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Jul 9
Pat Kniel updated their profile
Jul 7
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website:  http://zyppah.com/ I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13
Fred updated their profile
Apr 13
ZolliStar posted a discussion

New mouth device on the market

I've been hearing advertising for this product over the past few days.  It's sold as something to help snoring, but as I look at the information it seems to me that it would work just as well as my mandibular advancement device (MAD).In other words, this could help some of us with sleep apnea.Read about it here.Anybody have any thoughts about this?  See More
Mar 31
99 replied to Mary Z's discussion AHI finally under five.
"Hi Richard I mainly use an empty humidifier as it reduces noise"
Feb 16
richard graham left a comment for richard graham
"When I can afford it I'd like to get New machine with heated tube"
Feb 10
richard graham replied to Mary Z's discussion AHI finally under five.
"I would like to see this forum active again as well. I will be more aware of what's going on"
Feb 10
ZolliStar posted a discussion

If you have trouble falling asleep....

I thought that when I got my sleep apnea diagnosis, that -- at last! -- all my sleep problems had come to an end.Ha!I have trouble falling asleep. Indeed, I rarely feel sleepy at night although I do feel tired. I even cut back on computer at night, etc., etc. (and installed f.lux on my computer) but I still had trouble. Now I'm doing something different: wearing special glasses (Uvex S1933X Skyper Safety Eyewear glasses). They block out the blue -- and they're making a difference! First I tried…See More
Feb 1
99 replied to 99's discussion colloidal silver
"i have purchased some silver the make my own colloidal silver"
Dec 21, 2014
99 replied to 99's discussion colloidal silver
"just add to the distilled water it is antimicrobial eg cleans your machine and is beneficial for keeping you healthy  from bugs germs viruses you get the picture and when you need to clean the humidifier out, put water on your plants the silver…"
Dec 21, 2014
Mary Z left a comment for richard graham
"If the heated tube works with your machine I would try that.  They also make covers for your tubing which may help some.  I think the heated tube may be your answer.  Keep us posted."
Dec 21, 2014
Mary Z left a comment for richard graham
"Richard, some folks just use the humidifier in a Passover mode.  They just don't turn it on, but let the air pick up moisture without heat."
Dec 21, 2014
Mary Z replied to 99's discussion colloidal silver
"99, where have you been?  Do you add the colloidal silver to your humidifier?"
Dec 21, 2014
Mary Z replied to Andy's discussion Resmed S8 AutoSet II - No Longer Collecting Data??
"I Andy, I realize I'm months behind your post.  I have no idea why your S8 would stoop collecting data.  I'm glad to hear  you're having such improvement with your apnea.  I have made great strides since I changed…"
Dec 21, 2014

How long did it take for you to start feeling better after starting CPAP?

I've used my equipment for three nights now (plus naps). I am pretty "foggy" this morning and am wondering what experience other people have had and how long before you started feeling better?

Thanks
Jan

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Hi Jan--some people seem to settle right in and feel better pretty quickly. A LOT of us don't, and need varying
amounts of time to make headway in that department.

I've been on CPAP for more than 3 months. I can honestly say I feel better in some ways, but I DEFINITELY don't feel anywhere near where I need to be to be comfortable. My energy's better, for sure. I have my sense of humor back. I can think MUCH more clearly, but memory is slow to return. I have better stamina 'cause I've been pushing myself to make that happen, but I don't have the same motivation/energy--I really miss that, and hope it comes back or I'm gonna be cranky!! (er!)

My sleep still isn't predictable--I'm on my 4th mask. I have no idea why this up and down business continues, but I suspect it's related to the sleep debt issue. Feels sorta like a rollercoaster sometimes, and I can never predict how much sleep I can count on.........

I must admit it tries my patience at times. I'm 100% compliant and I think I should be feeling better!!! But I've heard so many people say the same thing that I have a sense of the probable time-reality involved.

One thing I know for SURE is that everyone's a little different which makes sense. None of us actually know exactly when apnea first began. 3 days in is a really short period of time to expect major, or even maybe minor changes. My opinion only!

