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Breakthrough?.....
Hey, guys--I THINK I may finally be making headway with this CPAP treatment...slept 6 hours straight last night.
AND, it seems like the congestion craziness is easing up a bit. Much sooner than last time.
Fingers crossed. Prayers said..allowing myself a small amount of hope that I can do this.....
-Susan McCord :-)
AND, it seems like the congestion craziness is easing up a bit. Much sooner than last time.
Fingers crossed. Prayers said..allowing myself a small amount of hope that I can do this.....
-Susan McCord :-)
Views: 48
Replies to This Discussion
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Permalink Reply by BeeAsleep on
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So glad you had a good night YEA! Hang in there, it does get better, sometimes la little later rather than sooner.
I broke my ankle 3 weeks ago and have been wearing a big ole black boot on my right leg. Well, I have to DRIVE to work each day and I need my foot to drive. At the beginning I would take my leg out of the boot and wear my husband's right shoe with a wrap to drive. That was a bunch of work to do each time I got in and out of the car. So I learned how to drive with the boot on using both feet. The right foot to brake. I am amazed what a short time it took to learn to drive that way safely. At first I couldn't even use my left foot to brake. Anything new takes time before it becomes automatic, no matter what it is. :>D You are well on your way to becoming an honest to goodness HOSE-HEAD. :>D
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Permalink Reply by susan mccord on
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That "hose-head" thing cracks me up, Bee!!
God, I'd be in the ditch if I had to drive that way!!! The old coordination ain't everything it used to be.....
I'm ready to go back to bed!! Think I will!
Susan McCord
BeeAsleep said:So glad you had a good night YEA! Hang in there, it does get better, sometimes la little later rather than sooner.
I broke my ankle 3 weeks ago and have been wearing a big ole black boot on my right leg. Well, I have to DRIVE to work each day and I need my foot to drive. At the beginning I would take my leg out of the boot and wear my husband's right shoe with a wrap to drive. That was a bunch of work to do each time I got in and out of the car. So I learned how to drive with the boot on using both feet. The right foot to brake. I am amazed what a short time it took to learn to drive that way safely. At first I couldn't even use my left foot to brake. Anything new takes time before it becomes automatic, no matter what it is. :>D You are well on your way to becoming an honest to goodness HOSE-HEAD. :>D
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Did I already reply to this?????
susan mccord said:That "hose-head" thing cracks me up, Bee!!
God, I'd be in the ditch if I had to drive that way!!! The old coordination ain't everything it used to be.....
I'm ready to go back to bed!! Think I will!
Susan McCord
BeeAsleep said:So glad you had a good night YEA! Hang in there, it does get better, sometimes la little later rather than sooner.
I broke my ankle 3 weeks ago and have been wearing a big ole black boot on my right leg. Well, I have to DRIVE to work each day and I need my foot to drive. At the beginning I would take my leg out of the boot and wear my husband's right shoe with a wrap to drive. That was a bunch of work to do each time I got in and out of the car. So I learned how to drive with the boot on using both feet. The right foot to brake. I am amazed what a short time it took to learn to drive that way safely. At first I couldn't even use my left foot to brake. Anything new takes time before it becomes automatic, no matter what it is. :>D You are well on your way to becoming an honest to goodness HOSE-HEAD. :>D
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Whoops!, yes I did. I'm DEFINITELY going back to bed!!!
susan mccord said:Did I already reply to this?????
susan mccord said:That "hose-head" thing cracks me up, Bee!!
God, I'd be in the ditch if I had to drive that way!!! The old coordination ain't everything it used to be.....
I'm ready to go back to bed!! Think I will!
Susan McCord
BeeAsleep said:So glad you had a good night YEA! Hang in there, it does get better, sometimes la little later rather than sooner.
I broke my ankle 3 weeks ago and have been wearing a big ole black boot on my right leg. Well, I have to DRIVE to work each day and I need my foot to drive. At the beginning I would take my leg out of the boot and wear my husband's right shoe with a wrap to drive. That was a bunch of work to do each time I got in and out of the car. So I learned how to drive with the boot on using both feet. The right foot to brake. I am amazed what a short time it took to learn to drive that way safely. At first I couldn't even use my left foot to brake. Anything new takes time before it becomes automatic, no matter what it is. :>D You are well on your way to becoming an honest to goodness HOSE-HEAD. :>D
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Permalink Reply by Judy on
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Ahhh! Great. May the improvment and acclimation continue! Oh heck, yeah, you CAN do this, Susan McCord! WE have faith in you and are here to help you over the humps.
