"please keep me updated about oximeters "
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Feeling Blah this morning
I used the CPAP from about 10 p.m last night until 6:30 this morning when I got up. I woke up not feeling rested at all. I had no leaks that I know of. If I did, it didn't wake me up. My head actually feels a bit fuzzy. I didn't know if any of you have ever experienced this or not. This is my first week on CPAP, so I really don't know what I should be expecting. The only thing that I was told is that my energy would increase and the snoring would decrease. Well, the snoring is almost non existant and until this morning my energy has increased some. I just know that this morning I feel as though I had been out all night drinking last night, and I don't even drink..Any feedback would be great...
Views: 25
Replies to This Discussion
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Permalink Reply by Judy on
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Two steps forward, one step backward, Christine. Sometimes that happens. What brand and model CPAP do you have? If we know that we will know if it is fully data capable or not. And if it is fully data capable we MAY be able to tell you how to access your nightly data. If it is fully data capable in all likelihood that data will tell us what went on last night.
It can take a while to get fully acclimated to CPAP therapy. Some Patience, some Persistence and a Good Sense of Humor can get you thru that acclimation - along w/some advice and support from your sleep doctor, your local DME supplier's RRT and us. The folks here are sleepguide are a tremendous asset as you get acclimated to CPAP therapy.
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Permalink Reply by Christine C on
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I am using the Remstar Pro M series..
Here is the data that I got off of it. I will say its like a foreign language to me
Therapy Usage
7 day average 5:30
30 day average 5:48
Sessions
7 day average 4 sessions
30 day average 7 sessions
Sysytem Leak
7 day average 39.4
30 day average 40.8
Apn-hyp
7 day average AHI 3.6
30 day average AHI 3.4
Summary
Therapy hours 57.5
Blower 58.0
Total sessions 7
I have yet to see my regular M.D let alone a sleep doctor. With medicare I have to wait at least 30 day after starting CPAP before I see my doctor. That appointment is for 9/15. Luckily my M.D is in the same physicians group that the head doctor of sleep studies is so they can both follow what is going on.
I don't have to take my data card in until 9/18. I hope that the data that I have posted will shine some light onto how well my machine is helping
Judy said:Two steps forward, one step backward, Christine. Sometimes that happens. What brand and model CPAP do you have? If we know that we will know if it is fully data capable or not. And if it is fully data capable we MAY be able to tell you how to access your nightly data. If it is fully data capable in all likelihood that data will tell us what went on last night.
It can take a while to get fully acclimated to CPAP therapy. Some Patience, some Persistence and a Good Sense of Humor can get you thru that acclimation - along w/some advice and support from your sleep doctor, your local DME supplier's RRT and us. The folks here are sleepguide are a tremendous asset as you get acclimated to CPAP therapy.
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Well, your data looks darn good, actually.
You've averaged 5 1/2 hours use a night over the past week and and 5 3/4 hours use per night over the past 30 days.
I'm not exactly sure how Respironics counts their "sessions" so will have to let someone else explain those figures.
I can't comment on your Leak data because I don't know the allowed vent rate for the mask you are using at your set pressure nor do I know your set pressure. If you dig out the literature that came w/your mask you will find a chart/table w/allowed vent rates running up the left side and various pressure settings running along the bottom. Plus a line running thru the graph/table. That allows you to find the allowed vent rate for your mask at your set pressure.
Your Apn-hyp
7 day average AHI 3.6
30 day average AHI 3.4
means Apn = apneas, hyp = hypopneas and AHI = the number of apneas AND hypopneas you experienced per hour of use. We like to see that AHI always be 5.0 or less which yours are. That is why I say you are doing well, especially this early in the game!
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Permalink Reply by RockRpsgt on
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Your data looks great. You have to keep in mind that prior to PAP therapy you went a very long time not sleeping well. Pap is also a very big shock to your system. It takes time for your body and mind to adjust to a comfort zone. Our physiology is set up to preserve itself for as long as it can. untreated apnea puts your body into a state of red alert. Sometimes it can take some time for your body to accept that the threat level has gone down. I call it "Mental Bureaucracy." It is a way for your neurons to inflate their egos and pad their paychecks. LOL
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I'm glad to know that my numbers look good. You know, I just realized that I havent been having the crazy dreams like I use to since I started PAP therapy. I mean they were crazy..I can remember one night I was dreaming that I was at a Wal-Mart putting down straw under all the clothes racks and trying to kill giant spiders with 5 gallon buckets...I have had ones more weird then that though. If I am dreaming now I don't remember them.
