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I'm Miseable, Is this normal?
I was diagnosed with severe sleep apnea a year ago (142 events an hour).
I had a titration study a few months after the initial one because I was still pretty tired.
They adjusted my air from 10 to 15, and I felt great. No more sleeping in the car, etc.
Well, for the past month or so, I have woken up with my mask leaking and I have been sleepy while driving, etc.
I had my machine card read and I have 38% leaking from my mask.
The doctor ordered a life fit full face mask and there seems to be less leakage, but I've only been using it a couple of weeks.
Meanwhile, I am so sleepy and feel bummed out, have pvc's (like my heart has missed beats), and feel muscle tension. The Dr. said the pvcs are normal, but can little good sleep cause them?
I saw my family dr who said to try the new mask and if I don't get better he wants to put me on provigil.
I would like to know if these symptoms are common for sleep apnea, if it can take awhile to get better, and if sleep apnea can get better then worse and things need adjusting.
Please tell me if any of this is familiar.
Thanks!
Views: 25
Replies to This Discussion
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Permalink Reply by Mary Z on
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madeline, I can't answer all your questions, but I will tell you that after almost two years I still have daytime sleepiness. I took Provigil for along time then my doc switched me to nuvigil (long acting provigil). It helps me stay awake and alert during the day.
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Permalink Reply by Lee Longnecker on
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Hi Shirley
After about a year of being on CPAP people often need to have there pressure tweeked a bit. If you gain or loose weight, that can effect you pressure needs. Just about everything can effect your breathing while you sleep. Having a cold, medication, and alcohol. So having a talk with your local sleep lab may be a good idea. Your DR. may be able to read your smart card and adjust your pressure a bit to make you a more comfortable. Or he may want to do a whole new study.
Good luck
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Permalink Reply by D. W. Conn on
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In the case of mask leakage.. well I have some difficulty with leaking.. I use silly putty around the aarea that leaks it works like a sealing gasket.. now 38% leakage could be normal for your mask. some mask have a natural leak rate upto 60% for blowing off cO2.. elevate and turn to side and see what kind of help that brings.
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