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New mask & machine: UPDATE Wed 11/17
For those that are following my last discussion, maybe you can help with this one.
I got a new ResMed Swift FX nasal mask on Wednesday (11/10) after much discussion with me DME guy Joe. We agreed that the F&P Opus 360 was not working for me (too many leaks). I was so optimistic that this would be the answer to my waking up choking, and the feeling like I could not breath.
I used it Wed, Thurs, Friday. Well here it is Saturday morning and all 3 nights I wake up almost exactly 2 hours later with the same problem !
I have a new machine too, ResMed S8 Escape II, with H4i heated humidifier, set at 2. Also, This new mask fits far better and there are no leaks. It is more comfortable too.
Also as a side note: I purchased the Contour products CPAP pillow, I love it ! My neck is so much more comfortable and when I turn on my side my headgear stays in position. (Just a feedback for those that might want to purchase it)
What am I doing wrong guys???
Donna B.
I got a new ResMed Swift FX nasal mask on Wednesday (11/10) after much discussion with me DME guy Joe. We agreed that the F&P Opus 360 was not working for me (too many leaks). I was so optimistic that this would be the answer to my waking up choking, and the feeling like I could not breath.
I used it Wed, Thurs, Friday. Well here it is Saturday morning and all 3 nights I wake up almost exactly 2 hours later with the same problem !
I have a new machine too, ResMed S8 Escape II, with H4i heated humidifier, set at 2. Also, This new mask fits far better and there are no leaks. It is more comfortable too.
Also as a side note: I purchased the Contour products CPAP pillow, I love it ! My neck is so much more comfortable and when I turn on my side my headgear stays in position. (Just a feedback for those that might want to purchase it)
What am I doing wrong guys???
Donna B.
Views: 141
Replies to This Discussion
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Permalink Reply by Rooster on
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I haven't followed your other posts, so please excuse me if I cover something already discussed.
1. There is a high probability that you start mouthbreathing at times during the night. When this happens the therapeutic pressure is lost and you may start having apneas again. Do you have drymouth? Have you noticed your mouth is open when you awaken during the night or has a bed partner noticed you mouthbreathing? The solution to this problem is a full face mask (FFM). A full face mask covers the nose and the mouth and maintains the therapeutic pressure when the mouth opens, thereby preventing apneas.
2. Do you have a data-capable machine and software which reports daily information on apneas, hypopneas, snores, mask leak, and pressure? (Your page says "trial machine".) This is the only way to be sure you solve all the problems and get a good therapy. I started out with a basic machine that did not have these capabilities. Today I would not be without my software - it is indispensable to my health.
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Permalink Reply by Donna B. on
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Hi Rooster,
Yes, I guess my mouth is the problem, chin strap tonight. I got a new machine (as I state above). the other one was just a rental for my at home trial. I am trying this new mask for 2 weeks, then will have my data downloaded to see how I am doing this time.
I'll report back in the morning.
Thanks for your reply !
Donna B.
Rooster said:I haven't followed your other posts, so please excuse me if I cover something already discussed.
1. There is a high probability that you start mouthbreathing at times during the night. When this happens the therapeutic pressure is lost and you may start having apneas again. Do you have drymouth? Have you noticed your mouth is open when you awaken during the night or has a bed partner noticed you mouthbreathing? The solution to this problem is a full face mask (FFM). A full face mask covers the nose and the mouth and maintains the therapeutic pressure when the mouth opens, thereby preventing apneas.
2. Do you have a data-capable machine and software which reports daily information on apneas, hypopneas, snores, mask leak, and pressure? (Your page says "trial machine".) This is the only way to be sure you solve all the problems and get a good therapy. I started out with a basic machine that did not have these capabilities. Today I would not be without my software - it is indispensable to my health.
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Donna B said, " ResMed S8 Escape II .... "
I don't use ResMed machines, so maybe a ResMed user can confirm this, but according to the manufacturer's description, that machine only records hours of usage. See http://www.cpap.com/cpap-machine/resmed-s8-escape-II-cpap-machine.html.
You want a machine that reports efficacy data such as apneas, hypopneas, snores, mask leak, pressure and other data.
Donna B said, " What am I doing wrong guys???"
Answer 2 - You are getting stuck with a basic machine which gives you no useful data. The card in that machine only reports hours used. The purpose of that card is to allow your insurance company to refuse to pay for anything CPAP for you if you do not use the machine enough hours - nice feature eh?
Scream bloody murder and don't get stuck with that machine.
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Permalink Reply by RockRpsgt on
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That machine is fully data capable. it is the first Restraxx machine. You need the software though. Try raising your humidity.
