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APNEA SYMPTOMS/MASK LEAKS/RES SCAN
I COULD USE HELP INTERPRETING THE STATISTICAL INFORMATION FROM THE DATA CARD ON THE VPAP AUTO 25....IS THERE A RESOURCE OR A GUIDE THAT EXPLAINS INFORMATION RELATED TO RESSCAN?
I RECENTLY RECEIVED A COPY OF MY RESULTS FOR A NUMBER OF DAYS TRYING THE MACHINE. WHILE READING SOME RELATED INFORMATION YESTERDAY, I DECIDED TO LOOK AT MY STATS FOR THE FIRST TIME....I AM NOT SECURE INTERPRETING THEM BUT WHAT I NOTED RE THE LEAK L/MIN WAS THE FOLLOWING: 95TH PERCENTILE:8.4 AND MAXIMUM 151.2 AND MEDIAN 0.0. I SAW CAROLYNS POST THIS MORNING. JEFFS RESPONSE WHICH WAS REALLY GOOD SEEMS ALSO APPLICABLE ALSO TO ME BUT 151.2 WHAT?
I DONT UNDERSTAND THE SIGNIFICANCE OF THE 95TH PERCENTILE OF ANYTHING HERE AND THERE IS NO TIME ENTRY ANYWHERE....
I AM HAVING COMPUTER DIFFICULTIES RIGHT NOW....SO I DONT KNOW IF I WILL BE ALBE TO FINISH.
I AM CONCERNED BECAUSE I HAVE BEEN FOCUSED ON MY MACHINE AND HAVE NOT CONSIDERE MASK ISSUES RELEVANT TO ME.... I HAVE BEEN ONLY GETTING ABOOUT 4 HOURS OF SLEEP THE LAST FEW NITES AND I SUDDENLY BECAME AWARE THIS MORNING AS I WAS REACHING FOR COFFEE ...WHICH I RARELY DRINK... THAT I HAVE BEEN AND AM HAVING SIGNIFICANT APNEA SYMPTOMS.
FALING ASLEEP AT THE COMPUTER, IN FRONT OF THE TV, DROPPING THINGS AND MOSTLY LACK OFMENTAL CLARITY AND INABLILITY TO EXPRESS MYSELF CLEARLY. THINKING CLEARLY TAKES AN INCREDIBLE EFFORT. I HAD WANTED TO ASK SOME QUESTIONS THIS MORNING THATA RE IMPORTANT TO ME RE
THE MACHINE BUT THEY ARE MORE COMPLEX AND I WOULDNT EVEN BEGIN TO TRY TODAY BECAUSE I DONT KNOW IF I CAN EXPRESS MYSELF WELL. I HAVE BEEN HAVING PROBELMS EXPRESSING MYSELF...THE COFFEE SEEMS TO HELP.
I HAVE BEEN TOTALLY STUNNED AT THIS REALIZATION...HOW COULD I NOT BE AWARE? I GUESS I HAVE BEEN THINKING THAT BECAUSE I AM COMPLIANT AND I HAVE A MACHINE FOR TREATMENT THAT I AM TAKING CARE OF THE ISSIUE..WHEN CLEARLY THERE MAY BE A SIGNIFICANT PROBLEM.I HAVE TO SOLVE...ITS DISTRESSING. I FEEL LIKE I HAVE BEEN WALKING IN A HAZE. GOOD GRIEF..
THIS IS CERTAINLY AN ARGUEMENT FOR A FULL DATA BASED MACHINE...RATHER THAN MY OLD RESPIRONICS THAT ONLY GIVES COMPLIANCE INFORMATION.
FOR NOW, I NEED TO LOOK AT WHETHER THE MASK OR MY APPLICATION OF IT IS AN ISSUE.
I READ A POST ROCK WROTE SEVERAL WEEKS AGO ABOUT MASK APPLICATION WHICH I THOUGHT WAS GOOD AND THEN DISCOUNTED MY NEED TO DO THAT...BECAUSE THE MASK IS COMFORTABLE, I FALL ASLEEP ON MY BACK..IT DOWSSNT SEEM TO BE LEAKING...BUT I RECALL ALOT THAT I HAVE AROUSALS AND TURN FROM SIDE TO SIDE AND HAVE TO ADUST THE MASK DURING THE NITE. I HAVE IGNORED THAT FOR AGES... I REALLY FEEL FOOLISH.
I LOVE THIS MACHINE AND I BREATHE EASILY THRU IT SO I AM NOT QUESTIONING THE SETTINGS BUT WHAT DO I KNOW?
ANYWAY..IF SOMEONE CAN GIVE ME AN OPINION ABOUT THOSE NUMBERS I WOULD SO APPRECIATE IT.
A RESOURCE RECOMMENDATION WOULD ALSO BE HELPFUL.. FOR RESSCAN INTERPRETATION.
I JUST CHECKED. MY MASK IS A RESPIRONICS COMFORT SERIES...PROFILE LIGHT I THINK I RECALL.
