"please keep me updated about oximeters "
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New book entitled "Deadly Sleep."
Some of you may have read an electronic version of a patient informational booklet I began writing over two years ago. It was posted on the now discontinued www.stopsanow.com site. When the final version went to the printers last week, I was encouraged to stop the website to cover the costs.
The printed final version is available at Amazon.com, BarnsandNobel.com and the iUniverse.com bookstore.
I gave it to anybody who had the slightest interest in Sleep Apnea in hopes that I could get their attention and impress upon them the seriousness of the disorder and lead to treatment as quickly as humanly possible. The heart rendering stories that I heard over those two years of passing out cards and discussing OSA are very familiar to many of you who are a part of this website.
The book was written for the non-medical obstructive sleep apneic and/or his/her loved ones. I describe what OSA is, what it can do to you and what you have to do to treat it.
I took some liberties and stuck my neck out with a few hypotheses or theories in Table 2, Chapter 2. Consequences. I am dead serious about the possibility of Alzheimer's Disease being caused by OSA, not to mention some of the other diseases and disorders listed. Some of these may surprise you.
I tell my own odyssey with OSA so that others will not make the same mistakes I made. Thankfully, my scenario, which began in 2001 and mercifully ended in Sept. 2005, is not as likely to occur today with the latest APAP machines and smart cards that are available.
For those of you who have a chance to read the final version, feel free to ask questions, make comments or criticisms. I will do my best to answer your questions. Mack Jones, MD
The printed final version is available at Amazon.com, BarnsandNobel.com and the iUniverse.com bookstore.
I gave it to anybody who had the slightest interest in Sleep Apnea in hopes that I could get their attention and impress upon them the seriousness of the disorder and lead to treatment as quickly as humanly possible. The heart rendering stories that I heard over those two years of passing out cards and discussing OSA are very familiar to many of you who are a part of this website.
The book was written for the non-medical obstructive sleep apneic and/or his/her loved ones. I describe what OSA is, what it can do to you and what you have to do to treat it.
I took some liberties and stuck my neck out with a few hypotheses or theories in Table 2, Chapter 2. Consequences. I am dead serious about the possibility of Alzheimer's Disease being caused by OSA, not to mention some of the other diseases and disorders listed. Some of these may surprise you.
I tell my own odyssey with OSA so that others will not make the same mistakes I made. Thankfully, my scenario, which began in 2001 and mercifully ended in Sept. 2005, is not as likely to occur today with the latest APAP machines and smart cards that are available.
For those of you who have a chance to read the final version, feel free to ask questions, make comments or criticisms. I will do my best to answer your questions. Mack Jones, MD
Views: 28
Replies to This Discussion
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Permalink Reply by Mike on
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You're one of the good doctors, Dr. Jones. I have witnessed your passion for this subject and continue to with each person you reach out to on the forum and help out of no reason but the goodness of your heart.
I wish you every success with your new book. Congratulations on its publication.
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Permalink Reply by Mack D Jones, MD, SAAN on
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Mike, thanks for those kind words. Its hard to keep quiet when you know someone may be literally dying in their sleep and unless something is done, their future is almost certainly going to be catastrophic.
I am suspicious that some of my family and friends are beginning to run and hide when they see me coming because they fear I will talk their heads off about OSA. I think some may have even started APAP whether they needed it or not just to shut me up. Just kidding.
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Permalink Reply by D. W. Conn on
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Dr. Jones,
Sounds as if your book is a must read. My background is Cardiac-Neuro-Sleep. Currently writing a survivors guide to sleep apnea. I suffered from sudden cardiac death in 2004 from not wearing my CPAP or losing the weight. Now suffering some minor memory loss and testing to see if some form of dementia is setting in due to the damage from hypoxia. I was down and actively coded for over 20 minutes it has taken a very long time to come back to 100%. I was lucky my brain actually healed. I do not want others to suffer my fate so the idea of the survivors guide was born. Covering, sleep hygiene, diet, exercise, and etc... My website thatsleepguy.com is in the process of building. It should be open in the near future.
