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How Many of Us Are 100% "Compliant"?
I would count myself in the ranks of those 100% compliant -- meaning that, with very few exceptions, I use my machine every single night, all night, and whenever I take a nap.
Hopefully I'm not alone. What about everyone else?
Hopefully I'm not alone. What about everyone else?
Views: 479
Replies to This Discussion
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Permalink Reply by Christine C on
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I have been 100% compliant.It took me about a week to get use to wearing my mask all night long. I went from an average of 4 hours a night to almost 8 hours a night for my usage.
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Permalink Reply by Mark Alford on
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99% Compliant here. I use it all night every night, but I have taken a couple of naps without it. The good news is that since I got on the hose I really never crave a nap.
Mark
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100% compliant here! I travel quite a bit on business, and my CPAP goes with me wherever I go..."don't leave home without it!" :) I also find it interesting to see just how many of us there are since they always pull the CPAP machines out at security to "swab" them when I fly.
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Permalink Reply by Banyon on
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I am a hundred percenter.
But we need to think one level beyond onehundred percent. I know several hundred percenters who seem to be walking around in a fog with little energy. None of them have the software to assure their hundred percent is effective.
How about MHPs? Monitored Hundred Percenters!
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I really want to be 100% :-( But my tummy fills with air and I have such pain that I have to take the mask off. As recommended on this site, they dropped the pressure from 10 to 8. I still wake with pain, but I'm waking before I get into the severe pain stage, apart from one night last week, when I was in so much pain that I thought I would need to call an ambulance. The pain normally happens within 2 hours of putting the mask on. Then I have to walk around, take tablets, drink hot water until it subsides enough for me to lie down again (without mask) for the rest of the night. I returned to the hospital last Fri and they reduced the pressure to 7, but now when I put the mask on I feel as if I have no air! I put my hand to the exhaust frequently, to ensure that air is coming out and have lifted the mask to make an escape sound, so there is air coming through. I have slept but have woken and panicked to get my mask off. I don't know whether I am getting apnoeas and perhaps there's not enough air coming through to open my airway? I have asked to see the consultant again with the possibility of having an observation sleep study. Fingers crossed. I was told that reducing the pressure should have stopped me filling with air. I am often short of breath for no apparent reason... is it possible I could have a lung problem, whereby the air can't enter effectively and so is escaping into my stomach? I apologise for not knowing much about how the body works! I should add that I love my mask and actually looked forward to putting on at bedtime.... it was just the pain I didn't like!
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100%.
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Not always swabbed.
Jennifer Green said:100% compliant here! I travel quite a bit on business, and my CPAP goes with me wherever I go..."don't leave home without it!" :) I also find it interesting to see just how many of us there are since they always pull the CPAP machines out at security to "swab" them when I fly.
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Permalink Reply by susan mccord on
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Glenda, it's just great to hear your humor restored!!! Keep on keepin' on, girl!!!!!
Susan McCord :-)
glenda brown said:Hi, just popped in to try and find out what 'compliant' means! haha. thanks for answering that for me.
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Wes, being 100% compliant as a newbie earns you a trophy!!! Tell Mike you'd like to know when the awards banquet takes place!! (THAT should be an interesting reply from our world-famous Webmaster!!!!!!!!!!) LOL !!!
Seriously, that's great. Never describe yourself as "just a newbie"---your participation/contributions on SG, along with everyone, including new people, is a gift to each and every one of us. New or old doesn't even apply--new only represents the beginning of the learning curve that we're ALL on, continually.......
Susan McCord :-)
Wes Carlson said:
,I'm 100% compliant but I'm a newbie.I started on August 26,2009 with my treatment.I wish I had known all of the troubles sleepapnea can cause many years ago!!!
I'm with Susan on the 100% Club
Wes
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I use my CPAP every night for at least six to seven hours. Sometimes in the early morning I take it off around 5 and cuddle up to my husband! I really dislike the physical distance between us that the mask imposes. I rarely take a nap other than a little occasional dose in a chair. One of the big difference is the lack of need for a nap. However, if I want to take a serious nap, I use my CPAP and blissfully go to sleep without anxiety. I have finally made my headgear comfy with lots of fleece padding sewn onto it and a fleece cover for the hose. Much more customized and user friendly now. I use a nosecup rather than a full mask.
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Brad, sounds like you and I had similar experiences with starting out....Congratulations on your success!!
Susan McCord :-)
Brad said:I'm 100% also, although I wasn't for the first three months. I resisted the machine like crazy until I woke up one morning and realized I was still wearing the mask. After that, I found that sleeping without the CPAP was just too uncomfortable.
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Sali, are you a mouth-breather? The reason I ask is if you are, you may be blowing away a LOT of your CPAP treatment through your mouth. I just found out that's what I've been doing. Have started on a full face mask now to prevent my losing it even if I DO mouth breathe. Another option is a chin strap that keeps you from breathing out of your mouth.
I've also heard someone on here say that people with GERD often swallow air during CPAP treatment which causes pain. Do you have GERD? What would happen if you took your meds BEFORE you go to sleep? Would that help?
If you feel like you're not getting enough air, I'd be willing to bet your pressure's too low. You don't need to "hope" someone will do something--you need to INSIST that someone, probably your sleep MD, do something!!! There's no need for you to suffer for lack of adequate pressure. I'd strongly encourage you to call your sleep doc and tell them you need to be seen ASAP......
You might consider posting a Discussion about the stomach pain/pressure issue--there are a lot of people on SG who can help you sort through this.....
Susan McCord :-)
Sali Gray said:I really want to be 100% :-( But my tummy fills with air and I have such pain that I have to take the mask off. As recommended on this site, they dropped the pressure from 10 to 8. I still wake with pain, but I'm waking before I get into the severe pain stage, apart from one night last week, when I was in so much pain that I thought I would need to call an ambulance. The pain normally happens within 2 hours of putting the mask on. Then I have to walk around, take tablets, drink hot water until it subsides enough for me to lie down again (without mask) for the rest of the night. I returned to the hospital last Fri and they reduced the pressure to 7, but now when I put the mask on I feel as if I have no air! I put my hand to the exhaust frequently, to ensure that air is coming out and have lifted the mask to make an escape sound, so there is air coming through. I have slept but have woken and panicked to get my mask off. I don't know whether I am getting apnoeas and perhaps there's not enough air coming through to open my airway? I have asked to see the consultant again with the possibility of having an observation sleep study. Fingers crossed. I was told that reducing the pressure should have stopped me filling with air. I am often short of breath for no apparent reason... is it possible I could have a lung problem, whereby the air can't enter effectively and so is escaping into my stomach? I apologise for not knowing much about how the body works! I should add that I love my mask and actually looked forward to putting on at bedtime.... it was just the pain I didn't like!
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