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Latest Activity

Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Sunday
Mary Z left a comment for richard graham
"Glad to hear it's working, Richard."
Apr 11
richard graham replied to richard graham's discussion mouth breathing
"The chin strap is helping. Been having better sleep. Thanks Ginny and Mary for your help"
Apr 11
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Thanks, Mary~  Fingers are crossed.  My pressure is one point lower than when I began (7) and AHI is some lower (7 day average).  I am anxious about sleep study as I have not slept without CPAP in 2.5 years!   "
Apr 6
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Good job, Ginny Hope the sleep study shows some good results."
Apr 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Last procedure done!  This time he gave me meds to take before so less anxiety while waiting!  For the first time I was able to eat normal food on the way home after the procedure.  No pain after 12 hours.  If it only works.…"
Apr 5
Mary Z replied to richard graham's discussion mouth breathing
"Some folks run their humidifiers in passover mode- not turning on the heat just letting the air blow over the water.  That would not give any heat though. "
Apr 5
richard graham replied to richard graham's discussion mouth breathing
"Interesting, I actually feel a little better when I don't use the humidifier, but the humidifier helps with sinuses. The cold air stuff's me up. Gonna try running heat and a nasal spray"
Apr 4
Mary Z replied to richard graham's discussion mouth breathing
"Good luck with it- let us know how you do, Richard."
Apr 4
richard graham replied to richard graham's discussion mouth breathing
"I just picked up a new chin strap and will use it with my ultra mirage."
Apr 4
richard graham posted a discussion

nasal sprays

Just wanting some suggestions for some good nasal sprays to dry up sinusus. Thank you
Apr 3
richard graham replied to richard graham's discussion mouth breathing
"Thanks Mary"
Apr 3
Mary Z replied to richard graham's discussion mouth breathing
"I have both.  I use the chin strap with my Wisp and I also have a FFM if I choose to use that one. I'm a mouth breather.  I find nasal masks are easier to fit without leaks"
Apr 3
Mary Z replied to Mary Z's discussion Using comfort features
"Nasacort is now available without a prescription.  I personally use Afrin on the rare nights I need it for being stuffed up."
Apr 3
richard graham replied to Mary Z's discussion Using comfort features
"Mary, do you recommend a good nasal spray?"
Apr 2
richard graham replied to richard graham's discussion mouth breathing
"Wondering if mouth breathers do better with FFM"
Apr 2
richard graham posted a discussion

mouth breathing

I'm a mouth breather, and am wondering weather to get a chin strap or affm
Apr 2
richard graham replied to Mary Z's discussion Using comfort features
"I've been thinking about trying a nasal spray. Thanks that's useful info."
Apr 2
Mary Z replied to Mary Z's discussion Using comfort features
"I have to admit, it's easier to fall asleep."
Mar 31
Ginny Edmundson replied to Mary Z's discussion Using comfort features
"have always used the comfort setting since starting. I tried it once without and hated it. "
Mar 30
Kath Hope www.hope2Sleep.co.uk
  • Female
  • Hull, East Yorkshire
  • United Kingdom
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Kath Hope www.hope2Sleep.co.uk's Groups

Kath Hope www.hope2Sleep.co.uk's Discussions

Holding Breath Whilst Awake?
57 Replies

Just been asked by a Twitter follower who has sleep apnea if it's normal to sometimes hold our breath whilst awake.  I do this sometimes and have queried it before with my GP who told me I'm more…Continue

Tags: Breath, Hold, Breathing, Stop

Started this discussion. Last reply by tim mickiewicz d.d.s. Jan 31, 2012.

Surgery to Unblock Nose, then I read of Provent designed to Block the Nose!!
7 Replies

Just came across this newish alternative treatment to CPAP called Provent.  I'm about to go into hospital for surgery to unblock my nose (hopefully) and then I'm sat here watching a video of these…Continue

Tags: Nose, Block, Provent

Started this discussion. Last reply by Mike C (at the Beach!) Feb 16, 2011.

NEW TRAVEL OSA THERAPY???
10 Replies

This is a tease and am struggling to find anything out about it.  Anyone here know about the new travel device which is supposedly the "missing link in therapy evolution?"  It's called the Transcend…Continue

Started this discussion. Last reply by 99 Jan 10, 2011.

Sleep apnea implantable device to be tested in U.S.
6 Replies

Came across this article today:-     http://tinyurl.com/3x4oh8r Continue

Started this discussion. Last reply by Kath Hope www.hope2Sleep.co.uk Dec 4, 2010.

 