I'd encourage you to stay on CPAP and do the best you can to stay positive. No small task but worth it in the long haul. Keeping in pretty close touch with SG helps me keep my balance. Hope it works that way for you as well.

Good luck--a lot of people who "get it" are pulling for you!!!

Susan McCord :-)
Thanks so much for your thoughtful response. I am definitely planning on continuing my 100% compliance. I am just curious about the range of experiences that people have had.

Best
Jan
i have been using cpap since february and still do not feel any better although other say i am looking better that is a positive
august is was ill and left off my cpap althought i had a loathing to it although i was trying very hard to use the cpap every week
then october came and took to it like a duck to water
i have a december appointment which i am looking forward to with my respiritary nurse
i like susan's response a lot. especially the part about not knowing just how sleep deprived you are/ how much of a sleep debt you have to work off before you can start feeling better. in my own case, it took a couple of months to notice any difference in my energy levels. that was my personal experience.
Hi Jan,

I'm no expert here, but I have just finished my third night on CPAP. I have no idea how long I've had sleep apnea. I have been feeling totally exhausted for about a year, and my sleep pattern has been pretty messed up for many years, with only a few hours sleep each night. My short-term memory is very poor, and my thinking process has definitely been impaired to where I would read something and not understand or remember the details.

While there is an advantage (I can save money on books, since I can re-read each one and have no idea that I've read it before!), I am happy to have been diagnosed and on a CPAP.

Even though it's only been a few days, I don't feel as tired throughout the day. My business partner said I look much better, and seem to be more energetic. I definitely don't "crash" at around 3pm, as I have been doing.

I've also started on Nasonex, to clear my constantly stuffy nose, and that's been better, too.

My three nights have been AI < 1, which I'm told is a good thing.

So, in all, I'm happy with the results so far, and am hopeful that I'll get my memory and thinking bak to normal.

I hope you start to see improvement, and that it continues.

Good Luck!
how are you feeling since you posted this? same?
Thanks for asking Mike. I would say about the same. I do wonder if I might not have more than one sleep issue going on. The first of course is the sleep apnea which I am working on. But, I also wake up in the middle of the night and have a hard time going back to sleep...might take anywhere from 30 min to an hour and sometimes more. Am wondering if other Sleep Apnea people have that or if I need to start looking at what else might be going on--- after I settle in with the equipment, of course.

Jan
I am a Respiratory Therapist who fits people with thier new masks and CPAP machines. I dont know from personal experience however I hear my patients say that they felt the difference after the first night. They describe it as night and day; that they woke up and felt rested like they never have before. It is possible your mask is leaking and not delivering enough pressure or your pressure needs to be incresed to fix the obstruction causing the apnea in the first place. Keep trying but if it still feels the same make an appoinment with your Doctor :)
Hmmmm-- that's what I was afraid of. Though, I have heard differently on here in terms of how long it took to feel better. Interested in other experiences from SG members.

Jan
Hi Jan,
I'm geting very little use from my machine, because I wake up in pain. with trapped wind in my stomach (I've spoken about it on another thread). So, on average, I probably get one or maybe one and a half hours sleep with the mask on. I don't feel any better. However, I didn't use it on Fri and Sat, and I could hardly move yesterday because I was so exhausted. It might not be that you feel better from using it.... it might be that if you didn't use it now (after using it) that you would feel a whole lot worse... if that makes sense? I've been on CPAP for about 2 months, I think! (I can't really remember)

Jan said:
Hmmmm-- that's what I was afraid of. Though, I have heard differently on here in terms of how long it took to feel better. Interested in other experiences from SG members.

Jan
You know what I've noticed since using cpap (3 months now), sometimes I feel really great and sometimes I feel not so great. But I NEVER feel like I did when I wasnt using the cpap. I think us cpap users will have our good days and our bad days, but I definitely notice a BIG, HUGE, GINORMOUS difference between before cpap bad days and after cpap bad days.
I love the Ginormous part, especially :-)

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