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Came across this article today:-     http://tinyurl.com/3x4oh8r

 

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I believe that Dr. Park is involved with the clinical trials.
Oh, that's interesting Rock. Hopefully that'll mean we'll hear about their findings.


Rock Hinkle said:
I believe that Dr. Park is involved with the clinical trials.
I have a Deep Brain Stimulator Implant for Essential Tremor (a movement disorder causing tremors of the arms and hands, sometimes the trunk and head or legs. The implant is for people with severe tremor not responsive to medication, or for those who don't tolerate the meds). I know this device is just going into testing, but with my DBS implant what they didn't tell me (and wasn't on any of their instructional cds) is that these devices have to be programmed to provide the right amount of stimulation. I have made at least six trips to the doctor (and it isn't cheap) to have my implant adjusted. The problem with the Implantable Sleep Apnea device by Medtronic (who also made my DBS implant) would be getting it programmed correctly and how are they going to know this without a visit, or visits to a Sleep Lab? I hope it works, it might be the answer for a lot of people who don't tolerate CPAP. These devices and not just implant and forget. My device is considered a success if it decreases tremor by 60% (I think).
Mary Z.
Nice post Mary

Mary Z said:
I have a Deep Brain Stimulator Implant for Essential Tremor (a movement disorder causing tremors of the arms and hands, sometimes the trunk and head or legs. The implant is for people with severe tremor not responsive to medication, or for those who don't tolerate the meds). I know this device is just going into testing, but with my DBS implant what they didn't tell me (and wasn't on any of their instructional cds) is that these devices have to be programmed to provide the right amount of stimulation. I have made at least six trips to the doctor (and it isn't cheap) to have my implant adjusted. The problem with the Implantable Sleep Apnea device by Medtronic (who also made my DBS implant) would be getting it programmed correctly and how are they going to know this without a visit, or visits to a Sleep Lab? I hope it works, it might be the answer for a lot of people who don't tolerate CPAP. These devices and not just implant and forget. My device is considered a success if it decreases tremor by 60% (I think).
Mary Z.
I am hopeful about these devices because some years ago I helped with research on diaphragmatic pacing devices for spinal cord injury patients. There are substantial differences between diaphragmatic pacing & sleep apnea implants, but I'm holding on to my hope for the concept.
Very interesting Mary and some good points raised. Time will tell if these are successful....


Mary Z said:
I have a Deep Brain Stimulator Implant for Essential Tremor (a movement disorder causing tremors of the arms and hands, sometimes the trunk and head or legs. The implant is for people with severe tremor not responsive to medication, or for those who don't tolerate the meds). I know this device is just going into testing, but with my DBS implant what they didn't tell me (and wasn't on any of their instructional cds) is that these devices have to be programmed to provide the right amount of stimulation. I have made at least six trips to the doctor (and it isn't cheap) to have my implant adjusted. The problem with the Implantable Sleep Apnea device by Medtronic (who also made my DBS implant) would be getting it programmed correctly and how are they going to know this without a visit, or visits to a Sleep Lab? I hope it works, it might be the answer for a lot of people who don't tolerate CPAP. These devices and not just implant and forget. My device is considered a success if it decreases tremor by 60% (I think).
Mary Z.

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