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PD Laire
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Religious About CPAP, but Not Feeling Alert
5 Replies
Started this discussion. Last reply by PD Laire Mar 10.
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a few years, why do you ask?
How long have you been on PAP?
i never felt fully rested, even on CPAP, and now i'm just noticing it more
Is this a new feeling, or something that has been recent?
Well, PD, you've been around here nearly 10 months and if you've been compliant all this time I would expect you should be feeling better. Are you sleeping well? For about a week I've been having insominia and don't wake up feeling refreshed, either…
I've been consistently using my CPAP machine every night, and it's perfectly comfortable and I sleep throughout the night with it. I also have the latest equipment, and have been checking my numbers and my AHI and leak are low. Still, I'm not waki…
The docs are at a disadvantage if all they have to make judgments on pressure settings is the one night of the titration. If the doc has machine-estimated data over time, then a better pressure may be found.
The patients who know they have central…
That would be great, but I haven't heard of this type of help, unless, perhaps one is entirely dependent on government support already, as in full disability-SSI with no other means of support. From what I have heard, it is a long slow, painful path…
Thanks for your perspective here jnk, and I do agree with you about giving it some time to see if the centrals resolve and working with the therapy protocol as is. I was wondering if they would set the APAP to steady pressure, but they didn't, so I…
If the centrals during a sleep study were from 'clinical intolerance' of PAP therapy (in other words, pressurized air itself seemed to trigger centrals), then it makes sense to let you use CPAP for a while to see if the centrals go away on their own…
here in britain
those on oxygen concentrators have a discount with the electric used
you can make enquireies do they do a discounty on your electric bill as it is a medical nessesity
Thank you jnk & Judy,
It is also my point that "idiopathic" is just a fancy term for "we don't know". I can appreciate that, but I hope to help them figure it out, if not make it go away! I have considered that there is the potential that my undiagn…
One night's data from an oximeter is useful info, although desaturations are only part of the problem with sleep-disordered breathing. Often the bigger problem is that the changes in breathing disturb normal sleep architecture.
The oximeter used at…
Is one night's data from an oximeter enough to indicate if someone is desaturating, even if they aren't desaturating significantly?
RL,
As a patient, I'm not sure I believe in "idiopathic" central apnea. To me, that is a fancy way of saying "we don't know why they are happening, so we'll just say there is no reason." Sometimes centrals occur in reaction to PAP therapy but then…
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- My Interest in Sleep Apnea
- I have Sleep Apnea
- Treatment Being Used, if any
- Auto-Adjusting CPAP
- If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
- Respironics System One APAP
- If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
- ResMed Liberty
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Comment Wall (2 comments)
- At 10:17pm on July 7, 2009,
Judy said…
- PD, I got an e-mail from sleepguide that you had replied to my Tech Notes post. I'm sorry I was posting it as practice, wasn't satisfied w/it, and deleted it w/o noticing you had posted a reply.
- At 8:29am on March 22, 2009,
sleepycarol said… - Welcome to the forum!!
We are glad you joined. You will find informative information about sleep apnea, treatment options, and other information to help enhance your sleep.
If you are fairly new to the world of sleep apnea, please check out the new users group and the collective wisdom section. In those groups you will find informative discussions that maybe of interest to you.
If you have been around the world of sleep apnea for a while, we hope you still find the site informative and of interest.
Please feel free to share your thoughs, ideas, comments, questions, etc.
Again, Welcome to the forum!!
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Ahhhhh. That saves me having to move to NY!!!!
And what the devil are you doing up at this unGodly hour, Michael???
To each his own. The ClimateLine hose wouldn't carry any weight w/me at all.
so i was contemplating whether to get involved politically on this one, since i am in NY. I have such a strong distaste for politics, though... it's just not my cup of tea.
Well .... thank goodness for the section I've highlighted in bold!!
"S 8804. Establish the State Committee for Polysomnographic Technology
to assist the State Board of Medicine on polysomnographic technology
matters, and which shall also function a…
Well, I'd say a major feature relative to the S8 is the Climate Control humidification using the heated ClientLine hose. For someone who already has an S8, a 3rd party product such as the Aussie hose might be a good solution, but for a newbie like m…
39 here. Diagnosed three years ago.
O.K., so I read both the binarysleep thread and the other article link. I would not consider myself an expert at all, when it comes to the brain, but I think I am as qualified as the thread poster Tish who states: "I am not a trained scientist, my i…
I have used the S9 for a few weeks now and have the software to monitor the effect of changing masks and settings. the FX pillows are very comfortable but the amount of leakage at times in the night has tripled my AI. I have gone back to the Swift 1…
Thanks Cindy. I am copying the text of the bill below so that everyone can take a look at what we're talking about. It does in fact look like a bill setting standards for the practice of polysomnographic technology in New York. I guess coming at thi…
Mike I found this at the New York Assembly
http://assembly.state.ny.us/leg/?default_fld=&bn=+A01010%09%09&Summary=Y&Actions=Y&Votes=Y&Memo=Y&Text=Y
From what little I did read it's about making sure that the people doing the testing for sleep diso…
Go to Official Site of Manhattan A.W.A.K.E. - American Sleep Apnea Association Support Group of New York City at www.ManhattanAwake.org
Hey, curiosity killed the cat. Satisfaction brought it back. That's why cats have 9 lives, didn't you know??? *wicked grin*
You're my kind of person, Judy. I like how you get the job done.
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