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Hello sleepy
Good (?) Morning all. I just found this site and would be most pleased if I could share my misery with some like minded people and hopefully learn what this is really all about.
My story, and trying to be brief.. I have been off work for over nine months after finally accepting that falling asleep randomly at work while operating machines and walking about wasnt safe or normal. A month or two and my doc took me seriously and sent me to a sleep specialist. A portable test concluded no apnea, possible narcolepsy.. wait 8 weeks for proper testing in hospital. After failing to get the reqired amount of night sleep the test was re scheduled. Next test concluded that I possibly have both, apnoea and narcolepsy. More waiting, another test, I now have spent 5 nights on my shiny new cpap machine, banished to the spare bedroom may I add! (My partner wont look at me with my mask on)
I feel like hell in a chaff bag! Is this normal? Although I am doing the same things, up 2 or 3 times a night, I do feel like im sleeping deeper. None of the fiddling with my face to try and breathe clearly like before, or waking up choking. All of my muscles ache like I have run a marathon and as this whole thing has cost me a good 30kg.. Im feeling like illl never climb out of this mess alive.. Words of wisdom, Please!!
My story, and trying to be brief.. I have been off work for over nine months after finally accepting that falling asleep randomly at work while operating machines and walking about wasnt safe or normal. A month or two and my doc took me seriously and sent me to a sleep specialist. A portable test concluded no apnea, possible narcolepsy.. wait 8 weeks for proper testing in hospital. After failing to get the reqired amount of night sleep the test was re scheduled. Next test concluded that I possibly have both, apnoea and narcolepsy. More waiting, another test, I now have spent 5 nights on my shiny new cpap machine, banished to the spare bedroom may I add! (My partner wont look at me with my mask on)
I feel like hell in a chaff bag! Is this normal? Although I am doing the same things, up 2 or 3 times a night, I do feel like im sleeping deeper. None of the fiddling with my face to try and breathe clearly like before, or waking up choking. All of my muscles ache like I have run a marathon and as this whole thing has cost me a good 30kg.. Im feeling like illl never climb out of this mess alive.. Words of wisdom, Please!!
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Replies to This Discussion
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Permalink Reply by susan mccord on
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Glenda, do you have any idea how great it is to hear the smile in your messages recently??? Look how far you've come in a VERY short period of time!!!!
Sending you big hugs and a few smiles of my own!!!
Susan McCord :-)
glenda brown said:Hi all.. just woke up from a 6 hour stretch.. mask on!! just had to tell someone! Im so happy with myself. Now I know I can do it, theres going to be no stopping me.
I have always found that if I have a good daytime nap, I seem to have a better nights sleep. Is that a wierd? I even had an hour yesterday arvo with my mask.
Wow, hope I can get something done today now im all rested.. starting with last nights dishes!
Note to self- emotional 'high'
Glenda.
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Permalink Reply by glenda brown on
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It gets better- Last night I slept right thru!!!
nearly 8 hours, not even a toilet break.... and I woke up wondering where my mask was. It was on my face. All sealed and good.
:) :) :)
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WOO-WHOOOOOOO, GLENDA !!
AUSSIES ROCK THE APNEA SCENE !!!
Susan McCord :-)
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Hello Susan:
I want to thank you for your kind words......how are you doing with your full face mask--I feel so much better now.....I have energy and feel human what a difference when we are not losing our air from mouth breathing eh??? I hope all is well in your part of the world, I so enjoy reading your posts....
Thanks
Belinda :)
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