WHEN I PRINTED OUT THE USER GUIDE FOR THE MACHINE THERE WAS A LIST OF RECOMMENDED MASKS...AND S I WONDER...HOW IMPORTANT IS IT TO HAVE A RESMED MASK TO ACCOMPANY THE RESMED MACHINE? OR IS IT JUST SALES RELATED INFORMATION?
SHOULD I SHUT OFF THE MACHINE WHEN IGET UP DURING THE NIGHT AND TURN IT BACK ON WHEN IRETURN TO BED? AND IF I DONT SHUT IF OFF AND LEAVE IT ON THEN THOSE NUMBERS WILL PROBABLY REFLECT MY ABSENCE AND HOW CAN THEY BE ACCURATE?
I GUESS THE MORAL OF THIS STORY FOR ME IS TO BE MORE VIGILANT...
FOR ANYONE THAT I MAY HAVE BABBLED TO CONFUSEDLY, MY DEEPEST APOLOGY.
NOW I AM GOING TO HAVE ANOTHER CUP OF COFFEE BECAUSE I WAS TOLD NOT TO SLEEP DURING THE DAY...
AND HOPE THAT I DONT NEED TO REPLACE MY COMPUTER....
JUST THINK HOW BORING IT WOULD BE IF LIFE WERE A STRAIGHT LINE...
THANHK YOU ALL SO MUCH FOR LISTENING.. AND IN ADVANCE FOR ANY ADVICE THAT YOU MAY HAVE.
UB
I RECENTLY RECEIVED A COPY OF MY RESULTS FOR A NUMBER OF DAYS TRYING THE MACHINE. WHILE READING SOME RELATED INFORMATION YESTERDAY, I DECIDED TO LOOK AT MY STATS FOR THE FIRST TIME....I AM NOT SECURE INTERPRETING THEM BUT WHAT I NOTED RE THE LEAK L/MIN WAS THE FOLLOWING: 95TH PERCENTILE:8.4 AND MAXIMUM 151.2 AND MEDIAN 0.0. I SAW CAROLYNS POST THIS MORNING. JEFFS RESPONSE WHICH WAS REALLY GOOD SEEMS ALSO APPLICABLE ALSO TO ME BUT 151.2 WHAT?
I DONT UNDERSTAND THE SIGNIFICANCE OF THE 95TH PERCENTILE OF ANYTHING HERE AND THERE IS NO TIME ENTRY ANYWHERE....
I AM HAVING COMPUTER DIFFICULTIES RIGHT NOW....SO I DONT KNOW IF I WILL BE ALBE TO FINISH.
I AM CONCERNED BECAUSE I HAVE BEEN FOCUSED ON MY MACHINE AND HAVE NOT CONSIDERE MASK ISSUES RELEVANT TO ME.... I HAVE BEEN ONLY GETTING ABOOUT 4 HOURS OF SLEEP THE LAST FEW NITES AND I SUDDENLY BECAME AWARE THIS MORNING AS I WAS REACHING FOR COFFEE ...WHICH I RARELY DRINK... THAT I HAVE BEEN AND AM HAVING SIGNIFICANT APNEA SYMPTOMS.
FALING ASLEEP AT THE COMPUTER, IN FRONT OF THE TV, DROPPING THINGS AND MOSTLY LACK OFMENTAL CLARITY AND INABLILITY TO EXPRESS MYSELF CLEARLY. THINKING CLEARLY TAKES AN INCREDIBLE EFFORT. I HAD WANTED TO ASK SOME QUESTIONS THIS MORNING THATA RE IMPORTANT TO ME RE
THE MACHINE BUT THEY ARE MORE COMPLEX AND I WOULDNT EVEN BEGIN TO TRY TODAY BECAUSE I DONT KNOW IF I CAN EXPRESS MYSELF WELL. I HAVE BEEN HAVING PROBELMS EXPRESSING MYSELF...THE COFFEE SEEMS TO HELP.
I HAVE BEEN TOTALLY STUNNED AT THIS REALIZATION...HOW COULD I NOT BE AWARE? I GUESS I HAVE BEEN THINKING THAT BECAUSE I AM COMPLIANT AND I HAVE A MACHINE FOR TREATMENT THAT I AM TAKING CARE OF THE ISSIUE..WHEN CLEARLY THERE MAY BE A SIGNIFICANT PROBLEM.I HAVE TO SOLVE...ITS DISTRESSING. I FEEL LIKE I HAVE BEEN WALKING IN A HAZE. GOOD GRIEF..
THIS IS CERTAINLY AN ARGUEMENT FOR A FULL DATA BASED MACHINE...RATHER THAN MY OLD RESPIRONICS THAT ONLY GIVES COMPLIANCE INFORMATION.
FOR NOW, I NEED TO LOOK AT WHETHER THE MASK OR MY APPLICATION OF IT IS AN ISSUE.
