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Latest Activity

ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
99
  • Male
  • Rhondda Cynon Taff, Cardiff, Wales uk
  • United Kingdom
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99's Friends

  • angela kyzer
  • Dr. Ruben Cohen
  • Rita Butler
  • Anna Garcia
  • Terry Vella
  • ZolliStar
  • Russell Macmillan
  • johnny st john
  • John Owens
  • ymmits
  • Deborah Williams
  • Mary Callahan
  • Mike  Burns
  • simon denton
  • Kevin Cooper

99's Groups

99's Discussions

REFLEXOLIGY TO SLEEP

JUST rub the pad on top of your thumb or both your thumbs lightly remeber to put you mask on firstContinue

Started Oct 1, 2012

OSA causes brain damage
6 Replies

Damage from Untreated OSA Seen After 1 MonthA landmark study by researchers at Baylor College of Medicine found that middle-age and older men with even mild obstructive sleep apnea (OSA) were in…Continue

Started this discussion. Last reply by Chris H May 10, 2012.

Are you electrosensitive?

Are you electrosensitive?Try the following Quiz to see if you may be electro-sensitiveHave you used a mobile for more than 5 years?Have you used a cordless phone for more than 5 years?Do you, or…Continue

Started Apr 3, 2012

Theanine
1 Reply

Theaninewhat is known about Theanine to help with sleepContinue

Started this discussion. Last reply by Mary Z Apr 1, 2012.

 

99's Page

Latest Activity

99 replied to Glenn Watson's discussion cannot get used to my CPAP- very frustrated!!
"it has taken me six years to get comfortable with my s8 think of your driving licence as an incentive to persevers"
Jan 5
99 replied to George Sibley's discussion Seniors: New Medicare Rule Makes It Impossible For Oral Appliance For Sleep Apnea To Be Covered
"need  to claim grandfather rights and say this is not what i sign up for and challenge their decision by claiming grandfather rights"
Jan 5
99 replied to Ginny Edmundson's discussion Head cold
"ethier stop your humidifier or give it a good clean"
Dec 31
99 commented on Janna's photo
Thumbnail

The (ideal) sleep apnea process

"what are the natural reedies "
Oct 31, 2013
99 replied to Ginny Edmundson's discussion Battery back up
"Will a UPS (uninterruptedable power supply) do the job"
Dec 8, 2012
99 replied to Mike Burns's discussion The best way to clean and dry you cpap tubing, mask . And has ant body use or seen the Hurrcane dryer?
"try steam cleaning followed by steralization"
Nov 16, 2012
99 replied to Ginny Edmundson's discussion Battery back up
"if there is no electric use a mouth device"
Oct 29, 2012
99 posted a discussion

REFLEXOLIGY TO SLEEP

JUST rub the pad on top of your thumb or both your thumbs lightly remeber to put you mask on firstSee More
Oct 1, 2012
99 replied to Corey Stricker's discussion MRCA & infectious diseases
"IR Nose LIGHT Features: • Accredited by Allergy UK• Suitable for use up to 3-4 times per day, allowing 5-6 hours between treatment.• Additional nose probes available for purchase• One unit is suitable for use on multiple people…"
Jul 9, 2012
99 replied to Corey Stricker's discussion MRCA & infectious diseases
"you can purchase infra red IR light to stick up your nose"
Jul 9, 2012
99 replied to Henning's discussion Obama Care
"IT is not the Americans that are opposing it but religion meddling in politics"
Jul 1, 2012
99 left a comment for losing weight
"Smelling bananas or green apples can help you lose weigh"
Jul 1, 2012
99 replied to ZolliStar's discussion Any Advce for Frequent and Early Waking Problems? Please?
"very bright light on the back of the knees reset our timing "
Jun 26, 2012
99 replied to ZolliStar's discussion Any Advce for Frequent and Early Waking Problems? Please?
"i think sage as in stuffed turkey regulates sleep, also kelp helps ether way that is if you are a early or late riser they regulate them to normal"
Jun 25, 2012
99 replied to Noreen LaVallo's discussion Anyone ever have this happen?
"do not put the hose fully on  just enough to hold in place 2 for removal just lift or peal edge of hose just once let go then twist off, it should now be easy "
Jun 14, 2012
99 replied to Chris H's discussion Dr Gominak "Discusses sleep and vitamin D"
"preparation for maxim vitamin absorption "
Jun 12, 2012

Profile Information

My Interest in Sleep Apnea
I have Sleep Apnea, Other
Treatment Being Used, if any
Auto-Adjusting CPAP
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
I have sleep apnea with bradycadia
ResMed escape S8 hospital loan
Philips Respironics System one auto A Flex own primary unit sept 2010
DeVilbiss 9001 own as backup unit 2010
started on my cpap January 2009
set to 15
set to 15 August 2010
my sats are 95
ahi 20.3
new ahi 0.4 august 2010
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Fisher Paykel 432 full face mask
with
foam insert size large

next appointment



10 JUNE 2011

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Comment Wall (57 comments)

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At 12:21pm on March 25, 2012, Martha Greenleaf said…

Thanks, 99! I'm enjoying reading all the helpful experiences. Thanks for your participation, too!

At 10:08am on March 12, 2011, Mary Z said…

99, haven't seen you around in quite a while.  I hope you're doing ok health wise.  Miss your posts.

Mary Z.

At 7:04pm on January 20, 2011, Nancy Hegan said…

Yes, I do sleep on my side, either one. Have never been able to sleep on my back, so wonder why they insist these days that babies must. My kids were raised on their stomachs.

I keep getting different information on atrial fib. Keep hearing it's common, but despite all the heart attack symptoms we're warned about, I had never heard mention of atrial fibrillation until I had one. And then I got no information about it. Of course, I thought I was having a heart attack. Now I've learned a lot and willing to share, but there is so much conflicting opinion.

At 6:15pm on January 20, 2011, Vicki Vargerson said…
Hi thanks for the welcome ,,
At 5:16pm on December 8, 2010, Deborah Williams said…
Thanks..will talk to my sleep dr here in the USA...i haven't had an appointment to go back & see him yet as he was trying certain Narcolepsy meds which are
not working..i still nap during the day...
At 5:48pm on December 6, 2010, Deborah Williams said…
Thank you for the awesome welcome...yes Williams is a very good surname
to have...i've just been diagnosed with OSA this yr to my amazement as both
my kids have OSA too...Debbie :)
At 7:06pm on December 2, 2010, Banyon said…
How about a new avatar?

At 7:30pm on November 15, 2010, Barry Winton said…
Dear 99
What do you mean "without a script you cannot buy a cpap?"
Best wishes,
Barry
At 4:21pm on October 27, 2010, Mike Burns said…
Thanks I think this a great help to people that have OSA
At 9:47am on October 22, 2010, simon denton said…
Hi i've join to try to find some information about using cpap which has stopped apnea's but i still feel extremly tired all of the time i have been taking tramadol and then changed to oxycontine for the last 4yrs which i think the problem is but my pain specialist keeps telling me its not the pain meds which i take for disc degenaration i have ask my gp for some medication to help with the tiredness he told me only the sleep clinic Doctor can perscribe medication for that but I'm having a nightmare trying to get an appointment to c him i was seeing him next week but they moved my appointment to march this has happened 4 times now any advice would be nice
 
 
 

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