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Latest Activity

liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015
Sleep Apnea can kill you. There, I said it. I didn't want to say it, because I prefer to emphasize the positive aspects of treating Sleep Apnea rather than dwelling on the negative consequences of not treating it. But some among us will only respond to fear, so for their benefit, I'm putting this stark message "out there."

What's the proof that Sleep Apnea can kill? The study published by Terry Young, Ph.D. and her colleagues at the University of Wisconsin at Madison is particularly convincing and ominous. Back in 1988, Dr. Young rounded up a large group of randomly selected Wisconsinites (about 1,500 people) who agreed to be tested for Sleep Apnea. Dr. Young recorded not only whether they had Sleep Apnea, but also if they did, the level of Sleep Apnea severity. Dr. Young asked this group, known as her "Wisconsin Cohort" group, to agree to be tracked over the years, and they agreed. Fast forward to 2006, when Dr. Young checked in on them. After 18 years, some had passed away, some were still as healthy as they were back in 1988. The key for our purposes is that, controlling for all other factors, the folks who were identified as having severe Sleep Apnea and who did not get treatment for it were three to four times as likely as the others to die from something . . . anything, and five times more likely to die from stroke or cardiovascular disease.

So for those of you who need fear to motivate, are you afraid yet? I would be if I weren't paying attention to my treatment.

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Comment by Mary Z on August 16, 2010 at 10:09am
penny, I'm not afraid of dying. I don't want heart disease, high blood pressure, wt gain, or excessive daytime sleepiness and fatigue. It's not the fear of dying that keeps me on CPAP. On the other hand I think it's a shame when someone young with a family and everthing to live for dies for no good reason.
Comment by Jeanna Marie on July 8, 2010 at 1:21am
I was diagnosed with severe sleep apnea about 3 years ago. A year after being diagnosed I lost my insurance and thought it was not very important to use the machine and my mask broke. but a week ago found my self gasping for breath when I woke up.. i am going to re-evaluate my stupidity!
Comment by Banyon on February 25, 2010 at 4:31pm
Reggie White's widow set up a foundation in remembrance of Reggie for education about sleep apnea: http://www.reggiewhitesleepdisordersfoundation.org/
Comment by robert on February 25, 2010 at 4:10pm
If we have any football fans in the room, Many would remember a great player by the name os Reggie White. He was an untreated Sleep Apnea patient. He died December 27, 2004 at 43
Comment by Mary Z on February 10, 2010 at 10:12am
Ivette, please tell us more about yourself. Were you actually diagnosed and don't have insurance or $ for treatment? I don't blame you for being afraid. There may be someone on the forum who knows options for getting treatment with donated equipment. Dr. Park comes to mind. He did a teleconference a while back and the gentleman that he talked to knew a number of resources for getting treatment. Someone not long ago gave a CPAP machine away on this forum.

Keep posting and please give us your story, you never know who you might help, or who might help you.

Welcome to Sleepguide,
Mary Z.
Comment by Ivette Vincenty on February 9, 2010 at 10:30pm
I living with the condition with no treatment and every night this idea come to my mind. Actually I only sleep two or three hours in the all night and really I living afraid for this situation
Comment by 99 on February 7, 2010 at 1:35pm
CAN WE HAVE ALL THE POSTS IN THIS ORDER
WHAT DO I MEAN
new post are tagged onto the end of a thread
in this post new post are put at the beginging
Comment by Joseph Gardiner on February 7, 2010 at 3:23am
I am suppose to use my cpap and have not its very uncomfortabl and I feel like my apnea is getting worse as a result? can that happen if I continue not using my cpap machine?
Comment by Sherry Melanie Edwards on January 25, 2010 at 9:35pm
My doctor said I have the worst case of sleep apnea he has ever seen. It started many years ago. I would take a nap and my children and husband would notice that I would jump every few minuates. My children were small then. I didn't hear of apnia back then but my husband took me to the doctor and he told him that something was wrong and asked if they have a sleep study in our hospital. I was getting out of bed and sleeping in a recliner. I was sent to a clinic and as a result it changed my life a great deal. I don't believe I would be alive now if it had not been dianosed.I'm a good deal older and still feel like I haven't slept much in the mornings and am tired all the time, as well as not being focused well. BUT I'm alive!!!! My mom died age 55 during her sleep and I believe that she had it also. There were not studies then but she did not sleep well and had to elavate her head at night. My mom told me that my grand mother never slept and would sit up all night, I have been told by my doctor that is it enherited.
Comment by Kevin Barthelemy on January 22, 2010 at 3:32pm
78 times a night? I stop breathing over 200 times an hour. Without my CPAP, the odds are pretty good that I wouldn't live to retire.

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