At 5:56pm on May 20, 2011, Chris H said…

Hi Kath, How are things across the pond? have not seen posts latley,Good Sleep,Chris

At 4:00pm on March 19, 2011, Chris H said…
Hi Kath, So you can use your machine and are getting better numbers .Thats good to hear. I just finished levaquin astepro and prednisalone,and started cingulair .The Dr's office messed up my blood work again .Went to an awake meeting this morning the Dr whom spoke was excellent soooo I think I 'll have him give me A look over.Good to hear you are progressing in a better direction.Good Sleep,Chris
At 5:50pm on March 18, 2011, Chris H said…
Hi Kath, So can you breathe any better ? Are you back on pap? Or did they take out your appendix by mistake? : )
At 4:29pm on February 11, 2011, Chris H said…
Hi Kath,  6 days til your procedure...Best wishes and a speedy recovery to you! I went for more blood testing and started another round of anitbiotics with antihistamine and a steroid too.Still no luck on the lottery, stinks that you cant come across the pond .Good Sleep,Chris
At 6:39pm on January 20, 2011, Vicki Vargerson said…
Going to call the group SASH standing for  " sleep apnoea self help " basically just a get together so people dont think there alone , and to swap ideas and tips on how to cope ,,iv had to struggle through some nasty periods of panic attacks and being scared to go to bed ,, and im sure im not alone ,,so any ideas and tips on how to make it a success would be great ,,
At 6:24pm on January 20, 2011, Vicki Vargerson said…
Thanks Kath ,im working with the hospital to try set up a support group in norwich and hopefully have monthly meetings !!
At 6:09pm on January 19, 2011, Chris H said…
We said that about the custom masks too. So far I only won ten dollars I think dr Park charges a bit more than that : (
 
 
 

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