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Question on documents to get from doctor
Some of you have advised to make sure that we get certain documents from our doctors and keep them in a safe place for future reference or use. The prescription was one. Posters also mentioned getting the reports from the sleep and titration studies and to make sure that I get a 5 page report and not just a 2 page report.
Right now I have a 2 page report from the initial sleep study. Can someone tell me what the five page report might be called?
I had my titration test last week and don't yet have anything from that. The doctor mentioned that the report from that is about 400 pages long. Would someone kindly tell me what it is that I would want from the titration study and what it might be called?
Thanks
Jan
Right now I have a 2 page report from the initial sleep study. Can someone tell me what the five page report might be called?
I had my titration test last week and don't yet have anything from that. The doctor mentioned that the report from that is about 400 pages long. Would someone kindly tell me what it is that I would want from the titration study and what it might be called?
Thanks
Jan
Views: 16
Replies to This Discussion
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Permalink Reply by susan mccord on
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BAHAHahahahahahahhahaha!! Judy, I just love hearing you rant! If I ever need an advocate, you're the one I'm coming for!!!
McCord lol :-)
Judy said:GOOD THING YOU DO, Rock Hinkle, because I am going to disagree w/you MOST STRONGLY! And be aware I may NOT be the smartest bear in the den - BUT - I RESENT, STRONGLY RESENT, this ignorant assumption on the part of the medical profession - and you - that patients are NOT intelligent enough to pick out and understand MUCH, if not most, of what is in that full scored data summary report!!!!! It is gonna take me an hour or two to get over my twit about your comment to love ya again.
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Permalink Reply by Dan Lyons on
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Jan,
The most comprehensive answer you need is - YOU WANT EVERYTHING! It doesn’t matter if you can read it, understand it, or any other excuse the practitioner might want to use. You want it all and you have a right to it.
The information contained in those reports may be of interest to your general practitioner or any other physician you may see in the future. It also allows you to move between DME’s, other suppliers and for that matter another sleep physician in the future.
The basic fact is - you will need it in the future.
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Permalink Reply by sleepycarol on
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I fought getting my full scored report with graphs about 6 months. We are in a rural area and have what is know as a regional health care center / hospital. The hospital is located in our town and has a pretty wide service area.
We have one sleep doctor that serves the entire hospital and a satellite clinic located 30 miles away.
When I first requested a copy of the full scored report with graphs, I was told that they were property of the hospital and not available. I sent a letter to the doctor that read the reports and had prescribed the pressure settings, machine, and mask. He mailed a letter back stating again they were property of the hospital. I then wrote the hospital requesting my reports. After a lengthy delay, I was sent a stack of papers to fill out to get the report (four or five patients with all kinds of questions). I filled the paperwork out, signed it and sent it back. After a few weeks more, I received (drum roll) a copy of the doctor's dictated reports that I already had. I then sent another letter asking again for the full scored report with graphs and even had a sleep tech help write it so that they would know what I was asking for. I was sent another stack of papers to fill out, identical to the first batch I had to fill out and sign. Did that and sent them back. After a few weeks, guess what I received (long drum roll this time) -- yep you guessed it -- the doctor's dictated reports. I sent still another letter explaining that was NOT what I wanted and had help composing yet another request. Again, had to fill out the same batch of stupid papers and sign them and return them. Again I was sent the doctor's dictated reports and a bill for XXX amount for the files. I called the hospital then and asked to talk to the records department. I was told they outsource their records and they didn't have them. I got the address and sent a request directly to this company. I was then told that they only had the raw data and the dictated reports.
To this day, have not been able to get the full scored report with graphs. If anyone has any ideas I am open to suggestions!!!
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Permalink Reply by RockRpsgt on
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I am sorry judy I did not realize that you had learned to interpret brain waves. That is what the raw data is. I meant no offense. Everyone should get a comprehensive detailed drs report. Unless you plan on switching docs you do not NEED the raw data. It is however yours though
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Permalink Reply by Judy on
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Duh, Rock Sweetie, you need some sleep!!! WITH CONDENSED GRAPHS are the key words here, that eliminates pages of brain waves.
Come on, Rock, I didn't take offense!!!! I just STRONGLY disagreed w/you and that comment coming from you, of all people, REALLY rocked me! I certainly know you didn't mean any offense!!! Its not your style to deliberately offend anyone. I wish we had some Smilies and whatever you call those little "emoticons" for this forum. I miss them.
I know the majority of patients don't ask for this stuff, and I know most don't ask questions or show much interest. BUT too many times NOTHING is explained to them and they don't know what to expect and they are tired, bewildered, nobody is volunteering anythng and/or they just don't know what questions to ask they are so overwhelmed. I see it all the time amongst friends and acquaintences. They are MORE comfortable getting their information from some acquaintance they know who has already gone thru it than to ask the doctor or the RRT or even the tech. And then to have the tech tell them "I can't tell you anything, you'll have to ask the doctor" has started them down the path of don't question just obey. I ask them why they don't ask their doctor, and the reply is always their time is so short they can't remember everything to ask or the doctor ignores a question or glosses over an answer real quick.