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Rock, Is my machine full data or just hours used ?? I am confused by the other posts? And if it is not full data how do I get my DME to change it? They have already sent in the claim to my insurance company.
Donna B.
Rock Hinkle said:That machine is fully data capable. it is the first Restraxx machine. You need the software though. Try raising your humidity.
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Rooster, All I can say is: Crap. Why would my Doc and DME prescribe me a machine that would not provide them with ALL the data to determine my progress ? I have excellent insurance and have been told that my machine and equipment is fully covered. ???? Now I am confused.
Rooster said:Donna B said, " ResMed S8 Escape II .... "
I don't use ResMed machines, so maybe a ResMed user can confirm this, but according to the manufacturer's description, that machine only records hours of usage. See http://www.cpap.com/cpap-machine/resmed-s8-escape-II-cpap-machine.html.
You want a machine that reports efficacy data such as apneas, hypopneas, snores, mask leak, pressure and other data.
Donna B said, " What am I doing wrong guys???"
Answer 2 - You are getting stuck with a basic machine which gives you no useful data. The card in that machine only reports hours used. The purpose of that card is to allow your insurance company to refuse to pay for anything CPAP for you if you do not use the machine enough hours - nice feature eh?
Scream bloody murder and don't get stuck with that machine.
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So here is my plan for tonight, I will up the humidity to 3 and put the chin strap on. I will post in the morning. Thanks all.
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Permalink Reply by sleepycarol on
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The Escape only provides hours used -- not the AHI, leaks, etc. Sorry to disagree with you Rock on this one.
My son-in-iaw got stuck with the Escape Auto so I am familiar with what info it provides. The Auto will give SOME LIMITED data via the LCD screen but it must be checked before noon. If her machine is just an Escape II-- as far as I can determine it doesn't provide any data other than compliance.
The S8 machines are good machines -- but you want one that provides data that is beneficial to YOU and not just the DME.
I would try to switch the machine out for a data capable machine.
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This Product Includes...
•S8 Escape II Machine
•6 Foot Hose
•Carrying Case
•One Filter
•User Manual
•ResScan Data Card
•Power Cord
Product Specifications
•Pressure 4 to 20 cm H2O
•Ramp Time 0 to 20 min. (5-min. increments)
•Starting Ramp Pressure 4 to CPAP; user adjustable
•Dimensions 4.4" x 6.5" X 5.7" (112mm x 164mm x 145mm)
•Weight 3 lbs
•Filters Pollen
•Device Set-Up LCD/Keypad
•Data Storage Capacity Display: 365 days summary data. Data Card: 180 days of summary data
•Electrical Requirements 100 - 240 V, 50/60 Hz; 110 V, 400 Hz; 2.5A <140 VA (110W)(maximum power consumption). Instantaneous peak power consumption <340VA
•Operating Altitude Sea level to 8500Ft (2591 m)
•Humidification Optional Integrated Heated Humidifier or Pass-over Humidifier
•DC Power Only use DC-12 Converter by ResMed for DC input or damage may occur.
•Warranty 2 Year Manufacturer
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Permalink Reply by Douglas Buis on
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Donna, I may be nuts, but humor me on this one.. It will only cost you $17 to try.
Go to a drug store and pick up some Prilosec OTC, and start taking one every day according to directions. If by 14 days you don't feel better, then you know it's not acid reflux. You may have acid reflux and show no symptoms of it during the wake hours, sometimes CPAP will suck stomach acid up your throat, especially if you eat or drink soda soon before laying down and sleeping..
Try that, and take that mask back, and ask them to exchange that mask for a Resmed Liberty. It will provide you the nasal protection you need, and also provide you with a backup through the mouth if you begin mouth breathing. And have your Dr increase your pressure appropriately.
If either of those don't fix your problem, you need to keep discussions with your Dr open to find solutions, you need to ride some of them to not rely on WebMD's list of "symptoms" as a bible sometimes..
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Thanks sleepycarol, I will call Joe on Monday to find out why I don't have a full data machine. And as far as the ramping time, geez, it takes 20 minutes for it ramp up to the 6 bars and then settle so I can use it. I struggle to stay awake waiting for it ! The manual says that the time can be adjusted, I think I can do that myself, I will try later on this morning.
Donna B.
sleepycarol said:The Escape only provides hours used -- not the AHI, leaks, etc. Sorry to disagree with you Rock on this one.
My son-in-iaw got stuck with the Escape Auto so I am familiar with what info it provides. The Auto will give SOME LIMITED data via the LCD screen but it must be checked before noon. If her machine is just an Escape II-- as far as I can determine it doesn't provide any data other than compliance.
The S8 machines are good machines -- but you want one that provides data that is beneficial to YOU and not just the DME.
I would try to switch the machine out for a data capable machine.
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