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Wow, what an incredible experience! I take my hat off to you. You are the survivor's survivor. If your story doesn't get the non compliant PAP user's attention to change their ways, nothing in the universe will. I have heard hundreds of heart wrenching OSA stories, but your near death experience is the most inspiring of them all. I am looking forward to reading your book and checking out your website. The best of continued luck to you, my friend. Mack
D. W. Conn said:Dr. Jones,
Sounds as if your book is a must read. My background is Cardiac-Neuro-Sleep. Currently writing a survivors guide to sleep apnea. I suffered from sudden cardiac death in 2004 from not wearing my CPAP or losing the weight. Now suffering some minor memory loss and testing to see if some form of dementia is setting in due to the damage from hypoxia. I was down and actively coded for over 20 minutes it has taken a very long time to come back to 100%. I was lucky my brain actually healed. I do not want others to suffer my fate so the idea of the survivors guide was born. Covering, sleep hygiene, diet, exercise, and etc... My website thatsleepguy.com is in the process of building. It should be open in the near future.
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That is truly an amazing story. Trying to make sense of some of the jargon you used. What does this mean? "I was down and actively coded for over 20 minutes"
D. W. Conn said:Dr. Jones,
Sounds as if your book is a must read. My background is Cardiac-Neuro-Sleep. Currently writing a survivors guide to sleep apnea. I suffered from sudden cardiac death in 2004 from not wearing my CPAP or losing the weight. Now suffering some minor memory loss and testing to see if some form of dementia is setting in due to the damage from hypoxia. I was down and actively coded for over 20 minutes it has taken a very long time to come back to 100%. I was lucky my brain actually healed. I do not want others to suffer my fate so the idea of the survivors guide was born. Covering, sleep hygiene, diet, exercise, and etc... My website thatsleepguy.com is in the process of building. It should be open in the near future.
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The way I interpreted it is that as the result of an airway obstruction while asleep, he had a cardiac arrest and someone performed CPR on him for 20 minutes and saved his life.
It pays to have a bed partner who knows CPR (or nowdays it's called "CCR" for Cardio Cerebral Resuscitation which is 100 compressions/min without any mouth to mouth.
Mike said:That is truly an amazing story. Trying to make sense of some of the jargon you used. What does this mean? "I was down and actively coded for over 20 minutes"
D. W. Conn said:Dr. Jones,
Sounds as if your book is a must read. My background is Cardiac-Neuro-Sleep. Currently writing a survivors guide to sleep apnea. I suffered from sudden cardiac death in 2004 from not wearing my CPAP or losing the weight. Now suffering some minor memory loss and testing to see if some form of dementia is setting in due to the damage from hypoxia. I was down and actively coded for over 20 minutes it has taken a very long time to come back to 100%. I was lucky my brain actually healed. I do not want others to suffer my fate so the idea of the survivors guide was born. Covering, sleep hygiene, diet, exercise, and etc... My website thatsleepguy.com is in the process of building. It should be open in the near future.
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The event actually occurred while at work.
I had worked 20 hours straight. I should say worked a 14 hour shift then spent a few hours catching up on class work. Then went to bed once gain not wearing my mask slept 4 hours. Awakened with a really bad headache. Daughter said Dad your snoring was so loud we could hear it in the living room. Guzzled a cup or 3 of coffee, then did take two aspirin and drove to work all in about 50 minutes.
Pulled charts and could feel my internal organs almost vibrating. I knew it was the lack of sleep. Began to review charts. Decided I was going for a quick smoke (yes I know bad idea). Back in the days of working in cardiac Trauma we learned the art of the breakfast of champions. Caffeine and cigarettes. It was a quick stimulating energy bad on the body.
My patient was not due for another 90 or so minute. Well I never made it to the door of the lab. The patient arrived very early in just a couple of minutes, found me and told a passing respiratory therapist that man in there is asleep on the floor and has his head on his ankle. RT called the code and started CPR. My legs were folded behind me feet up at my head so I had dropped instantly.
My episode of sudden cardiac death was deemed to be caused from severe untreated sleep apnea, sleep deprivation. There is a lot of organic mechanics that I could go through to explain the affect but it’s boring. Just know that Apnea is deadly and unforgiving.
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Permalink Reply by RockRpsgt on
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There is a lot of organic mechanics that I could go through to explain the affect but it’s boring. Just know that Apnea is deadly and unforgiving.
Did you forget the audience you were speaking to.
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Permalink Reply by Rock Conner RRT on
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I just requested DEADLY SLEEP on www.paperbackswap.com. Stay tuned for my review!
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