Kath Hope www.hope2Sleep.co.uk's Page

Latest Activity

Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"I meant to report back here when I'd trialled the Wisp when it eventually arrived in the UK.  Well, I trialled it for several nights and I absol utely loved it.  I really do think Respironics have a real winner here :)  We have…"
Aug 24, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"I agree!  Here in the UK if you purchase the mask yourself you should get ALL parts.  However, if we get them from the sleep clinic (which is free under the NHS) then you only get the bits you need.  If your insurance has paid for a…"
Apr 12, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"Thanks Mary and the others.  Can't wait to get my hands on it, as I feel this mask will help so many people who suffer from nasal bridge sores (me included) from traditional masks.  I'll have to use a chin strap though, as I…"
Apr 5, 2013
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study
"So pleased to read this Mary :)  There's a similar story on our SleepGuide sister UK site of another man who struggled on, not knowing ASV was for him…"
Apr 5, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"Why do you think you might not have to wear a chin strap Mary with this one?  Interested in this discussion as it's landing here in the UK any time now and we'll be selling it.  Can't wait to trial it :) "
Apr 4, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution
"The strip is not a replacement for a HST - it's only a guide to see if people should take further action (bit like a pregnancy testing kit).  Here in the UK people often need this kind of evidence to persuade their GP's to refer them…"
Mar 4, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Wisp arrived!
"Yes, I'm looking forward to hearing how you get on longterm Ginny.  We're expecting this in the UK in a few months and I'm hoping it will help people who have problems with the nose-bridge :)  I thought you were a full face…"
Feb 16, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution
"Seems like the sellers are cashing in on the lack of supply as wel sold them for $46.00 (just converted it).  However, our health is more important than money.  Hope you can persuade your relative to get help Ginny.  Seems like the…"
Feb 16, 2013
Kath Hope www.hope2Sleep.co.uk replied to Ginny Edmundson's discussion Any solution
"Mary, the sleep strip is hard to get hold of now, as the manufacturer are having problems (not sure what) and it's out of production and has been for months :(  We've had to get a different way of diagnosing people on our Hope2Sleep…"
Feb 15, 2013
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study
"Great to hear Mary, and just shows too how the depression is worse with a higher AHI.  So glad you're feeling better for the holidays :)"
Dec 14, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use
"K.S. is right Mary - you are a remarkable woman and have helped loads of people over the years, even though you have your own issues.  Are you feeling any better?"
Nov 8, 2012
Kath Hope www.hope2Sleep.co.uk replied to Noreen LaVallo's discussion CPAP Masks
"Noreen, I wrote a blog recently on masks if it helps http://www.sleepapnoeablog.com/choosing-a-cpap-bipap-masks-for-sleep-apnoea/"
Sep 20, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use
"Good to hear  you had a nice trip, and especially that you're feeling better.  Using your machine 100% of the time is actually the advice you would have given out to others Mary, but sometimes we need to hear our own words from others…"
Aug 29, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion Depression leading to lax ASV use
"Aw, sorry to read this Mary - last I heard you were doing so well.  Glad to hear you're on a mission to make sure you use your machine on all sleeps, so hope that makes a big difference to you.  If not, get straight back to the doc as…"
Aug 21, 2012
Kath Hope www.hope2Sleep.co.uk replied to Mary Z's discussion ASV Sleep Study
"So very pleased to hear this Mary, and may you continue down this positive route, which you truly deserve :)"
May 17, 2012
Kath Hope www.hope2Sleep.co.uk replied to ZolliStar's discussion Home Sleep Apnea tests: Are they reliable? Effective?
"The Sleep Strip you mention Mary is the one we sell on our website and it's definitely not a toy - it's more like one of those pregnancy test kits you can easily buy at the pharmacies - but for checking for OSA.  People in Europe…"
May 9, 2012

Profile Information

My Interest in Sleep Apnea
I have Sleep Apnea, Other
Treatment Being Used, if any
Auto-Adjusting CPAP
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
IntelliPap
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Resmed Mirage Quattro, Sleepnet Hybrid, Mirage Liberty, Respironics Comfort Gel, Fisher Paykel 432 (you could say I'm a collector lol)

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Comment Wall (25 comments)

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At 9:21pm on April 29, 2012, Ellen said…
Thanks Kath. My sister in law in USA says someone in her self help group who tried everything else ended up with a total FFM. My sleep tech in Oz has never obtained one to try as we both agree they look so overwhelming. Perhaps when I report your positive experiences as well she will now do so. I am currently using a Chiroflow pillow (water base, conventional pillow top). It works better than any of my previous pillows but it sounds like the FitLife might require the newer design pillow you mention on your site.
At 8:42am on April 29, 2012, Ellen said…
A few people have recommended the FitLife FFM but I can not stand leaks and air blowing in my eyes would not be acceptable. Can anyone comment on this particular aspect of this mask ?
At 3:48pm on May 22, 2011, Chris H said…
Wow you have been busey ,Congradulations on your new forum.Looks good , Staying with singulair for now .....my gp is not enthuisastic about surgery ...not sure if its the surgon or the procedure he does not like. Good Sleep,Chris 
At 5:56pm on May 20, 2011, Chris H said…

Hi Kath, How are things across the pond? have not seen posts latley,Good Sleep,Chris

At 4:00pm on March 19, 2011, Chris H said…
Hi Kath, So you can use your machine and are getting better numbers .Thats good to hear. I just finished levaquin astepro and prednisalone,and started cingulair .The Dr's office messed up my blood work again .Went to an awake meeting this morning the Dr whom spoke was excellent soooo I think I 'll have him give me A look over.Good to hear you are progressing in a better direction.Good Sleep,Chris
At 5:50pm on March 18, 2011, Chris H said…
Hi Kath, So can you breathe any better ? Are you back on pap? Or did they take out your appendix by mistake? : )
At 4:29pm on February 11, 2011, Chris H said…
Hi Kath,  6 days til your procedure...Best wishes and a speedy recovery to you! I went for more blood testing and started another round of anitbiotics with antihistamine and a steroid too.Still no luck on the lottery, stinks that you cant come across the pond .Good Sleep,Chris
At 6:39pm on January 20, 2011, Vicki Vargerson said…
Going to call the group SASH standing for  " sleep apnoea self help " basically just a get together so people dont think there alone , and to swap ideas and tips on how to cope ,,iv had to struggle through some nasty periods of panic attacks and being scared to go to bed ,, and im sure im not alone ,,so any ideas and tips on how to make it a success would be great ,,
At 6:24pm on January 20, 2011, Vicki Vargerson said…
Thanks Kath ,im working with the hospital to try set up a support group in norwich and hopefully have monthly meetings !!
At 6:09pm on January 19, 2011, Chris H said…
We said that about the custom masks too. So far I only won ten dollars I think dr Park charges a bit more than that : (
 
 
 

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