I READ A POST ROCK WROTE SEVERAL WEEKS AGO ABOUT MASK APPLICATION WHICH I THOUGHT WAS GOOD AND THEN DISCOUNTED MY NEED TO DO THAT...BECAUSE THE MASK IS COMFORTABLE, I FALL ASLEEP ON MY BACK..IT DOWSSNT SEEM TO BE LEAKING...BUT I RECALL ALOT THAT I HAVE AROUSALS AND TURN FROM SIDE TO SIDE AND HAVE TO ADUST THE MASK DURING THE NITE. I HAVE IGNORED THAT FOR AGES... I REALLY FEEL FOOLISH.
I LOVE THIS MACHINE AND I BREATHE EASILY THRU IT SO I AM NOT QUESTIONING THE SETTINGS BUT WHAT DO I KNOW?
ANYWAY..IF SOMEONE CAN GIVE ME AN OPINION ABOUT THOSE NUMBERS I WOULD SO APPRECIATE IT.
A RESOURCE RECOMMENDATION WOULD ALSO BE HELPFUL.. FOR RESSCAN INTERPRETATION.
I JUST CHECKED. MY MASK IS A RESPIRONICS COMFORT SERIES...PROFILE LIGHT I THINK I RECALL.
WHEN I PRINTED OUT THE USER GUIDE FOR THE MACHINE THERE WAS A LIST OF RECOMMENDED MASKS...AND S I WONDER...HOW IMPORTANT IS IT TO HAVE A RESMED MASK TO ACCOMPANY THE RESMED MACHINE? OR IS IT JUST SALES RELATED INFORMATION?
SHOULD I SHUT OFF THE MACHINE WHEN IGET UP DURING THE NIGHT AND TURN IT BACK ON WHEN IRETURN TO BED? AND IF I DONT SHUT IF OFF AND LEAVE IT ON THEN THOSE NUMBERS WILL PROBABLY REFLECT MY ABSENCE AND HOW CAN THEY BE ACCURATE?
I GUESS THE MORAL OF THIS STORY FOR ME IS TO BE MORE VIGILANT...
FOR ANYONE THAT I MAY HAVE BABBLED TO CONFUSEDLY, MY DEEPEST APOLOGY.
NOW I AM GOING TO HAVE ANOTHER CUP OF COFFEE BECAUSE I WAS TOLD NOT TO SLEEP DURING THE DAY...
AND HOPE THAT I DONT NEED TO REPLACE MY COMPUTER....
JUST THINK HOW BORING IT WOULD BE IF LIFE WERE A STRAIGHT LINE...
THANHK YOU ALL SO MUCH FOR LISTENING.. AND IN ADVANCE FOR ANY ADVICE THAT YOU MAY HAVE.
UB
Views: 154
Replies to This Discussion
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Permalink Reply by claudette paluch on
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Thank you so much! I appreciate your supportive comments...Unfortunately, perhaps, I march to my own drummer too much with regard to what people think... unless i think that i am offending...and that i dont want to do...and if i do its unintentional so i will just continue to stumble along. Its all just so new so even tho I feel like I have been here for ages, its not been that long.. claudette
sleepycarol said:Claudette
Wanted to let you know that all of us had to learn somewhere. None of us were born knowing how to talk, walk, sit up, etc. I am glad you are determined to learn and so do not worry what others think of you. Keep posting and reading and you will soon be helping others with the knowledge you have gained!!
Your determination will pay off!!
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Jeff
Its really a great feeling to have that machine and I am looking forward to investigating it thoroughly.
And I do feel fortunate that I have been able to find a group of individuals such as yourself who are willing to give of themselves with information not to mention their time.
It is a really good feeling to know that I am starting down a path that will, hopefully, lead me to a therapy situation that is optimal for me...Its been a long, bumpy road! And without the assistance of others I know that it would be very difficult to interpret all that is out there. So I am happy to be here.
I do enjoy this project....but I am not ready to give myself "pats" tho...
I did obtain copies of my sleep studies as I went along....I get copies of everything I can...lab results, radiology reports, md letters etc...much to the chagrin of some...
What I have not yet done is to go thru the sleep study reports enuf to know if I have a full set of everything. I am not certain what that set should contain either....I am not clear on what information should be available for me..
The MD prescription which was given when I obtained the loaner is the one I have....It does state VPAP Auto and humidifier....
Thanks for your kind words... Claudette
j n k said:Claudette,
In the grand scheme of the larger picture, (1) you now have an awesome machine that will tell you your leak and how well your therapy is going, right from the screen, and (2) you have already found this community and started participating. That already puts you way ahead of the game compared to most patients, and you deserve some congratulations and deserve to feel good about that.
Sure, you have some reading and learning ahead of you, but with the help of everyone here you will learn all the lingo and be better able to phrase your questions for your doctor and your equipment people so they can be of the most help to you. Once your therapy is optimized, hopefully many more things will fall into place for you. As you can see from what I posted, it may be possible to go from an AHI over 100 to getting good therapy, once you get leak under control and your machine is set up well for you.
If you don't mind my saying so, my advice is: Don't forget to have some fun learning it and to pat yourself on the back for the progress you make.
Am I right that you are working on getting copies of your sleep studies and a copy of your prescription? I am not trying to rush you, just making sure. I get confused a bit myself. :-)
jeff
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