Your sleep doctor is an incompetent ass! If she doesn't know how to interpret and understand downloaded data from your CPAP how in the devil was she able to interpret and understand the data from your sleep study and titration study? She is totally shirking her RESPONSIBILITIES AS A DOCTOR. Whether you have a fully data capable CPAP or just a bare bone compliance data CPAP makes no difference: she is totally shirking her RESPONSIBILITIES AS A DOCTOR!
1] What brand and model CPAP are you using? THAT will help us a LOT. It is quite likely that the CPAP you've been given is not capable of providing any data but compliance (usage) data and compliance data is of ABSOLUTELY NO VALUE TO YOU or your doctor. Its ONLY value is to provide proof you are using your CPAP enough to allow your DME supplier to be paid by your insurance.
2] Lets tackle one problem at a time. What are you finding is your greatest problem in getting to sleep. Or in staying asleep. Are you having problems w/your mask? Which mask are you using? Are you having problems breathing w/your mask and CPAP on? Does it feel that there is too much air blowing? Or not enough air to breathe comfortably? Mask or machine too noisy?
I can be a vindicative ole broad when medical professionals provide such shoddy treatment as you are receiving.
I would strongly suggest that you
1] send a WRITTEN REQUEST via CERTIFIED MAIL, RETURN RECEIPT REQUESTED to the sleep lab for a copy of
a] the doctor's dictated results from your in-lab sleep evaluation PSG (1-2 pages)
b] the full scored data summary report w/condensed graphs (also called the full disclosure report) (5+ pages) from your in-lab sleep evaluation PSG
c] the doctor's dictated results from your in-lab CPAP titration PSG (1-2 pages)
d] the full scored data summary report w/condensed graphs (also called the full disclosure report) (5+ pages) from your in-lab CPAP titration PSG
d] your equipment order (prescription)
Keep a copy of your written request, the proof of Certified Mail and the green Return Receipt card when the post office returns it to you.
2] Call your insurance company, ask them what local DME CPAP suppliers they are contracted with. Hopefully you will have the option of more than just this one.
3] Visit the local DME CPAP suppliers your insurance in contracted with. Don't be bashful, explain the problems you've had w/getting information, support and advice from your sleep doctor, sleep lab and current local DME provider. Hopefully you will find one willing to help you out and explain things to you.
4] Send a WRITTEN explanation and complaint of how shoddy your care has been to this point by your sleep doctor, sleep lab and local DME provider (and provide NAMES and addresses) to the American Academy of Sleep Medicine
Accreditation: email@example.com - General Inquiries: firstname.lastname@example.org - Mailing Address: One Westbrook Corporate Center, Ste. 920, Westchester, IL 60154 - Telephone (708) 492-0930 - Fax: (708) 492-0943
5] Check your state government's website and find the contact information for the state business licensing body and send a copy of your complaint, providing names and address, to that licensing body.
6] Talk to your family doctor. Ask for his or her assistance. Have you had a good physical regarding the nocturia as well as just general health?
Let Mollete help you. Give her the information she has requested.
Very impressive reply, i only have 3 things to add. Keep copies of ALL PAPERWORK from doctor, DME, and insurance. and at the bottom of your corespondence, put 'CC MY ATTNY and state MEDICAL BOARD'. this will really get their attention. On a separate note, you might want to get a prostate exam... getting up to pee is sometimes related to an enlarged prostate or prostate cancer [don't get upset, just a possibilty], or something else is mucking up your plumbing. FIND OUT FOR SURE, as this may be unrelated to your sleep apnea.