This morning after I made that post I took a short nap and then when I woke up I felt pretty good, so maybe I just woke up too early.
I was so glad when I finally had the answers to why I was waking up with the headaches I was getting. It did take me switching doctors to do that. My first doctor thought that I may have had a brain tumor so he orderd a CT scan which came back normal. After that he just prescribed imitrex. I knew something else was wrong. When I switched doctors and I told the doctor my problem, the first thing he said was he wanted a sleep study. The funny thing is I didn't know that one of the doctors in his practice is the head of the sleep study department at our local hospital. I have faith that I am in good hands. I do plan on telling them about this site. In the short time that I have been here I have gotten a wealth of information. If I can help even one other person educate theselves about the seriousness of this sleep disorder I will have done good. I myself never thought how serious it was until I read some of the stories here. I am SO glad that I found SleepGuide!
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Permalink Reply by Dan Lyons on
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Christine,
You might want to start a chart with this data on it. It will give you a therapy tracking record.
Keep in mind you are new and just starting out. You have a sleep debt to repay. Each persons repayment time is different. Be patient, the feel good will come shortly.
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Well, I was just checking the stats on my machine and I think I have actually improved some..I'm not sure exactly what all the numbers mean, but here goes.....
Usage
7.6 -7 day
6.24 -30 day
Sessions
7 sessions -7 day
16 sessions -30 day
System leak
39.1 -7 day
39,9 -30 day
Apn-Hyp
AHI 2.1 -7 day
AHI 3.0 -30 day
Therapy hours 120.2
Blower 121.4
Total Sessions 16
One thing that I have noticed is that the machine doesn't feel as though it is blowing as hard as it did when I first started. Could that be because I am getting use to it?
Oh yeah, I'm still liking the FullLife mask.
I do have a question..is it ok to loosen the straps when I take the mask off in the morning? I haven't quite figured out how to take it off without doing that.
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Permalink Reply by Mike on
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Those numbers look really good to me. Usage is the number of hours, on average, you used the machine over a 7 and 30 day period. Your leak numbers looked good <40. Your AHI is an average of the number of times you stopped breathing or had trouble breathing -- your AHI is ~3.0, which is good. "Normal" is considered less than 5.0, so you beat that. To answer your question about the blower feeling less strong to you recently, the strength of the blowing could vary if you have an Auto-Adjusting CPAP. Do you?
Also, I don't see a reason why it wouldn't be ok to loosen the straps to take off your mask, as long as you re-adjust properly when you put it on again.
Christine C said:Well, I was just checking the stats on my machine and I think I have actually improved some..I'm not sure exactly what all the numbers mean, but here goes.....
Usage
7.6 -7 day
6.24 -30 day
Sessions
7 sessions -7 day
16 sessions -30 day
System leak
39.1 -7 day
39,9 -30 day
Apn-Hyp
AHI 2.1 -7 day
AHI 3.0 -30 day
Therapy hours 120.2
Blower 121.4
Total Sessions 16
One thing that I have noticed is that the machine doesn't feel as though it is blowing as hard as it did when I first started. Could that be because I am getting use to it?
Oh yeah, I'm still liking the FullLife mask.
I do have a question..is it ok to loosen the straps when I take the mask off in the morning? I haven't quite figured out how to take it off without doing that.
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I dont think its a self adjusting its a respironics M series
Mike said:Those numbers look really good to me. Usage is the number of hours, on average, you used the machine over a 7 and 30 day period. Your leak numbers looked good <40. Your AHI is an average of the number of times you stopped breathing or had trouble breathing -- your AHI is ~3.0, which is good. "Normal" is considered less than 5.0, so you beat that. To answer your question about the blower feeling less strong to you recently, the strength of the blowing could vary if you have an Auto-Adjusting CPAP. Do you?
