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liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you slhttp://blog.aastweb.org/winners-and-losers-food-for-thought-sleep-and-athletic-success?utm_campaign=subscribers&utm_source=hs_"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015
Helloe:

I am a newbie here, and I was wondering if someone could explain to me in very basic terms how to read cpap data for example and what are the acrynoms, and what are acceptable air levels and apnea episodes during the night....my cpap rep explained my levels very quickly and had another patient to see before I could really understand what he meant.....and what he considers exceptable data I am not sure compared to what I see on this site....

I know this is alot to ask but, I need to understand the very basics of the data and what it all means....if anyone can help me I would greatly appreciate it....

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What brand and model CPAP are you using? That will help us clarify a little better for you.

The very basics are:
AHI = apnea/hypopnea index = number of apneas and hypopneas you experienced per hour combined
AI = apnea index = number of apneas you experienced per hour
HI = hypopnea index = number of hypopneas you experienced per hour
xPAP = any type of CPAP, VPAP, Bi-PAP, BPAP, etc.
VPAP = Resmed's proprietary name for their bi-level PAPs
Bi-PAP = Respironics' proprietary name for their bi-level PAPs
BPAP = often used as a generic name for any bi-level PAP
90th Percentile = the number (level) AT OR BELOW which you spent the session (Respiornics)
95th Percentile = the number (level) AT OR BELOW which you spent the session (Resmed)
Vent flow rate = allowed vent rate = allowed leak rate = the amount of "leak" or flow of air allowed to "leak" thru the holes built into the mask system to allow for the escape of stale, breathed air containing C02 at various set pressures. The literature for each mask has a table or chart of the allowed "Vent flow rate" for that particular mask model.
Compliance = the number of hours and number of nights you use your xPAP

An AHI less than 5.0 is considered "normal".
Leak is the amount of air that escapes thru your mouth, between your lips whilst wearing your mask w/xPAP turned on and depending on the brand of xPAP the Vent flow rate
The usual acceptable Compliance rate is at least 4 hours per night and at least 5 nights a week of xPAP use.
Thank you so much Judy. Your reply to Belinda has really helped me to understand also.
Thanks so much Judy this will come in handy.....
I have a Resmed and haven't used a Respironics in a LONG time and never the Respironics M Series. However, IF the DME supplier's RT has turned access to the advanced patient menu on a Resmed a simple button combo will bring up your Efficacy Data on the LCD screen.

On a Resmed you would press the Left and Right buttons and hold for 4-5 seconds. Efficacy Data should appear on the LCD screen. From then on in it is just a matter of Left button to Enter, Right button to Exit, Up button to return to the previous screen and Down button to proceed to the next screen. You can NOT alter your therapy settings in anyway from this advanced patient menu.

There may be some slight differences between what will appear on the LCD screen between the S8s and the S8 IIs but I don't think anything too different. And you MUST access this data BEFORE noon because at noon that night's data is rolled over into the total averages.

Pressure (the 95th percentile, i.e. the pressure AT OR BELOW which you spent 95% of the night
Leak (the 95th percentiel, i.e. the rate of Leak AT OR BELOW which you spent 95% of the night
AHI (the number of apneas and hypopneas PER HOUR you experienced that night)
AI (the number of apneas PER HOUR you experienced that night)
You can also access these averages for one week, one month, six months and one year when you've been using your Resmed long enough

The Usage Data will display
The number of hours used that night
The number of nights used and the number of nights since your Resmed was first used

If you have a Respironics, access to the data requires a different "combination" and somewhat different data. I think Mike has a Respironics and can better explain how to access the data and what data is available in the menu that is "safe" to access w/o being able to accidentally or intentionally alter your xPAP therapy.
Below are instructions for how to access the provider menu on the Respironics M Series Pro CPAP machines. Caution: before changing any of the settings on your machine, make sure you write down each and every pre-set setting so that if you make a mistake, you can change it back to the way it was. Also, changing the settings on your own without advice from your physician is discouraged.

1. Hold down the <- -> buttons while plugging in the power on the back, wait for 2 beeps, release buttons.
2. Press the + key. <- -> buttons move to next field, -/+ keys decrement/increment
3. Check the following field(s):

-Therapy Mode = CPAP

-CPAP Pressure = NN (4 - 20 cm.)

-C-Flex Setting = (options are off, 1, 2 or 3)

-Ramp Time = (options are 05 to 45 min)

-Ramp Start Pressure = cm (Min. 4cm)

-Mask Alert Feature = On (On/Off)

-Auto Off Feature = Off (On/off)

-Show AHI/Leak Feature = On (On/Off)

Press On/Off button to exit.
Thanks sooooo much PD :)
This is EXCELLENT infomation. Here's some data I got from my doctor yesterday. It is a reort on Sleep Architecture from my sleep study. I'd love to get your feedback on this....as I'm new and learning so much right now.

Total Recording Time 422 NREM 300 91.5
Total Sleep Time 328 min.
Sleep Efficiency 78%
Wake after Sleep Onset 65 min
Sleep Onset Latency 29 min

Total Arousals 215 39.3
PLM w Arousal 0 0
Total PLM 8 1.5

Respiratory Data

Supine Non Supine REM NREM
41 61.7 17.3 79.3 37.4

I belive 41 was my average....61 was on my back....79 was during my REM

Min SPO2 79.9%
Mean SP02 95.1%


My first visit....I was much better.....I believe he said 6/hour.....I plan to order the data software and reader to continue to monitor.....
Mary J, this is a problem: Min SPO2 79.9% I think that means your oxygen desaturation is way low. should be up in the 90s at all times, although the sleep techs, respiratory therapists and others here might have more clarification on that.

I also think this is a problem: Total Arousals 215 39.3. I read that to mean that over the course of your ~5.5 hours of sleep, you were suffocating/not getting enough air about 215 times, which works out to ~39.3 on average every hour, which means you have an AHI of almost 40, which qualifies you as having Severe Sleep Apnea (i believe anything over 30 AHI falls into that category).

Good job learning as much as you can. Given the severity of your case, and not to scare you, the quality and quantity of your life may depend on it.

Mary J said:
This is EXCELLENT infomation. Here's some data I got from my doctor yesterday. It is a reort on Sleep Architecture from my sleep study. I'd love to get your feedback on this....as I'm new and learning so much right now.
Total Recording Time 422 NREM 300 91.5 Total Sleep Time 328 min.
Sleep Efficiency 78%
Wake after Sleep Onset 65 min
Sleep Onset Latency 29 min

Total Arousals 215 39.3
PLM w Arousal 0 0
Total PLM 8 1.5

Respiratory Data

Supine Non Supine REM NREM
41 61.7 17.3 79.3 37.4

I belive 41 was my average....61 was on my back....79 was during my REM

Min SPO2 79.9%
Mean SP02 95.1%


My first visit....I was much better.....I believe he said 6/hour.....I plan to order the data software and reader to continue to monitor.....

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