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Permalink Reply by 99 on July 12, 2010 at 10:09am

i am fatigued all the time and my blood test came back as fine i sleep day and night and sometimes have wipeout days the day after any activity

i also suffer from body odours even after a bath i still smell my breath is foul

i also have cronic fatigued, dibeaties

this is nomal for me

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Permalink Reply by Mary Z on July 12, 2010 at 11:18am

How long have you been on CPAP? Did your titration study result in any changes to your pressure?
Can you read your AHI and AI from the machine; AHI should be less than five if treatment is effective.
Sleep hygiene is very important, getting up and going to sleep at the same time every day. If your fatigue and sleeping all day started with taking care of your grandchild that might be the problem. Otherwise you need to have another talk with your sleep doc and tell him what you told us. Staying up late and getting up late is ok if that's your routine, but you need eight hours of uninterupted sleep everynight. Unless grandchildren are around, then you nap during the day.
Good Luck,
Mary Z.

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Permalink Reply by madeline shirley on July 12, 2010 at 11:35am

Mary,
I did a home study and my pressure was 13.5, down from 15.

Mary Z said:

How long have you been on CPAP? Did your titration study result in any changes to your pressure?
Can you read your AHI and AI from the machine; AHI should be less than five if treatment is effective.
Sleep hygiene is very important, getting up and going to sleep at the same time every day. If your fatigue and sleeping all day started with taking care of your grandchild that might be the problem. Otherwise you need to have another talk with your sleep doc and tell him what you told us. Staying up late and getting up late is ok if that's your routine, but you need eight hours of uninterupted sleep everynight. Unless grandchildren are around, then you nap during the day.
Good Luck,
Mary Z.

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Permalink Reply by Banyon on July 12, 2010 at 11:51am

Repeating the gist of what Mary Z said, it is important to have a machine that reports daily on the effectiveness of your treatment. The data includes information on the apneas and hypopneas you are experiencing (if any) and mask leak. Without this data, you can't know if you are still having many apneas and hypopneas which are causing your fatigue.

"Flying in the dark without instruments."

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Permalink Reply by sleepycarol on July 12, 2010 at 1:42pm

What machine do you? It should be written on the top or at least on the bottom where the specs are listed.

We need the full name and not just the manufacture name.

Did you have an actual sleep study done or was it just a home study?

Do you have other sleep related issues that maybe causing the problem? Such as restless leg syndrome, periodic limb movements, etc?

It takes a while to pay back your sleep debt. How long hav eyou been on cpap?

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Permalink Reply by Kath Hope www.hope2Sleep.co.uk on July 13, 2010 at 9:43pm

Your last sentence was interesting, and I asked my sleep physician the question when I was diagnosed "if it's true I'm sleep deprived, why do I go to bed so late?" His answer was that sub-consciously my brain knows that sleep and bed is a dangerous place to be (before diagnosis), due to the fact that the brain has to fight all night to keep me breathing by sending the relevent messages to the rest of my body to re-start the breathing (I had 30 apneas per hour). This made complete sense! Interesting.......

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