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SaraLynn
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  • Saint Paul, MN
  • United States
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Latest Activity

Both my husband and I have UARS. I don't believe an at-home sleep study would catch that.
August 5
You are not stretching it when you describe the understanding of UARS as being in its infancy. I just went to a neurology appointment with my daughter to address ongoing headaches. It was at a well-known large neurology clinic in a major metropolita…
July 1
When we looked closely at our insurance policy, it defined criteria for diagnosis of UARS; however, the criteria for qualifying for medical management (CPAP/dental device) referred specifically to the apnea hypopnia index, which did not apply to the…
July 1
I use a mandibular advancement device for UARS. I actually felt worse on CPAP. Upon awakening the first morning after using the MAD, I woke up and did not want to get out of bed, not because I felt unrested, but because I was so relaxed...my limbs f…
June 29
Thank you so very much, Mary!
June 4
The process should be the same as accepting any other chronic health problem. It's like the stages one goes through with any loss. Wikipedia used to have an article, but I can't find it now. I think the main things (maybe not in the right order, but…
June 4
SaraLynn added a discussion
I am looking for any resources that describe the recovery process once a sleep breathing disorder is identified and treatment is started.  I realize that just like the CPAP experience, this can be a highly individual process; however, I am intereste…
June 3
UARS is a funny thing like that. Sometimes finding the exact pressure can be tough. I should have mentioned humidity as well. I would troubleshoot all possibilities before talking to a doc about a pressure change. I do not know if it would work, bu…
April 15
Thanks for your response, Rock! I will have him pursue a pressure change. Someone suggested that increased humidification would help with this? What do you think about that? Interestingly, I use a mandibular advancement device for my UARS with grea…
April 15
His pressure may be too high. He also may want to look into one of the oral devices to help keep his lower jaw in place.
April 15
SaraLynn added a discussion
Background:  My husband has struggled with leaks using a full CPAP face mask and a nasal mask; periodically he even snores with the it in place.  His jaw tends to drop back, resulting in intermittent mild to moderate snoring, so in addition he is us…
April 15
I use the Somnodent successfully for my diagnosis of UARS. I was desperate to find help, as the CPAP seemed to be making my symptoms worse. I have seen UARS described as a hypersensitive nervous system that causes arousals due to increased efforts t…
April 8
SaraLynn and Sleeping Ugly are now friends
April 7
I am using the mandibular advancement device for UARS with excellent results. Both my husband (who also has UARS) and I found that CPAP made our symptoms worse.
April 2
Hi, I have been using a Somnodent for a year now with fabulous results...I LOVE my appliance. The appliance is similar to a retainer, and it has been custom-fit, so maybe the shifting you are experiencing has more to do with your bite changing. My…
April 1
47 UARS
March 10

Profile Information

My Interest in Sleep Apnea
I may have Sleep Apnea, Someone I care about may have Sleep Apnea
Treatment Being Used, if any
Dental device

Comment Wall (8 comments)

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At 2:59pm on February 9, 2010, Linda Birnbaum said…
Thank you for the citation. The next time I am in a medical library I will read the full text and get back to you about things. I cant read it online cause I dont have a subscription to the journal.
At 7:11pm on April 11, 2009, sleepsurfer said…
excellent point....i think im looking at about 20 years of sdb.....and uars is not as cut and dry as apnea.....our sleep disturbances are more complex, i believe. i have continued to improve at a snails pace. but that is okay....i have gotten over the idea that i would wake up cured after one night.
At 9:55pm on April 9, 2009, sleepsurfer said…
glad to hear that you are having good initial results. i'm still at about 30% improvement....its weird. i have improved in some ways and not in others....but i am figuring it will be a long recovery....
At 11:51pm on April 2, 2009, sleepsurfer said…
got stuck at work. i am really bummed that i missed the conference....how was it? i wonder if we can get a transcript....
At 2:14pm on April 1, 2009, sleepsurfer said…
wouldn't it be nice if we could just get a tongue reduction! why can't they figure that one out. any way, you are right, my wife is scarey sharp....it is just frustrating when i see my friends who can surf for hours and hours, come in and eat, and surf again in the afternoon.....i can't even imagine what that's like anymore...i could still surf for a solid three hours in 2005 and maybe two hours in 2007....monday i went for an hour and a half and it just kicked my butt. but the week before i was fine. sorry if i keep rambling....i think it is great that you will be able to help your kids before they even know they have a problem. i know my grandmother(REST HER SOUL) suffered from this and my father too. and at 37 i'm just figuring this out on my own.....are you doing the teleconference tomorrow?
At 1:09pm on April 1, 2009, sleepsurfer said…
hi sara....glad you got it, and it seems to be working so far....after i posted you last(10 days ago) i continued to improve...i was thinking maybe as much as 35% or so....i was feeling stronger...still sleepy at times but not crippling. then i surfed last week for an hour and felt much improved. then on last sunday i started to feel that old need to yawn or take deep breathes all day...yuck....i surfed on monday and felt pretty darn good again but when i was done i was miserable for the rest of the day on the couch exhausted. i don't get it...i know i feel better in some ways....my wife says to take it slow which i have no choice but to do.....at this point the mad is probably helping reduce arousals but not eliminate them....or i just have to slowly recover from a lifetime of SBD. im still optimistic though! do you have an overbite? how far out do you think you can adjust your lower jaw from its natural position?
At 7:18pm on March 21, 2009, sleepsurfer said…
yes, i am the one and only sleep surfer....i maybe to 15% better now....still hard to tell. to try and illustrate it for you....10 years ago at age 28 i'll rate myself a 10 in strength endurance and wakefullness(even though i was a sleepy head then) at my worst about two months ago, i was a 2, now i think i'm up to a 4.5. so if you look at it like a stock market cycle, on the way up there are bumps in the road as on the way down....so am i on the way up or is it a bump in the road? i hope to find out soon....oh yeah, on the scale, a 0 would be not leaving the house. you must be getting a TAP. seems to be the most popular.
At 5:19pm on March 20, 2009, sleepycarol said…
Welcome to the forum!!

