"please keep me updated about oximeters "
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Sleep apnea and Pulmonary Hypertension
Is there anyone out there with Pulmonary Hypertension in our group? I have just been diagnosed last week with it after an echocardiogram. As I understand it normal arterial pressure in the lungs is 25 and below. I am at 45-55, in the moderate range. I really like my Dr, she is very intelligent and I have a lot of confidence in her. But I only trust doctors up to a point. I have asked her how concerned should I be about this disease, (my chicken way of asking will I probably die in 3 years like I read on the internet?) She just says to keep losing weight and use my CPAP every night. Coincidentally, I had developed a rather bad respiratory infection about the time of my diagnosis. I got it from walking our local golf course and getting caught in the rain, then coming into the a/c. At least I think that's how I got it. Currently on antibiotics. Sorry for going off on a tangent. Would like to hear from anyone dealing with the same problem and to those of you who do not use your machine regularly, you need to reconsider.
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Replies to This Discussion
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Permalink Reply by Richard Morgan on
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No, I'm not on any meds either. I don't know if I should be or not. I don't know if my DR is aware there are meds for it. That's why I want to see a pulmonologist.
Judy said:Thanks, Richard. Does your doctor have you on any meds for the PH? I'll check out that PHA later today.
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Permalink Reply by betty m on
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Mary Z said:What symptoms led up to you having an echocardiogram and finding out about the pulmonary HTN? I'm thinking perhaps more of us are affected than we know, but just don't show any symptoms that would lead to testing.
I just had a doctor blow off an abnormal ekg because "a computer reads it and we look at your overall health and any symptoms". As I was showing no symptoms of heart problems or pulmonary disease I went along with him for now, but plan to ask for a repeat with him reading it at my next checkup.
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hi Mary, I have been having worries about my heart skipping and my dr. seems to be blowing it off too! i went to him 3 weeks ago with this complaint, he said o.k.we'll do a holter monitor.I did that and returned the monitor the next day. I waited 2 weeks to get a call from him and finally his nurse called, she said, dr.didn't see anything wrong with the monitor readings but then he was a sleep dr. and he wanted a cardio.to look at it but he was off this week! So i have waited 3 weeks now while my chart lays on dr.s desk[ unconcerned]. So i suppose i'll be waiting for weeks now for the other dr. to call me while i still have defibs! Unreal!
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Permalink Reply by Mary Z on
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Betty, in these days of medical malpractice cases I'd like to think they would get back to us if anything really serious were involved. My EKG passed two neurosurgeons and anesthesia before I called my PCP's attention to it, so perhaps it's really not a problem. I am a worrier.
I do hope you get your situation straightened out soon. As women we know our symptoms don't fit into the accepted categories of heart symptoms; we present differently than men.
betty mills said:hi Mary, I have been having worries about my heart skipping and my dr. seems to be blowing it off too! i went to
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