Heck, Bee, you can learn to both brake and use the accelerator w/your left foot in no time if you set your mind to it! Heck, I learned to sit in the passenger seat, just off the passenger door, and use both brake and gas pedal w/my left foot, plus steer w/my left arm while delivering mail and did so for some 20+ years. I've never understood WHY our newspaper deliveryman insists on driving on the left and either driving down the left side of the road when no traffic or swerving from right side to left side to deliver newspapers. Why not just reverse the delivery sequence and drive from the right like most of us rural letter carriers do?? It would be a heck of a whole lot safer!!!
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Permalink Reply by Saz RPSGT on
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What helped with the congestion?
That's great that you increased usage by another couple hours!
Jason
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Thanks, Judy. I appreciate your support, and have for awhile now...
Susan McCord
Judy said:Ahhh! Great. May the improvment and acclimation continue! Oh heck, yeah, you CAN do this, Susan McCord! WE have faith in you and are here to help you over the humps.
Heck, Bee, you can learn to both brake and use the accelerator w/your left foot in no time if you set your mind to it! Heck, I learned to sit in the passenger seat, just off the passenger door, and use both brake and gas pedal w/my left foot, plus steer w/my left arm while delivering mail and did so for some 20+ years. I've never understood WHY our newspaper deliveryman insists on driving on the left and either driving down the left side of the road when no traffic or swerving from right side to left side to deliver newspapers. Why not just reverse the delivery sequence and drive from the right like most of us rural letter carriers do?? It would be a heck of a whole lot safer!!!
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Hi Jason--Well, I've definitely still got the congestion. It's just not so intense that I can hardly bear it like it was. Don't know exactly about the improvement--what I DO know is that I had to get a new machine about a week ago--the first one was great till it malfunctioned, so I got a whole new setup, same model. I found out a couple of days later that the heating element on it doesn't heat, or if it does, it's not noticeable like it was on the other humidifier. The plate was warm in the a.m. but not hot like usual. Congestion continued. It also makes a whistle/whine kind fo noise which is annoying. And the ramp's not on which really doesn't matter. Anyway, I haven't called DME yet--not sure why. But night before last and last night I turned the humidity on 4 and it was cold, but I thought what the hell, nothing's working anyway. So I've left it there for two nights now. Yesterday, the congestion seemed a nano-bit better, but was still pretty ugly. Today, it's another nano better, still uncomfortable but definitely improved. AND I slept 6 hours straight without my usual bathroom trip at 4 a.m. About 4 hours after I got up, which was 7 a.m., I got so sleepy I could hardly stand it. Thought I'd go to sleep in my chair but didn't. Now I'm not sleepy but really, really tired. Don't know what's up with that. Head remains stuffy but the hard sneezing is at a minimum and I can at least tolerate the congestion which is helpful to my psyche!!! To say nothing of my attitude!! I'm just hoping it continues to work--if so, maybe I'll start feeling ready to celebrate by then. I'm kinda scared to put too much hope into this right now. I'm just feeling a tiny bit more optimistic...thanks for your follow-up!
Susan McCord
J. Sazama RPSGT said:What helped with the congestion?
That's great that you increased usage by another couple hours!
Jason
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Jason--here's an update to the thread about humidificationd/increased sleep, etc.
That day I told you I'd slept 4 hours after sleeping 8 and 7 the two nights before? That day was the most productive, energetic day I've had in months!! Was out all day doing stuff--haven't done that in months either. And after 4 hours sleep!!! Since then I've slept 7 hours and 7 hours the past two nights. I'm starting to believe I'm over the hump...a little scared to assume. The BIG difference, re: changes I made were that I cranked my humidification clear up to 5. I thought what the hell, nothing else has worked, everyone keeps telling me to kick it up, or it's too high, move it lower. I got sick of all the conflicting advice and just turned it up full blast and it worked.!!