We are glad you joined. You will find informative information about sleep apnea, treatment options, and other information to help enhance your sleep.

If you are fairly new to the world of sleep apnea, please check out the new users group and the collective wisdom section. In those groups you will find informative discussions that maybe of interest to you.

If you have been around the world of sleep apnea for a while, we hope you still find the site informative and of interest.

Please feel free to share your thoughs, ideas, comments, questions, etc.

Again, Welcome to the forum!!
 
 
 

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Latest Activity

Yup, if you've got insurance, your insurance dictates which local DME providers you can use. Just because you bought your CPAP elsewhere does NOT mean that your insurance contracted providers can't or won't provide your masks and other accessories.…
43 minutes ago
Linda, thanks your your help. When I call Apria, I wil ask them why they did not offer me a payment plan. Good luck!
1 hour ago
Hi Candace, Apria is giving me a payment plan for 10 months, after that I will buy it if I still need it. In the mean time, all of the folks here are so helpful they told me the best cpap to get and low and behold, Apria did not give me a newer mode…
1 hour ago
Linda, I read your question re: CPAP Machine and Apria. I also am not impressed with them. I have Kaiser and Kaiser will not pay for my equipment. Apria says that I have to pay all costs up front. Are you on a payment plan with Apria. I have severe…
1 hour ago
candace wells, Jon and CLIFTON MCDONALD joined SleepGuide
1 hour ago
First, let me say, Thank you for going to bat for us. I think you are doing a fantastic job in spreading OSA awareness and providing us with OSA a place to go for support. Apparently there is no connection between a college degree and intelligence,…
3 hours ago
You hit the nail on the head. I had a similar experience last year with another organization, The Alzheimer's Association. I ask for permission to pass out a flyer, "Does Sleep Apnea Cause Alzheimer's Disease?," at one of their annual meetings regar…
4 hours ago
Then she should say that... Say anything other than the falsehood that the connection between OSA and heart disease isn't sufficiently proven. 
4 hours ago
"Respironics recommends that new patients purchase their devices, masks and initial accessories from a homecare company that can provide an individualized patient equipment set-up, clinical and after-sale support, and a program to assist patients wi…
4 hours ago
Maybe you should be the communications director for the AHA ;-).
4 hours ago
I believe that individuals should be free to make decisions for themselves. This goes for the patients and the providers. The patient is free to decide what to do and who to pay for what services. The provider is free to decide what services he offe…
4 hours ago
I'M NOT A 100% SURE OF THE NAME OF MY MASK I THINK IT'S CALLED A PROFILE LITE IT HAS A THICK GEL CUSHION ON THE FORHEAD PIECE AND THE ALL AROUND THE MASK. I STILL END UP WITH RED MARKS ON THE BRIDGE OF MY NOSE AND FOREHEAD BUT THEY FADE IN AN HOUR O…
5 hours ago
by no means am i suggesting that this one person believes one thing or another. rather, she is the director of marketing and communications for the AHA. it is her job to communicate the organization's viewpoints to the public, and that's what she wa…
5 hours ago
HEY, I read the funny e-mails! HAH, I'm heading north tomorrow...
5 hours ago
Jon added a discussion
I received my machine in March with a nasal pillow mask. I switched to a full face mask because I was breathing thru my mouth.I was struggling with getting used to wearing the mask, finally got to the point of wearing it every night.I could not get…
6 hours ago
Ah ha, BirdShell!!! You can ignore me, but we managed to lure you out of your hiding place w/this thread, eh?? Too bad too. Danielle, Ashley, Nicole and I are all meeting at La Placita in Saginaw for lunch tomorrow. I'll be thinking of you!!!! Nico…
6 hours ago
I agree with your advice,Mike.Once I was treated for a sinus infection,I had replaced everything .Also, it is a good idea to use saline to cleanse the sinuses at least twice daily . You may look into the use of a Nettie Pot,,,,that can throughly cle…
6 hours ago
I tried wearing a band aid on the bridge of my nose the other night and it helped, but not enough. Most of the "solutions' that I've found end up causing to much air to leak. I started wearing the bandana (folded in several layers and tied like a he…
6 hours ago
I have to comment! I ran Jump Rope for Heart (JRFH) activities/fundraisers in my classes for years. (For more information: http://www.aahperd.org/jump/ and http://www.americanheart.org/presenter.jhtml?identifier=2360 This is a good condensation of t…
6 hours ago
I've beeb using Sleep Strip for years. It's a good screening test that correlates pretty well with formal sleep studies. It won't give you a number, but rather ranges from none, to mild, moderate or severe. You still need a doctor's prescription. Ty…
6 hours ago

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