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RLS/PLMS - just diagnosed, any suggestions how to help both

I was just diagnosed with RLS/PLMS yesterday. It had shown up on my sleep study but minimally that night, but after speaking with the sleep doctor yesterday, did he realize how serious it is for me, especially the PLMS. I wake up in the morning with sheet burns on my heels and have worn holes in my socks. I am sure it is one of the reasons I wake up exhausted.

 

Not sure what to do about it though? Any suggestions? Nutrition, medication, exercise? Not sure what to do for each one and/or both as I understand they are definitely different. The RLS seems to start after 3:30PM for me, and I get a generally ache that goes away if I get up and move. The PLMS is definitely something I have been doing for years in my sleep. Didn't know there was actually a term for it.

 

I know the doctor is double checking my low iron levels and is considering doing IV iron infusions. Did anyone here have any infusions done, and if so any side effects?

 

Thanks!

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iron is best taken from a food source not tablets

moasis

meat

licourish

grapes

also taken along with copper colour foods like carrots, yellow beans

I believe myrapex is the medication used for plms/rls. I coulf be wrong though.

Mary,

 

Maybe your ferritin levels are low and the doctor can easily get them up to normal by supplementation. This might be an easy, wonderful relief for RLS/PLMD.

 

If this is not the case, have a detailed discussion with the doctor about home treatments, supplementation, diet, exercise, and particularly things to avoid (caffeine and sedating antihistamines for example).

 

I am aware of eight prescription drugs that are used to treat RLS and PLMD. No one of them works for all people but each one of them works for some people. It is often trial and error to find the right drug. Some of the drugs are expensive and some are inexpensive. The one I take is $4.00 per month from WalMart or Target. If your doctor recommends drugs, use his guidance in selecting one to start with and ask him about the cost upfront.

 

You might also like to join the forum of the RLS foundation at http://www.rls.org/Page.aspx?&pid=593&srcid=593 . Here you can find many stories of what has worked for some people and not worked for others.

 

Good luck for a speedy and thorough relief and please update this discussion as things progress for you.

Reply by Rock Hinkle 1 hour ago
I believe myrapex is the medication used for plms/rls. I coulf be wrong though.

 

Is it good for this forum for you to be throwing out guesses about powerful drugs for serious conditions?

 

Is it good for your professional reputation?

 

I would always question Fe supplementation.(if your male be xtra cautious) Talk to your healthcare provider if he/she feels it is needed about natural Fe from kale etc.
There are several medications to treat RLegs, Limbs etc. Talk with you healthcare provider regarding each and what would best suit your needs and condition

Eur J Neurol. 2000 May;7 Suppl 1:27-31.

Pramipexole in the treatment of restless legs syndrome: a follow-up study.

Montplaisir J, Denesle R, Petit D.

Centre d'étude du sommeil, Hôpital du Sacré-Coeur de Montréal, Department of psychiatry, Université de Montréal, Montréal, Québec, Canada. J-Montplaisir@crhsc.umontreal.ca

Abstract

The restless legs syndrome (RLS) is a condition characterized by unpleasant limb sensations occurring at rest and associated with an irresistible urge to move. Several treatments are used to treat RLS including benzodiazepines, opioids, dopaminergic agents, clonidine and anticonvulsant drugs such as carbamazepine and gabapentine. Dopaminergic agents are now considered the treatment of choice for RLS. Levodopa is effective in treating RLS; however, several patients treated with levodopa at bedtime developed morning or late afternoon restlessness. Recently, more attention has been paid to dopamine receptor agonists. Ergoline derivatives, bromocriptine and pergolide were found effective, but require concomitant administration of domperidone, a peripheral dopamine antagonist. In a recent study, we studied the efficacy and innocuity of pramipexole, a new dopamine agonist with a higher affinity for the D3 receptor subtype of the D2 family, in a double-blind, placebo-controlled, randomized trial. Pramipexole had major effects on RLS symptoms without severe side-effects. The present study aimed to assess the long-term efficacy of pramipexole. Seven patients were treated with the drug for a mean follow-up duration of 7.8 months. Treatment was started at a dosage of 0.25 mg, and progressively increased until the optimal therapeutic effect was obtained. Home questionnaires were completed for 7 consecutive days, after one month and after a mean of 7.8 months of treatment with pramipexole, assessing leg restlessness during the daytime, in the evening, at bedtime and during the night. There was no evidence of a decrease in the therapeutic effect of pramipexole in these patients, even 7.8 months after the initiation of treatment. The optimal dosage was 0.25 mg for one patient, 0.5 mg for five patients and 0.75 mg for one patient. While there was a progressive increase in severity of leg restlessness from daytime to nighttime before treatment, a suppression of leg restlessness was observed throughout the 24 h with a single dose of pramipexole at bedtime. The remarkable efficacy of pramipexole raises the possibility that the D3 receptors of the mesolimbic system may be more specifically involved in the physiopathology of RLS.

 

 

I do not see any problem with giving someone something to research Rooster. Sorry that at the time I had trouble remembering for sure. Staying up all night does that to you sometimes. Stick to defending the insurance companies. I am confident in my support of SG. I also feel that even when I make a mistake from time to time that this site and myself will survive. I will worry about my own reputation thank you very much.You would do anything to get myself and any other tech off of this site. I will not give you the satisfaction.