Also, I don't see a reason why it wouldn't be ok to loosen the straps to take off your mask, as long as you re-adjust properly when you put it on again.
Christine C said:Well, I was just checking the stats on my machine and I think I have actually improved some..I'm not sure exactly what all the numbers mean, but here goes.....
Usage
7.6 -7 day
6.24 -30 day
Sessions
7 sessions -7 day
16 sessions -30 day
System leak
39.1 -7 day
39,9 -30 day
Apn-Hyp
AHI 2.1 -7 day
AHI 3.0 -30 day
Therapy hours 120.2
Blower 121.4
Total Sessions 16
One thing that I have noticed is that the machine doesn't feel as though it is blowing as hard as it did when I first started. Could that be because I am getting use to it?
Oh yeah, I'm still liking the FullLife mask.
I do have a question..is it ok to loosen the straps when I take the mask off in the morning? I haven't quite figured out how to take it off without doing that.
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i believe the respironics m series pro comes in a straight cpap version (1 pressure setting) as well as an auto-adjusting version which operates between a range of pressure settings. What i'm trying to figure out is why the blower seems less intense for you. I thought it might be because you're having fewer apnea events than before and the machine auto-adjusted based on that to try less pressure. but it sounds more like you have a straight cpap and have gotten accustomed to the feeling of the pressure. that's the more likely explanation.
Christine C said:I dont think its a self adjusting its a respironics M series
Mike said:Those numbers look really good to me. Usage is the number of hours, on average, you used the machine over a 7 and 30 day period. Your leak numbers looked good <40. Your AHI is an average of the number of times you stopped breathing or had trouble breathing -- your AHI is ~3.0, which is good. "Normal" is considered less than 5.0, so you beat that. To answer your question about the blower feeling less strong to you recently, the strength of the blowing could vary if you have an Auto-Adjusting CPAP. Do you?
Also, I don't see a reason why it wouldn't be ok to loosen the straps to take off your mask, as long as you re-adjust properly when you put it on again.
Christine C said:Well, I was just checking the stats on my machine and I think I have actually improved some..I'm not sure exactly what all the numbers mean, but here goes.....
Usage
7.6 -7 day
6.24 -30 day
Sessions
7 sessions -7 day
16 sessions -30 day
System leak
39.1 -7 day
39,9 -30 day
Apn-Hyp
AHI 2.1 -7 day
AHI 3.0 -30 day
Therapy hours 120.2
Blower 121.4
Total Sessions 16
One thing that I have noticed is that the machine doesn't feel as though it is blowing as hard as it did when I first started. Could that be because I am getting use to it?
Oh yeah, I'm still liking the FullLife mask.
I do have a question..is it ok to loosen the straps when I take the mask off in the morning? I haven't quite figured out how to take it off without doing that.
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Permalink Reply by susan mccord on
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LOL!! That's one of your strong points, Rock, the ability to draw pictures using totally different situations...
Susan McCord
Rock Hinkle said:Your data looks great. You have to keep in mind that prior to PAP therapy you went a very long time not sleeping well. Pap is also a very big shock to your system. It takes time for your body and mind to adjust to a comfort zone. Our physiology is set up to preserve itself for as long as it can. untreated apnea puts your body into a state of red alert. Sometimes it can take some time for your body to accept that the threat level has gone down. I call it "Mental Bureaucracy." It is a way for your neurons to inflate their egos and pad their paychecks. LOL
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Christine, you're doing FAR better on your first week in than I was. Honestly, it took me quite some time to get adjusted to all this....I got so discouraged that I just felt like giving up. If it weren't for SG, I might have. Everyone who's said it takes time and patience is right!! I must admit that, at the time, it didn't make me feel better to hear that--the nights get very long, don't they?, but I did what they said because at the time I knew zip.nada about any of this.....I don't even know that I was patient--I was cranky half the time on here--but I got through it. Trust them, and me, when we tell you it takes awhile for some of us. You're doing well, really well. Hang in there!!!
Susan McCord :-)
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