Join Our Newsletter

New? Free Sign Up

Then check our Welcome Center to a Community Caring about Sleep Apnea diagnosis and Sleep Apnea treatment:

CPAP machines, Sleep Apnea surgery and dental appliances.

CPAP Supplies

Latest Activity

Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Sunday
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Sunday
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13
Mary Z left a comment for richard graham
"Glad to hear it's working, Richard."
Apr 11
richard graham replied to richard graham's discussion mouth breathing
"The chin strap is helping. Been having better sleep. Thanks Ginny and Mary for your help"
Apr 11
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Thanks, Mary~  Fingers are crossed.  My pressure is one point lower than when I began (7) and AHI is some lower (7 day average).  I am anxious about sleep study as I have not slept without CPAP in 2.5 years!   "
Apr 6
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Good job, Ginny Hope the sleep study shows some good results."
Apr 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Last procedure done!  This time he gave me meds to take before so less anxiety while waiting!  For the first time I was able to eat normal food on the way home after the procedure.  No pain after 12 hours.  If it only works.…"
Apr 5
Mary Z replied to richard graham's discussion mouth breathing
"Some folks run their humidifiers in passover mode- not turning on the heat just letting the air blow over the water.  That would not give any heat though. "
Apr 5
richard graham replied to richard graham's discussion mouth breathing
"Interesting, I actually feel a little better when I don't use the humidifier, but the humidifier helps with sinuses. The cold air stuff's me up. Gonna try running heat and a nasal spray"
Apr 4
Mary Z replied to richard graham's discussion mouth breathing
"Good luck with it- let us know how you do, Richard."
Apr 4
richard graham replied to richard graham's discussion mouth breathing
"I just picked up a new chin strap and will use it with my ultra mirage."
Apr 4
richard graham posted a discussion

nasal sprays

Just wanting some suggestions for some good nasal sprays to dry up sinusus. Thank you
Apr 3
richard graham replied to richard graham's discussion mouth breathing
"Thanks Mary"
Apr 3
Mary Z replied to richard graham's discussion mouth breathing
"I have both.  I use the chin strap with my Wisp and I also have a FFM if I choose to use that one. I'm a mouth breather.  I find nasal masks are easier to fit without leaks"
Apr 3
Mary Z replied to Mary Z's discussion Using comfort features
"Nasacort is now available without a prescription.  I personally use Afrin on the rare nights I need it for being stuffed up."
Apr 3
richard graham replied to Mary Z's discussion Using comfort features
"Mary, do you recommend a good nasal spray?"
Apr 2
richard graham replied to richard graham's discussion mouth breathing
"Wondering if mouth breathers do better with FFM"
Apr 2
richard graham posted a discussion

mouth breathing

I'm a mouth breather, and am wondering weather to get a chin strap or affm
Apr 2
richard graham replied to Mary Z's discussion Using comfort features
"I've been thinking about trying a nasal spray. Thanks that's useful info."
Apr 2
Sleep Apnea can kill you. There, I said it. I didn't want to say it, because I prefer to emphasize the positive aspects of treating Sleep Apnea rather than dwelling on the negative consequences of not treating it. But some among us will only respond to fear, so for their benefit, I'm putting this stark message "out there."

What's the proof that Sleep Apnea can kill? The study published by Terry Young, Ph.D. and her colleagues at the University of Wisconsin at Madison is particularly convincing and ominous. Back in 1988, Dr. Young rounded up a large group of randomly selected Wisconsinites (about 1,500 people) who agreed to be tested for Sleep Apnea. Dr. Young recorded not only whether they had Sleep Apnea, but also if they did, the level of Sleep Apnea severity. Dr. Young asked this group, known as her "Wisconsin Cohort" group, to agree to be tracked over the years, and they agreed. Fast forward to 2006, when Dr. Young checked in on them. After 18 years, some had passed away, some were still as healthy as they were back in 1988. The key for our purposes is that, controlling for all other factors, the folks who were identified as having severe Sleep Apnea and who did not get treatment for it were three to four times as likely as the others to die from something . . . anything, and five times more likely to die from stroke or cardiovascular disease.

