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Sleepycarol's Comments

Comment Wall (432 comments)

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At 12:24am on February 16, 2009, ernie e lawson said…
thanx for the invite.......
At 5:29pm on February 14, 2009, Yvonnie Crews said…
hi, I got it about two weeks ago and I love it. It is Respionics Total Mask.
I have had leaks but, I am an inovative person, I come up with solutions for whatever I need. If it is the harness, I make a new one. If it is leakage, I think up a device to stop the leaks. I never, roll over and give up. I want to live at the best quality of life that is possible. So, I do something about it. I try to help myself and would love to help others. If I can help, let me know what you need and I will see if I can help you. The masks, are never going to fit everyone the same way, so we have to improvise. I want to live to a very old age and I know you do too!
At 1:16pm on February 14, 2009, kris said…
Hi Carol,
I work at a DME store so I am lucky enough to try any mask. Ive tried nasal swift, swift lt, ultra mirage, dont like the larger masks. Now i am using respironics simplicity(that is when i use it)
Thanks for the welcome. Kris
At 12:49pm on February 14, 2009, Yvonnie Crews said…
Sleepy Carol,
The mask is: "Respironics Total Face Mask", at; www.respopironics.com.
I got my supplier to get it for me. I ask for it on Thursday two weeks ago, and it arrived at my house on Friday. Such fast service I could hardly believe. Hope the info helps. And Sweet Dreams from now on.
Vonnie
At 10:35pm on February 13, 2009, Chuck Levenstein said…
I tried for a couple of years. Finally gave up. I've been using provigil for the days -- retired so I can nap whenever I feel like it.
At 9:33am on February 12, 2009, Patricia Heinze said…
I wish I could get back into the habit of leaving the mask on all night. I've been very stressed lately. My husband had a double by-pass on New Years Eve this year and I've been doing a lot of the things that he used to do so I'm always tired and sometimes don't want to be bothered with the mask, but now I need to start thinking about myself again. He's doing good and on the road to recovery. I feel like I am breathing very heavy with the mask on and don't know if that's the way it is supposed to be. I have an appointment in the middle of March with the sleep study team - I've been going back every 6 months. Guess I'm looking forward to hearing what they have to say. I just wish I felt better in the morning.
At 5:17pm on February 11, 2009, Sleepguy said…
Carol, it's nice to see that you're making your way around here and helping lots of people. Thanks for inviting me to join!
At 3:58pm on February 11, 2009, Mark A Claeys said…
Hi there, and thank you for the welcome. I have been through 2 sleep labs, prescribed a CPAP, but unfortunately declared CPAP intolerant. My 2nd lab was to try a BPAP. However, I was active duty military, retired, relocated and never followed up on the BPAP. I have tried special pillows, dental pieces, CPAP but still tired all the time. Thank God for a loving and understaning wife (and boss).
At 3:23pm on February 9, 2009, Eric Goldman said…
Thanks for the offer of help. It's not the what I tried, or what I used. I am a very big mouth breather and can never keep my mouth closed all night long. I have tried hair bands (they end up stretching out), full face mask (too claustophobic) but the main thing is that the mask always ends up anywhere but on my face and usually ends up blowing in my wife's face!
The mouth breathing has been my biggest obstical and I want to find a solution for my own health and life!!! I am always tired.
At 9:31am on February 9, 2009, Peter Beckwith said…
Thanks for the welcome sleepycarol! Were you treated othodontically as a young person, and, if so, did you have any teeth removed?

Let me know?
At 5:09pm on February 8, 2009, Robert Morgan said…
Thanks, I am a RRT in chas , wv and was just browsing about...
At 8:30am on February 8, 2009, Gary Whaley said…
Thanks sleepycarol for the welcome!
I've had my cpap for over 5 years now so if anyone has any concerns I'm open!! I'm addicted to the thing now...my sleep study showed me waking so many times in one hour its unbelievable....
GW
At 2:05am on February 8, 2009, Mike said…
At some point I think I will get a sleep test done, not sure if I have apnea but sometimes wake up sucking in a real deep breath.
At 2:04am on February 8, 2009, Mike said…
Amazing Carol, its 204AM my time and I'm just now shutting down to go to bed.Some of my problem is me... been a nitebird since I was a kid.
At 1:57am on February 8, 2009, Stephen Johnson said…
Thanks for the congrats! I use a RemstarPro M Series with a full face mask. I'm unsure how to answer your other inquiries?...
At 1:36am on February 8, 2009, Richard Morgan said…
No, It's been packed away for about three years... I started out with a simple nose mask, but I would rip it off in the night and toss it, and never wake up to know it till morning and I had to go looking for it... It ended up in my bathroom one night... So then I switched to just the nozzles like with oxygen feeds, but I couldn't really tolerate that either, so I just packed it up and I think it's over in storage... I used it for about 2 years but it just wasn't working out... So then I had some sort of soft tissue surgery, and as far as I can tell, it has helped some.
At 11:55pm on February 7, 2009, RichM said…
Thanks for the reply I open up a discussion to see if anyone might help me with my question.
At 11:32pm on February 6, 2009, RichM said…
Are you there ? got a question for you. What can you tell me about the bipap S/T I found out today that they mess up on my order for my last sleep study and I was suppose to have a backup pressure on my bipap and my m series auto bipap does not have one so they are going to get me a new machine and they said it was going to be the S/T not sure if this is better then the Auto s/v or is it better then the auto s/v. thanks Rich
At 9:22pm on February 6, 2009, Gene said…
My machine is a ResMed Escape 2, mask is Fisher and Paykel, covers the nose and mouth. When I have time, I will write my story and add it to this form. I appreciate that this mode of communication is available. have been on it since mid Dec 2008.

Gene
At 9:08pm on February 6, 2009, James Moriarty said…
My involvement is basically within the hospital, setting up cpap and bipaps on acute respiratory distress, post-anesthesia. I have a patent pending product that is used with masks and a website that discusses the advantages, features, and testimonials of patients that have trialed this on different masks. In our hospital, the use of non-invasive ventilation is used based on protocols and criteria from the physician. Many times the physicians ask the therapists what to do with settings, humidification, type of mask, cpap versus bipap. The equipment used in hospital care is both advantageous and disadvantageous. You will normally find disposable masks, and very high tech cpap, or bipap units delivering flow, pressure and back-up rates. Of course, there are always small glitches and troubleshooting skills that develop over time. You learn and remember from every patient you set up : how to improve therapy for maximum results and to get the patient comfortable.

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