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I USE A RESMED MACHINE WITH A FULL FACE MASK WHICH STAYS ON ALL NIGHT EVERY NIGHT AND YET I STILL WAKE UP MULTIPLE TIMES IN THE NIGHT AND STILL GET ALL THE SYMPTOMS OF SLEEP APNEA.  WHAT IS GOING ON?

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I would strongly recommend you contacting the company that set you up with your mask & machine to re-evaluate the pressure you are set at - ALSO  you should check to see if you could switch to an AUTO-CPAP (APAP) instead of a standard cpap which just blows air.  The auto-titrating unit will adjust to your breathing patterns and could provide the much needed rest your are looking for.  best of luck ....

David, how long have you been on CPAP?  unfortunatly many of us have comorbid conditions- heart and lung problems which make it difficult to feel the full benefit of CPAP.  As Matt said you may need a different type of machine which may require your doctor to set up another sleep test.  I have been trying for four years to get it right and just last night started on a new machine which I'm hoping will make a difference.  I should say  a bigger difference as I do have benfeits from CPAP.

I still wake up sometimes as well. BUT I also know the CPAP works for me because I've lost that really heavy daytime sleepiness that I always thought was normal.

The other suggestions are good. If you're new to CPAP it does take a period of adjustment. Sometimes you need a new mask, sometimes the machine needs adjustment. Once you work out the kinks, you'll be surprised how much better you feel after a GOOD night's sleep.

I have a problem with leaks (those are what wakes me up most), so I'm off to check out the liners suggested by Buddy.

Good Luck!!

Jackie, the resmed mask liners are OK as well. I bought one packet and now make my own, it's a lot cheaper. Also do you have your hose coming from above your head, that also helps leaks.

No.. my machine is on the nightstand next to my bed. My bed is higher than the stand so my hose ends up hanging down & to my right.  I'm not sure how to make it come from above my head, unless I rig up some hose management system. I'd need longer hose than as well because I'm using the standard 6 foot hose the DME place started me with. Sometimes I'm almost worried I'm going to pull the machine off the stand when I move as it is.

How do you make your own cloth liners? Or rather what do you make them from? I'd be interested in give that a try if it doesn't require anything than beginning sewing skill. The mask leaves marks sometimes, too. So, I'm wondering if the liners will help with that.'

Terry Vella said:

Jackie, the resmed mask liners are OK as well. I bought one packet and now make my own, it's a lot cheaper. Also do you have your hose coming from above your head, that also helps leaks.

id be interested in making mask liners also

Jackie said:

No.. my machine is on the nightstand next to my bed. My bed is higher than the stand so my hose ends up hanging down & to my right.  I'm not sure how to make it come from above my head, unless I rig up some hose management system. I'd need longer hose than as well because I'm using the standard 6 foot hose the DME place started me with. Sometimes I'm almost worried I'm going to pull the machine off the stand when I move as it is.

How do you make your own cloth liners? Or rather what do you make them from? I'd be interested in give that a try if it doesn't require anything than beginning sewing skill. The mask leaves marks sometimes, too. So, I'm wondering if the liners will help with that.'

Terry Vella said:

Jackie, the resmed mask liners are OK as well. I bought one packet and now make my own, it's a lot cheaper. Also do you have your hose coming from above your head, that also helps leaks.

Jackie - in response to your post about hose length and hose management - There are a few things you could purchase that could make your sleep therapy more efficient.  CPAP Hoses come in the following lengths - 6', 8' and 10' ($9.00-$12.00.)  You can purchase these online or request one from the company that set you up with your machine.  I believe there are 2 HOSE LIFT systems available - one MFGd by Arden Innovations & the other by Bro-Gho ($25.00-$50.00.)  These hose lift systems would elevate your hose in the air to prevent the hose from becoming entangled or tugging on the mask during sleep.  And finally depending on what mask you have you may be able to purchase a mask swivel that would allow more maneuverability at night.   Good Luck!

do not forget that the extra hose length may slightly alter CPAP pressure

Matt Moebius said:

Jackie - in response to your post about hose length and hose management - There are a few things you could purchase that could make your sleep therapy more efficient.  CPAP Hoses come in the following lengths - 6', 8' and 10' ($9.00-$12.00.)  You can purchase these online or request one from the company that set you up with your machine.  I believe there are 2 HOSE LIFT systems available - one MFGd by Arden Innovations & the other by Bro-Gho ($25.00-$50.00.)  These hose lift systems would elevate your hose in the air to prevent the hose from becoming entangled or tugging on the mask during sleep.  And finally depending on what mask you have you may be able to purchase a mask swivel that would allow more maneuverability at night.   Good Luck!

Someone should reply who has been clever enough to make their own mask liners.  I did one before.  I traced the outside of the mask on a piece of old t shirt material leaving plenty of space for the liner to hang out from the mask on all sides the I cut out a small hole in the midddle with room for my nose and mouth (using FFM then)- not too big of a hole.  It may take some experimentation.  I read a rather clever adaptation- taking two liners and sandwiching a piece of something like cotton batting ( can't remember the exact name of the material, but it was similiar to what you would use in quilting) in the middle.  They said it worked very well.  RemZzzs used to offer a sample pack and if they still do, getting that for a pattern may help.  I have never used the other types of liners.

If you are worried about pulling the machine off the nightstand, Jackie I would certinly invest in a hose hanger or even a clothes hook you place in the wall over the bed- it wouldn't have to be very high- and attach the hose with a rubber band or small bungie (one of the tiny ones.  Some people have ruined their machines by pulling them on to the floor with the humidifier filled.  Cpap.com has both an eight foot and a ten foot hose.  Here is a quote about pressure needs. They run under $10.  A small investment to protect your machine. "This product is the same quality item that comes as standard with virtually all CPAP and bilevel machines. It is two feet longer, allowing the user more freedom to move around during sleep. The additional length does not cause a significant decrease in CPAP airway pressure.
All CPAP.com brand hoses are smooth bore designed. Smooth bores have no ridges inside the hose for air pressure to resist against. The supportive wire frame is located on the outside of the hose. This design provides consistent pressure delivery and ensures a quieter performing hose."

I have to admit I'm interested in the smooth bore design.


 

Jackie, for the hose coming from above your head, if you have a behead try hanging it over the bedhead or you can buy a hose lift or I made my own as I have my machine in a sort of wall unit next to my bed and my bed is above my CPAP. I was lucky, I use a ring and a clip and slide the hose through it and it allows it to swivel, it's hard to explain but it works for me and cost me 80c. On the mask liners, I bought some Resmed liners a 6 pack and although they say to only use them once you can wash them and get about 5-6 uses. I then made a template of what I needed from there liners and went to a fabric shop and got 3 ft of 50% cotton/ 50 % poly fabric and cut out my own and they also last 5-6 uses, the next time I bought 3 ft of 50% cotton/ 50 % licra fabric. That last me about 3 months and costs about ten dollars. No need to do any sewing. Don’t tell Resmed or it may sent them broke LOL, I don’t think so.
Jackie, just on the leaks, what type of mask do you use and where are the leaks coming from i.e. top of the nose into your eyes or out the side of your mouth? I use a Mirage quattro FFM and I got down to hardly any leaks except from the top of the nose into my eyes, I changed the dial setting on my mask and tightened the top straps slightly and haven't had a leak since. Depending on which mask you use give that a try.


Terry - you've put 'Resmed' liners in your reply yesterday.  Did you mean 'RemZzzs' or have Resmed started making them as well?

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