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Sue,
Hi! This is Melodie (Mel) and I am also an oxygen patient, but I have central sleep apnea too. I am on oxygen due to the fact that I have Emphysema. When my pulmonologist found that I also have the central sleep apnea, he added a Bi-PAP Auto SV unit to my oxygen and the oxygen is bled into the Bi-PAP at a rate of 4 liters per minute for "nocturnal" usage. My actual Bi-PAP Auto SC unit has 3 different settings, and it is set at 14-4-14.
The forced air is actually quite helpful to me, as just the oxygen itself wasn't helping me enough. Now that the oxygen is bled into my Bi-PAP, I actually sleep and feel much better - that is WHEN I SLEEP. I also have Narcolepsy and fall asleep during the day and have no control over it, so I am prescribed "Provigil" to keep me awake, and then "Seroquel" at night to help me sleep. It sounds crazy - and trust me - it is!!!!!!!!!!!!!!! If I take a whole Provigil tablet in the morning, then I cannot sleep at all that night, and sometimes the next night too. I feel like a total zombie half the time and am just waiting for the doctors to figure out the best combinaton to help both problems.
Hope this crazy response is helpful to you or anyone else in the group. And if anyone has any suggestions for me, I would greatly appreciate it.
Melodie (Mel) Aultman-Morris
Melodie said:Sue,
Hi! This is Melodie (Mel) and I am also an oxygen patient, but I have central sleep apnea too. I am on oxygen due to the fact that I have Emphysema. When my pulmonologist found that I also have the central sleep apnea, he added a Bi-PAP Auto SV unit to my oxygen and the oxygen is bled into the Bi-PAP at a rate of 4 liters per minute for "nocturnal" usage. My actual Bi-PAP Auto SC unit has 3 different settings, and it is set at 14-4-14.
The forced air is actually quite helpful to me, as just the oxygen itself wasn't helping me enough. Now that the oxygen is bled into my Bi-PAP, I actually sleep and feel much better - that is WHEN I SLEEP. I also have Narcolepsy and fall asleep during the day and have no control over it, so I am prescribed "Provigil" to keep me awake, and then "Seroquel" at night to help me sleep. It sounds crazy - and trust me - it is!!!!!!!!!!!!!!! If I take a whole Provigil tablet in the morning, then I cannot sleep at all that night, and sometimes the next night too. I feel like a total zombie half the time and am just waiting for the doctors to figure out the best combinaton to help both problems.
Hope this crazy response is helpful to you or anyone else in the group. And if anyone has any suggestions for me, I would greatly appreciate it.
Melodie (Mel) Aultman-Morris
Hi Melodie,
I am a first time user here and as you can see tried to send a response a couple of times without my response. :)
I thank you for your response because Sleep apnea is a new diagnosis for me. I have several other diagnosis I am dealing with as well. I have COPD, yup from smoking but i have been smoke free for 2years 2months and 14 days. How about knowing those exact numbers :) only from an ex smoker counting the days in hopes of better lung capacity. I see you were on oxygen first due to emphysema.
I was on oxygen but they took it away when my readings were high enough to not be qualified per the insurance company. Then, after having a sleep study done they found my levels went down several times during the night due to apneas. I think i have central apnea as well and am going to ask my Pulmanologist about your set up with the Bi-Pap. I would think they would have asked to have another oximeter overnight reading with the oxygen to see what if anything it is doing. Thank you again for your reply because it has given me another idea.
Thanks, Sue Grasso
Oxygen and CPAP or BiPAP (bilevel) is not the same thing. Sleep apnea (at least obstructive sleep apnea) is a mechanical problem that 9 out of 10 times is caused by a weakness of the tissue in the back of the throat above the voice box. Depending how bad the sleep apnea is, one may experience low oxygen levels during apneic episodes. While using oxygen alone can help with the low oxygen produced by the sleep apnea, it in no way treats the sleep apnea. It is the sleep apnea that causes the stress on the heart and other organ systems.
The goal is treating the sleep apnea. If you're having problems with CPAP you need to speak with your sleep professional to find other options. Find a lab that will work with you as much as you need.
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