 

I do find it rather comical that you now call RLS/PLMS a very serious condition. This condition is one of the underlying disorders that we find in a PSG. I believe that you and Banyon downplayed these types of disorders in your arguments for the HST. You are full of irony Rooster. Thanks for playing!

 

By the way Mirapex is the correct spelling. Something for you to talk to your doc about.

 

Rooster said:

Reply by Rock Hinkle 1 hour ago
I believe myrapex is the medication used for plms/rls. I coulf be wrong though.

 

Is it good for this forum for you to be throwing out guesses about powerful drugs for serious conditions?

 

Is it good for your professional reputation?

 

Reply by Rock Hinkle 16 hours ago

I do find it rather comical that you now call RLS/PLMS a very serious condition. This condition is one of the underlying disorders that we find in a PSG. I believe that you and Banyon downplayed these types of disorders in your arguments for the HST.

 

Did you even read the short OP by Mary? It clearly illustrates why we should not be spending money on PSGs to diagnose RLS/PLMD. Read the post for yourself. Here is an excerpt.

 

Posted by Mary Callahan on January 29, 2011 at 3:41pm

I was just diagnosed with RLS/PLMS yesterday. It had shown up on my sleep study but minimally that night, but after speaking with the sleep doctor yesterday, did he realize how serious it is for me, especially the PLMS. I wake up in the morning with sheet burns on my heels and have worn holes in my socks.

 

 

The results of the in-lab sleep study concluded a minor case of RLS/PLMD. No doubt the charges for this incorrect diagnosis from the sleep lab were in the thousands of dollars. This is a crime when any GP could have interviewed the patient for five minutes and correctly diagnosed serious RLS/PLMD for an office visit charge of $70.

 

This case is another fine example showing the sleep profession is running like a rattling old wreck.

 

BTW, my doctor and I know how to spell Mirapex. You are the one that misspelled it.

 

But I have high hopes that as the public becomes more aware and self-educated about sleep-disordered breathing they will put tremendous pressure on you guys to become efficient and effective. ;)

 

 

 

 

 

 

Without seeing the results neither of us know what the psg found Rooster. Unless you have learned to diagnose based on post. We should call you Dr. Rooster. Your attacks on my character are beneath you. Get a hobby. Better yet get some sleep grouch'

Rooster said:

Reply by Rock Hinkle 16 hours ago

I do find it rather comical that you now call RLS/PLMS a very serious condition. This condition is one of the underlying disorders that we find in a PSG. I believe that you and Banyon downplayed these types of disorders in your arguments for the HST.

 

Did you even read the short OP by Mary? It clearly illustrates why we should not be spending money on PSGs to diagnose RLS/PLMD. Read the post for yourself. Here is an excerpt.

 

Posted by Mary Callahan on January 29, 2011 at 3:41pm

I was just diagnosed with RLS/PLMS yesterday. It had shown up on my sleep study but minimally that night, but after speaking with the sleep doctor yesterday, did he realize how serious it is for me, especially the PLMS. I wake up in the morning with sheet burns on my heels and have worn holes in my socks.

 

 

The results of the in-lab sleep study concluded a minor case of RLS/PLMD. No doubt the charges for this incorrect diagnosis from the sleep lab were in the thousands of dollars. This is a crime when any GP could have interviewed the patient for five minutes and correctly diagnosed serious RLS/PLMD for an office visit charge of $70.

 

This case is another fine example showing the sleep profession is running like a rattling old wreck.

 

BTW, my doctor and I know how to spell Mirapex. You are the one that misspelled it.

 

But I have high hopes that as the public becomes more aware and self-educated about sleep-disordered breathing they will put tremendous pressure on you guys to become efficient and effective. ;)

 

 

 

 

 

 

Well Rock, on some basic issues you and I are in agreement:

 

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Reply by Rock Hinkle 15 hours ago

 

Sleep leadership has failed us all jnk. The system is broken and guerrilla glue won't fix it.

 

http://www.sleepguide.com/forum/topics/not-enough-sleep-techs-aasm?...

 

-----------------------------------------------------------------------------------------------------------

 

 

Reply by Rock Hinkle on January 27, 2011 at 4:25am

 

It is time for a change in this industry. Rooster, Banyon, and jnk were all right. I have been defending the wrong side the whole time.

 

http://www.sleepguide.com/forum/topics/not-enough-sleep-techs-aasm?...

 

 

Lol, maybe we should build on that Rooster;)
Now, now, boys! Mirapex is a script item so there is no harm in mentioning it as one treatment for RLS/PLMs. One needs a script from a doctor to buy it. AND Requip is another common script med for RLS/PLMs. AND my experience has been that regardless the level of RLS/PMLs the majority of sleep doctors, if OSA was also detected, is to script CPAP and wait to see if CPAP therapy reduces or eliminates RLS/PLMs. My understanding is that is because the leg movements/jerks COULD be the result of sleep disturbances from apneas, hypopneas or even respiratory efforts as a cause. Certainly I would consider checking via my doctor for various nutritional deficiencies before resorting to meds w/possible side effects of their own.

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