So for those of you who need fear to motivate, are you afraid yet? I would be if I weren't paying attention to my treatment.

Views: 4339

Tags: Wisconsin, Young, apnea, cohort, death, study

Comment

You need to be a member of SleepGuide to add comments!

Join SleepGuide

Comment by Mary Z on August 16, 2010 at 10:09am
penny, I'm not afraid of dying. I don't want heart disease, high blood pressure, wt gain, or excessive daytime sleepiness and fatigue. It's not the fear of dying that keeps me on CPAP. On the other hand I think it's a shame when someone young with a family and everthing to live for dies for no good reason.
Comment by Jeanna Marie on July 8, 2010 at 1:21am
I was diagnosed with severe sleep apnea about 3 years ago. A year after being diagnosed I lost my insurance and thought it was not very important to use the machine and my mask broke. but a week ago found my self gasping for breath when I woke up.. i am going to re-evaluate my stupidity!
Comment by Banyon on February 25, 2010 at 4:31pm
Reggie White's widow set up a foundation in remembrance of Reggie for education about sleep apnea: http://www.reggiewhitesleepdisordersfoundation.org/
Comment by robert on February 25, 2010 at 4:10pm
If we have any football fans in the room, Many would remember a great player by the name os Reggie White. He was an untreated Sleep Apnea patient. He died December 27, 2004 at 43
Comment by Mary Z on February 10, 2010 at 10:12am
Ivette, please tell us more about yourself. Were you actually diagnosed and don't have insurance or $ for treatment? I don't blame you for being afraid. There may be someone on the forum who knows options for getting treatment with donated equipment. Dr. Park comes to mind. He did a teleconference a while back and the gentleman that he talked to knew a number of resources for getting treatment. Someone not long ago gave a CPAP machine away on this forum.

Keep posting and please give us your story, you never know who you might help, or who might help you.

Welcome to Sleepguide,
Mary Z.
Comment by Ivette Vincenty on February 9, 2010 at 10:30pm
I living with the condition with no treatment and every night this idea come to my mind. Actually I only sleep two or three hours in the all night and really I living afraid for this situation
Comment by 99 on February 7, 2010 at 1:35pm
CAN WE HAVE ALL THE POSTS IN THIS ORDER
WHAT DO I MEAN
new post are tagged onto the end of a thread
in this post new post are put at the beginging
Comment by Joseph Gardiner on February 7, 2010 at 3:23am
I am suppose to use my cpap and have not its very uncomfortabl and I feel like my apnea is getting worse as a result? can that happen if I continue not using my cpap machine?
Comment by Sherry Melanie Edwards on January 25, 2010 at 9:35pm
My doctor said I have the worst case of sleep apnea he has ever seen. It started many years ago. I would take a nap and my children and husband would notice that I would jump every few minuates. My children were small then. I didn't hear of apnia back then but my husband took me to the doctor and he told him that something was wrong and asked if they have a sleep study in our hospital. I was getting out of bed and sleeping in a recliner. I was sent to a clinic and as a result it changed my life a great deal. I don't believe I would be alive now if it had not been dianosed.I'm a good deal older and still feel like I haven't slept much in the mornings and am tired all the time, as well as not being focused well. BUT I'm alive!!!! My mom died age 55 during her sleep and I believe that she had it also. There were not studies then but she did not sleep well and had to elavate her head at night. My mom told me that my grand mother never slept and would sit up all night, I have been told by my doctor that is it enherited.
Comment by Kevin Barthelemy on January 22, 2010 at 3:32pm
78 times a night? I stop breathing over 200 times an hour. Without my CPAP, the odds are pretty good that I wouldn't live to retire.

© 2014   Created by The SleepGuide Crew.

Badges  |  Report an Issue  |  Terms of Service