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what cpap machine should i request????

i guess the sleep doc got enough info from my sleep study......he is prescribing me a cpap for my UARS.....my pressure setting is 7cm....can anyone give me some advice on what type of machine i should request??? or if i can request anything....when i asked the doc about data capabilities, he said they are all data capable but they only record hours used.....i know thats bs......but anyway the dme is supposed to call me by friday.....any advice?????? thanks

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Permalink Reply by Mike on August 26, 2009 at 8:59pm
I want to be able to say go for the new Philips Respironics System One Auto CPAP. My only hesitation is that it seems to be harder to access efficacy data from the PR System One than from the previous generation Respironics machine, the M Series Pro. The reason? The PR System One isn't compatible with a patient accessible software program, as far as I know.

So my recommendation is to get either the Respironics M Series Pro Auto Adjusting CPAP with A-Flex; or its ResMed equivalent: the S8 AutoSet II with EPR. Make sure the doctor's script has one of those machines specified on it, as well as the additional requirement: "heated humidification".

By the way, unbelievable that your doc had the you know what to say that all machines are data capable and that they only record hours used.
Permalink Reply by Saz RPSGT on August 26, 2009 at 9:24pm
What Mike said! :^) But also.....

In my opinion, the most important piece of equipment in treating sleep apnea is a well fitting and comfortable mask.

I'm glad you are being treated for UARS. It's often ignored.

Jason
Permalink Reply by sleepsurfer on August 28, 2009 at 1:35pm
thanks for the replies...just waiting for the dme to call.....mike
Permalink Reply by RockRpsgt on August 28, 2009 at 6:53pm
Have we heard from anyone whom has the new respironics system? I would wait on that one. Respironics has a new system coming in right behind it. Y flex technology, whatever that is.

Sleepsurfer, Mike and Jason gave you great advice.

Mike said:
I want to be able to say go for the new Philips Respironics System One Auto CPAP. My only hesitation is that it seems to be harder to access efficacy data from the PR System One than from the previous generation Respironics machine, the M Series Pro. The reason? The PR System One isn't compatible with a patient accessible software program, as far as I know.

So my recommendation is to get either the Respironics M Series Pro Auto Adjusting CPAP with A-Flex; or its ResMed equivalent: the S8 AutoSet II with EPR. Make sure the doctor's script has one of those machines specified on it, as well as the additional requirement: "heated humidification".

By the way, unbelievable that your doc had the you know what to say that all machines are data capable and that they only record hours used.
Permalink Reply by sleepycarol on August 29, 2009 at 10:12am
Mike the machine he needs to ask for is either the Pro or the auto with a-flex.

Sleepsurfer, either of those machines record useful data that will help you find effective treatment.

I am anxious to hear from others on the new System One setup. I do think that there will be those that have the capabilty of finding a way to access the data (at least my hope). I have even thought about talking to my pcp and seeing if she would be up to ordering a copy of it for me (you didn't hear that from me -- shhhh).

Rock can you tell us more about the Y-flex technology you wrote about?
Permalink Reply by Judy on August 29, 2009 at 10:30am
Do a search on Dr Barry Krakow. He's done quite a bit of research into UARS and I believe he may have a preference on what type of xPAP to use for UARS. I just don't remember whether he recommends only an APAP for UARS or whether there is a specific brand and model he prefers.

It seems to me in the dim recesses of my mind that Dr S Y Parks who often joins us here had a teleconference w/Dr Krakow but I can't swear on that. I do know Dr Krakow posted quite a bit about UARS at cpaptalk. I think that was last year but time can pass me by, it might even have been in 2007 he was posting quite a bit about it.

Did I forget to mention that Dr Krakow has a good sense of humor?

Quote:
Faculty Research Interests

Barry Krakow, M.D. is an internist and sleep specialist who entered the field of sleep medicine through his work with chronic nightmare sufferers in 1988. Since then, he has expanded his interests in nightmare research to examine the problem in PTSD patients. This work has led to an appreciation for the complexity of the sleep disorders problems in PTSD patients, which in turn has led to an interest in the complexity of sleep disorders in other mental health patients. He has recently submitted an NIMH grant for research on the assessment of sleep disorders in PTSD patients. Other interests include the role and influence of sleep disorders on various psycho-social populations, such as welfare recipients. Last, but not least, Dr. Krakow remains convinced that the relationship between sleep and golf is a very under-explored area of research that he personally intends to examine for years to come.
Permalink Reply by RockRpsgt on August 29, 2009 at 10:35am
Carol I wish that I could. My boss is experimenting with the machine now. I have not even seen it yet. We are supposed to get a full briefing on it sometime soon.

sleepycarol said:
Mike the machine he needs to ask for is either the Pro or the auto with a-flex.

Sleepsurfer, either of those machines record useful data that will help you find effective treatment.

I am anxious to hear from others on the new System One setup. I do think that there will be those that have the capabilty of finding a way to access the data (at least my hope). I have even thought about talking to my pcp and seeing if she would be up to ordering a copy of it for me (you didn't hear that from me -- shhhh).

Rock can you tell us more about the Y-flex technology you wrote about?
Permalink Reply by Judy on August 29, 2009 at 10:42am
It looks like it might be a BI-LEVEL, not an APAP, that Dr Krakow prefers for UARS. See this at YouTube

http://www.youtube.com/watch?v=_FrxWQBm3iQ

Cut and paste the URL as the Hyperlink option just doesn't always seem to work for me here.
Permalink Reply by RockRpsgt on August 29, 2009 at 10:44am
LOL! I am exploring that same relationship between sleep and golf.
Permalink Reply by Judy on August 29, 2009 at 12:11pm
You and Dr Krakow have the same interests, Rock Hinkle, so you could make a good team! LOL

Here's a link to something by Dr Krakow

http://sleepdynamictherapy.com/category/upper-airway-resistance-syn...

And I THINK I am overlooking Dr Park and his interest in UARS. I saw a couple of brief references to him and UARS when I did the google search on Barry Krakow UARS. I'll go try a search on Dr Park and UARS now.
Permalink Reply by Judy on August 29, 2009 at 12:23pm
I know it has been posted here before BUT here is the URL to Dr Park's website. There is way more information there than just on UARS.

http://doctorstevenpark.com/
Permalink Reply by PD Laire on August 30, 2009 at 6:54pm
personally, I would buy the new PR System One APAP, and figure out a way to get the software, even if it's only distributed to clinicians -- where there's a will there's a way.

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