I take a LOT of heart meds, some of which really dry me out in other ways--it makes sense to me that I'd be more sensitive to all this pressurized air blowing straight into my sinus cavity. I swear I was so congested I thought, at times, I was going to die. I'm not prone to hypochondria in any way, nor am I one to panic in the face of difficulties in life. However, this was so extreme that I really couldn't adequately describe it--I think that lead to a lot of non-medical people giving me "advice" which I'm not convinced is appropriate on this site--info yes, advice not so much. Everyone's bodies are so different--what works for one doesn't necessarily seem to work for others. So I've decided to get as much info as I can and then proceed in whatever way I think is best. And let the chips fall where they may. I have a habit of taking good care of myself and now that my head's starting to clear (cognitively and physically!), I'm less vulnerable to everyone's telling me what to do when I know it doesn't work for ME. So I'm keeping my humidity at 4 or 5--sx are mostly gone, and my sleep is improving rapidly--I'm guessing it's a function of accumulated improvement on CPAP and high humidity = better QUALITY of sleep. Don't know for sure--I'm still a novice at all this, but I'm 67 years old, have good judgment, and I'm taking some control of this for myself now.
I haven't seen ANY MD since before both sleep studies in June, so I'm less than impressed with the follow-up clinically. All my support and info are coming from SG, and I'm grateful every day for all you guys, pts and pros.
So...that's my recent progress and I'm happy about it. I have a hard time getting going in the a.m. but once I get really awake, I'm noticing slightly more energy and motivation.A WELCOME CHANGE! I think I can do this now.....you've been a great help to me with your clinical knowledge, support, and sense of humor. And I want to thank you for that, Jason. There are several other people here who have also been strong support. I feel very fortunate to be here, both at SG and alive!
Susan McCord :-)
susan mccord said:Hi Jason--Well, I've definitely still got the congestion. It's just not so intense that I can hardly bear it like it was. Don't know exactly about the improvement--what I DO know is that I had to get a new machine about a week ago--the first one was great till it malfunctioned, so I got a whole new setup, same model. I found out a couple of days later that the heating element on it doesn't heat, or if it does, it's not noticeable like it was on the other humidifier. The plate was warm in the a.m. but not hot like usual. Congestion continued. It also makes a whistle/whine kind fo noise which is annoying. And the ramp's not on which really doesn't matter. Anyway, I haven't called DME yet--not sure why. But night before last and last night I turned the humidity on 4 and it was cold, but I thought what the hell, nothing's working anyway. So I've left it there for two nights now. Yesterday, the congestion seemed a nano-bit better, but was still pretty ugly. Today, it's another nano better, still uncomfortable but definitely improved. AND I slept 6 hours straight without my usual bathroom trip at 4 a.m. About 4 hours after I got up, which was 7 a.m., I got so sleepy I could hardly stand it. Thought I'd go to sleep in my chair but didn't. Now I'm not sleepy but really, really tired. Don't know what's up with that. Head remains stuffy but the hard sneezing is at a minimum and I can at least tolerate the congestion which is helpful to my psyche!!! To say nothing of my attitude!! I'm just hoping it continues to work--if so, maybe I'll start feeling ready to celebrate by then. I'm kinda scared to put too much hope into this right now. I'm just feeling a tiny bit more optimistic...thanks for your follow-up!
Susan McCord
J. Sazama RPSGT said:What helped with the congestion?
That's great that you increased usage by another couple hours!
Jason
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Jason--I left you a message today 8/21 that's labeled Susan McCord replied to Susan McCord's discussion "Discussion"--it's buried in the middle of a bunch of dialogue and you'll probably never find it. It's on my Page if you want to make it easy. OR in the dialogue, it starts out "Jason--here's an update.....Hope you can find it. I'm brain-dead re: reaching people today. Sorry! I should have posted it as a Discussion, I guess...but I want you to read it.....
Susan McCord :-)
J. Sazama RPSGT said:What helped with the congestion?
That's great that you increased usage by another couple hours!
Jason
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Permalink Reply by michael patterson on
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Godbless us all for getting used to it it wasn't easy for me either but I did I used to get all wrapped up in the hose.I even pulled it loose a few times but now I sleep better
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