Rock Hinkle said:I am sorry judy I did not realize that you had learned to interpret brain waves. That is what the raw data is. I meant no offense. Everyone should get a comprehensive detailed drs report. Unless you plan on switching docs you do not NEED the raw data. It is however yours though
Just the other day my family doctor suggested I needed to see a surgeon for a needle biopsy of my thyroid. I asked who he recommended, who was the best cytopathologist in the area, did I have a choice what lab the biopsy is sent to. His office set up the appointment. The very next day I got the paperwork from this surgeon. No indication whether this was for a consult or the procedure. Yeah, uh huh. It was afterhours when I got to my mail so I fired off a FAX asking whether this appointment was for a consultation or if THEY were planning on doing the procedure that day. And that I was only ready for a consultation. The nodules are small and scattered which means MULTIPLE needle aspirations. I will only agree to an FNAB that is done under guided ultrasonography. Not all surgeons use guided ultrasound for the procedure. Some doctors do these procedures w/no sedation which is A-Okay by me, some give a dose of local anesthetic, not something I'm particularly interested in because USUALLY the local injections stings and is more uncomfortable than the biopsies. Some use a topical anesthetic and that I wouldn't object to but its not something I would insist on. The topical anesthetic delays the procedure 20 minutes or so by taking that long to take effect. Where did I learn all this?? From my FAMILY doctor and online, NOT from the paperwork the surgeon's office sent. Nor did they call to ask if this appointment was at a convenient time for me. My FAMILY DOCTOR told me if the appointment isn't convenient for me to call the surgeon's office to reschedule. The most important issue is a GOOD CYTOLOGIST and no mention of what lab or who or anything.
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Oh my. Who is it that thinks that our health care system isn't broken. Not that I think that any of the current hooplah will solve the kind of "empowerment" and information issues that crop up all the time. Amazing how much you have to assert yourself just to let people know that it is your body and that you are in charge. It does sometimes feel like swimming upstream. But I guess if enough people demand information and higher standards then eventually it has to happen.
Judy said:Duh, Rock Sweetie, you need some sleep!!! WITH CONDENSED GRAPHS are the key words here, that eliminates pages of brain waves.
Come on, Rock, I didn't take offense!!!! I just STRONGLY disagreed w/you and that comment coming from you, of all people, REALLY rocked me! I certainly know you didn't mean any offense!!! Its not your style to deliberately offend anyone. I wish we had some Smilies and whatever you call those little "emoticons" for this forum. I miss them.
I know the majority of patients don't ask for this stuff, and I know most don't ask questions or show much interest. BUT too many times NOTHING is explained to them and they don't know what to expect and they are tired, bewildered, nobody is volunteering anythng and/or they just don't know what questions to ask they are so overwhelmed. I see it all the time amongst friends and acquaintences. They are MORE comfortable getting their information from some acquaintance they know who has already gone thru it than to ask the doctor or the RRT or even the tech. And then to have the tech tell them "I can't tell you anything, you'll have to ask the doctor" has started them down the path of don't question just obey. I ask them why they don't ask their doctor, and the reply is always their time is so short they can't remember everything to ask or the doctor ignores a question or glosses over an answer real quick.
Rock Hinkle said:I am sorry judy I did not realize that you had learned to interpret brain waves. That is what the raw data is. I meant no offense. Everyone should get a comprehensive detailed drs report. Unless you plan on switching docs you do not NEED the raw data. It is however yours though
Just the other day my family doctor suggested I needed to see a surgeon for a needle biopsy of my thyroid. I asked who he recommended, who was the best cytopathologist in the area, did I have a choice what lab the biopsy is sent to. His office set up the appointment. The very next day I got the paperwork from this surgeon. No indication whether this was for a consult or the procedure. Yeah, uh huh. It was afterhours when I got to my mail so I fired off a FAX asking whether this appointment was for a consultation or if THEY were planning on doing the procedure that day. And that I was only ready for a consultation. The nodules are small and scattered which means MULTIPLE needle aspirations. I will only agree to an FNAB that is done under guided ultrasonography. Not all surgeons use guided ultrasound for the procedure. Some doctors do these procedures w/no sedation which is A-Okay by me, some give a dose of local anesthetic, not something I'm particularly interested in because USUALLY the local injections stings and is more uncomfortable than the biopsies. Some use a topical anesthetic and that I wouldn't object to but its not something I would insist on. The topical anesthetic delays the procedure 20 minutes or so by taking that long to take effect. Where did I learn all this?? From my FAMILY doctor and online, NOT from the paperwork the surgeon's office sent. Nor did they call to ask if this appointment was at a convenient time for me. My FAMILY DOCTOR told me if the appointment isn't convenient for me to call the surgeon's office to reschedule. The most important issue is a GOOD CYTOLOGIST and no mention of what lab or who or anything.
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Lol, my sleep is fine you ole couger. I am riding shotgun through Chicago. I am on a pocket pc
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Permalink Reply by D. W. Conn on
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Just ask for the full disclosure report. Not a technical interpretation -And in most labs for a 5 dollar fee you can get a DVD including video of the sleep study itself. It is useless to you unless you have the proper sleep program on your computer ,you will not be able to view the study. a second opinion Physician would have access to the proper programs.
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D W Conn, is a "full disclosure report" the same thing that I've been told is the "full scored data summary report w/condensed graphs"??
You can see what I've been calling the "full scored data summary report w/condensed graphs" in my Articles post if you would be so good as to check it out and see if we are talking the same thing.
Jan, look in Articles for "Various PSG Software Results Print Outs"
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Yes, Ma'am that is it with charts graphs summry too! just so sorry it had to be on Alice ECK! jusy kidding all you Alice lovers!....or am I?...yeah yeah kidding......maybe ....lol yeah just kidding...really...maybe LOL
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That's not fair, D W Conn! I'm not a professional, I'm just a patient. I'm stuck w/whatever PSG software printouts my sleep lab uses. I haven't been ablel to post the NicoletOne PSG software printout because it is only 1 page, w/no graphs, and is in landscape instead of portrait position so is badly distorted when posted. I'm hoping others will post their "full disclosure report" from other PSG software.
I know Sandman is or was a popular PSG softwre and I'd like to see what a Sandman "full disclosure report" looks like. Sans the lab and patient identifcation, of course.
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