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!#$%* my conviction!

Mad at myself. I went to the respiratory therapist to get my new machine today. My Sleep Doctor said I could request what machine I wanted so I requested a Resmed S8 AutoSet II w/EPR. I sent a message to both the therapist and the doctor about this. The doctor approved the request, the therapist never replied. When I got there today the therapist laughed when I told him the doctor said I could have this machine and said "Well, we'll have to teach her". What??? Who's in charge anyway? The therapist, doctor, insurance? I of course had suspected this was going to happen so I was full of conviction that I would not accept another machine and that I would ask to speak to the doctor.

Did I...NO! I balked in the face of authority! I'm the proud new owner of a Resmed Auto Vpap 25 set at a Ipap of 25 and Epap of 15. My therapist, who thinks he is smarter than the doctor, does not know how to set this new 25 so the "rest" period is 8, like I requested, instead of the preset 4. I hope I don't feel like I'm suffocating while I'm trying to go to sleep tonight! He also could not figure out how to set the advanced/detailed patient data to "on". There is some data available via the LCD machine under the "results" section. Will this give me the info I need??? He did not want me to have this info anyway. He said that was his job. But I was firm and told him I wanted it. Maybe he pretended he could not do it. I don't know! Am I being too hard on him? He is a nice guy but...?

I'm nervous about going to sleep tonight. I don't know what to expect. It's been over 2 years since I've been on therapy and I feel like I'm a person who is absent in their own life! I'm here but, I'm not here. I so want this to work.

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Replies to This Discussion

Permalink Reply by bonesigh on November 19, 2009 at 12:57pm

Thanks everyone! Guess he must have figured out how to turn the access on or he was just messing with me. I don't know. Results do look good but I don't think I really slept much so it's not very accurate. Anyway, I really like my new sleep doctor. I called her this a.m. explaining that the epap was too high to be comfortable so she said to zip on in (hour dive!) and she would lower it. She brought it down to 10 which I'm fairly certain will be tolerable. I'll keep ya posted. Wish I could just go to bed now!

Thanks for the article on leaks Judy. Very informative.

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Permalink Reply by Mary Z on November 20, 2009 at 1:49pm

So, bonesigh, how have the first two days been?

Mary Zimlich

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Permalink Reply by susan mccord on November 20, 2009 at 2:55pm

Me too, bonesigh. I've been thinking about you. How ARE things going? Did you sleep? Was the pressure okay for you?

Susan McCord

bonesigh said:

Thanks everyone! Guess he must have figured out how to turn the access on or he was just messing with me. I don't know. Results do look good but I don't think I really slept much so it's not very accurate. Anyway, I really like my new sleep doctor. I called her this a.m. explaining that the epap was too high to be comfortable so she said to zip on in (hour dive!) and she would lower it. She brought it down to 10 which I'm fairly certain will be tolerable. I'll keep ya posted. Wish I could just go to bed now!

Thanks for the article on leaks Judy. Very informative.

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Permalink Reply by bonesigh on November 20, 2009 at 6:41pm

Well, the first night was a nightmare but the second night, after I got the Epap reduced to 10, was really very good. I woke up often but that could be because I'm just not used to the way the new machine works/sounds etc. My results were great! I got 9 hours of sleep. Leak 0.16, VT 320-460, Resp rate 12-17, MV 5.0-7.2, Press 14.8, AHI 1.5!!!, AI 0.1! Dare I hope that this is going to finally work! There are some people with apnea who are effectively treated but still have fatigue and sleepiness, my doctor warned. I'm going to try not to get too excited yet but I might actually enjoy all the work at Christmas this year!

Thank you all, I'll keep ya posted.