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Sleepycarol's Comments

Comment Wall (432 comments)

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At 9:53pm on January 14, 2009, Elizabeth said…
Thank you SleepyCarol. You are so kind. I came across this thru Facebook and I was just diagnosed with Sleep Apnea 2 months ago and I feel a difference already. I can't believe how many years I did not sleep and I didn't know the dangers until now. I need to check this site out better. Thank you for the welcome. You are sweet, Elizabeth
At 9:33pm on January 14, 2009, Keith Hale said…
Yes, it has a cat5 port, but i've never known how to use it. I have a PC with XP home. Is it possible to adjust the pressure via the data cable? I know D.I.Y. is at least frowned upon, but needs must when the devil does.....
At 12:51pm on January 14, 2009, Susan said…
i ordered a face-chin-sling that is supposed to keep my mouth closed so I won't snore.
At 8:17am on January 14, 2009, David Stolinsky said…
I do not have the machine anymore it found its way to the trash. I only tried the one mask, tried it about 30 days.
At 11:34pm on January 13, 2009, Richard Morgan said…
Thank you. Interesting site. Didn't realize there was so much information on CPAP.
At 8:11pm on January 13, 2009, lynn thompson said…
YES,BUT I HAVE NO INSURANCE??? THE CLINIC I GO TO MIGHT HELP ME ,BUT NOT SURE
At 7:45pm on January 13, 2009, Jean Cassidy said…
I've had the M Series auto with A-Flex for just about a year now. I love it! I like the A-Flex setting very much. I know you from another forum and appreciate your comments there.
I just found this one and here you are!
I need to get familiar with the set up here.
At 6:57pm on January 13, 2009, Brad said…
Well, I really like it when the mask is good. I don't know how to explain it, but I've had it replaced a few times, and the last time, it just seemed like it doesn't do as well as the others--no matter what, I can't seem to get it adjusted to comfort level. When it's good, it's really good, but when it's bad, it's just awful. Overall, though, I would recommend it.
At 8:35am on January 13, 2009, Bill Wiisanen said…
Thanks for the comment Sleepy Carol. I was 'officially' diagnosed with complex sleep apnea about a year and a half ago but knowing what I know now I realize that it explains issues for my entire life.
I use a vpap and a full face mask . I can say without reservation that I really dislike wearing the mask but what can you do? I know I need the nasal surgery but time is an issue.
At 12:13am on January 13, 2009, Rey Maniago said…
We're about an hour (give or take depending on traffic) north of Manila in the province of Pampanga. I'm actually writing this right now from California. We spent the Holidays here and we're leaving on the 26th and will be back home on the 28th.
At 9:03pm on January 12, 2009, Rey Maniago said…
Thanks..
I'm new here.
At 7:37pm on January 12, 2009, Bonnie Sherry said…
Thanks for the welcome sleepycarol. My husband says I need to have a sleep study done.
Bonnie
At 6:45pm on January 12, 2009, Teri said…
Wow, thanks sleepycarol! That's a lot of info, I'll definitely look into that. I want the best I can get, so I can be proactive in my treatment.
At 1:11pm on January 12, 2009, Marsha said…
Our 37 year old son that lives with us is on a C-Pap with humidifier and Medicade paid for all of it for him. He is a surviving twin and has multi problems so was covered under Crippled Children's until 18 , then medicade .
I am also on a C-Pap after not getting up to speed once my husband and son were on theirs. I had issues of a mask on my face, but love my pillow- c-pap and again it cost us about 200 bucks after BC/BS paid and they pay for my filters and everything.
So, there are ways
At 12:18pm on January 12, 2009, Marsha said…
This is our beloved Taylor Skye Binkley , fantastically healthy and fat, happy grandbaby
At 12:17pm on January 12, 2009, Marsha said…

SIDS is basically the same as some Apnea that my husband has. Minor problem his back of his tongue is too thick. Main problem I learned on our wedding night he stops breathing. After 3 sleep studies we learned that the portion of his brain that tells him to breath at times forgets to tell him. Our insurance paid almost all of the 7 thousand dollars his bi-pap cost and it knows when his brain has forgotten to tell him to breath and forces breaths into him until his brain takes back over.
I thought I was always exhausted because I spent 23 years poking him to keep him alive . His doctor never once suggested a sleep study. So , I called and told him .
We loved our grand daughter , Taylor was a beautiful girl. She was healthy and fat. We kept she and her sister Wytney Marie while their parents worked and then the kids had a key to our apartment and would take them out of their beds sleeping back home.
At 9:30am on January 12, 2009, RichM said…
How true is that, I can understand why about some who might change there pressures on their own. I have a good sleep study center that will work with you, they even have given me a free sample mask that they get from the suppliers.
At 10:38pm on January 11, 2009, Teri said…
of course I am interested, thank you!
At 2:16pm on January 11, 2009, Kristen said…
No, I totally understand the "discouragement" issues, especially as it pertains to the pt's relationship with their provider - there are some really disreputable companies out there, and some not so good employees working for them. Unfortunately, with Medicare cutbacks, I feel that you will see this situation more often than not, as companies will not invest in therapists to set up their equipment, and instead rely on drivers or equipment techs who have little to no knowledge of the disease or it's treatment. Which means NO follow up care, let alone proper fitting/instruction on the equipment.
It is great to see that you are taking a proactive role in your treatment. I hardly ever see this in my pt's, even with the follow up care that we provide. Too many people start treatment with the mindset that they "won't be able to take it", and defeat themselves before they even give the therapy a chance, and the machine ends up in the back of their closet. I also wish that more physician's were familiar with sleep apnea, so that they can provide support for their pt's. Many don't even know that their pt is using a CPAP, let alone be able to make adjustments or suggestions to better tolerate treatment! The relationship between a pt and their MD has to be a trusting one, and if the MD is unaware of what a PAP device is, or ignorant of their pt's use of CPAP and what the consequences of non-compliance are, then I feel that it is more likely that the pt won't use CPAP.
I love it when I hear from my pts that they feel so much better now that they're on C/BiPAP, and that they're "living again". It is one of the most rewarding aspects of this field, and I am glad to read some of these posts that say that exact thing. I am also willing to help those that I am able to via this forum!
I am always looking for forums to suggest to my pts, and will suggest this one.
At 1:55pm on January 11, 2009, Teri said…
thanks! which companies make those apaps?

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