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Latest Activity

liz4cps commented on liz4cps's group Prince William Co, VA support group
"BluePoint Medical* holding their next Remedy event on June 4 with Terry Cralle, RN on "Sleep in the Mordern Family".  They will also be checking CPAP machines and providing breakfast. Click on link above for more…"
May 7
Dan Lyons posted a discussion

CPAP & Dry Mouth

In recent months, I have developed extreme dry mouth as a result of the CPAP.  I am a mouth breather when using CPAP.Recently, I saw an advertisement for the symptoms of dry mouth, but as usual, when I need the information to have a discussion with both my primary care  physician and my dentist I haven't seen the ad. Has anyone else seen the ad and can anyone remember the info in the ad?Thanks in advance,DanSee More
Mar 30
richard graham posted a status
"My deductible is double what a machine is online but I can't get the machine set up. Any ideas?"
Mar 10
BeeAsleep posted a status
"Hi all. I am just checking in and saying hi after being gone for a long time. I am doing GREAT! Just got a new machine and mask. Feel like I"
Jan 23
BeeAsleep updated their profile
Jan 23
99 replied to Fred's discussion CPAP - cure worse than the disease
"Do not turn light on as this hinder you from falling asleep or choose red light instead which do not afect your sleep"
Oct 27, 2015
99 left a comment for Joan Williams Rice
"Hi Joan visiting pelham and I have osa"
Oct 27, 2015
99 left a comment for martha crabtree
"Hi maths visiting pelham "
Oct 27, 2015
99 left a comment for Rhonda Harrison
"Hi Rhondda I am visiting pelham and have osa "
Oct 27, 2015
99 posted a discussion

Leaky gut

Do you have a leaky gutHow would you knowA telltale sign for leaky gut is Athletes footI wish to ask do you have or suffer from itThe reason I ask is maybe this is a common denominatorJust text yes or text noAnd if you are the first to text also keep a tallyExample38 yes 0 noYour input would alter the tally39 yes 0 noSo now I will input first1 yes. 0 noSee More
Sep 26, 2015
richard graham posted a status
"For the first time in a while I got a whole night sleep with my machine but woke up beat and left side of my head feels weird, not sure if"
Sep 2, 2015
Brendan Duffy posted a status
"How did you sl"
Jul 9, 2015
Pat Kniel updated their profile
Jul 7, 2015
ZolliStar replied to Fred's discussion CPAP - cure worse than the disease
"I'm wondering: what prompted you to consider whether you have sleep apnea in the first place? Also, waking throughout the night isn't uncommon especially as we (*sigh*) age.  I seem to every 90 minutes or so. This pattern probably…"
Jun 27, 2015
ZolliStar replied to ZolliStar's discussion New mouth device on the market
"You can try this website: I have a MAD (mandibular advancement device). Dr. Steven Park evaluated my mouth and throat (not everyone can use a MAD, it turns out) and pronounced me a candidate for it. The truth?  I…"
Jun 27, 2015
Mary Z replied to ZolliStar's discussion New mouth device on the market
"The link didn't work so me so I couldn't see the product.  I do have experience with a supposedly reliable boil and bite device.  I should know by now I have a small mouth and nothing regular size fits.  I don't think…"
Jun 27, 2015
richard graham replied to ZolliStar's discussion New mouth device on the market
"If I thought something could work other than this lousy cpap that would be awesome"
May 22, 2015
richard graham posted a status
"I moved and have been sick a lot and can't use cpap because of cough and I'm depressed a lot"
Apr 26, 2015
Fred posted a discussion

CPAP - cure worse than the disease

It's ironic that before I was diagnosed with sleep apnea in 2000, I had no problem sleeping 8-9 hours a night. If I did wake up during the night, I had no problem falling right back to sleep, and I wasn't tired during the day.From the first night I brought home the CPAP I haven't had one decent night's sleep. Not one. I don't have any problem falling asleep, but I can't stay asleep. At first I was waking up after 4-5 hours and couldn't get back to sleep for a couple of hours. Now it's more like…See More
Apr 13, 2015
Fred updated their profile
Apr 13, 2015

What was the last straw or deciding factor that made you decide to seek treatment? Perhaps we could use this information to encourage others with sleep apnea to stop avoiding treatment and to seek help. 

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i was continually tired and it took about thirty years for a diagnoses 

After being diagnosed with Depression(instead of Sleep Apnea)and after the continual uping of antidepressants and sleeping pills with no effect, I was at my wits ends. I alway knew I had a sleep problem since I was a baby but no one put two and two together to make four. When it got to the stage that I was getting 1-2 hours non quality sleep and going to work still drugged up, that was the last straw. Apart from all that, I felt I wasn't far away from dying probably from a heart attack. Sometimes you have to take things into your own hands. Good Discussion Janna and welcome.

There were several straws, actually.  I woke up feeling exhausted each morning, kept falling asleep sitting up during the day,felt as though I was in a fog, and couldn't think straight.  It got worse and worse over the course of a year or so, and I thought I was losing my mind... until my family physician referred me to a sleep clinic.  I will always be grateful to that doctor for recognizing symptoms of sleep apnea.  Life is 100% better now!

Wow! Sounds exactly like my case. Exact same scenario. My Docs kept telling me my sleep apnea was caused because I'm overweight. I wasn't overweight when I was snoring at the age of two. Well, now there is a growing realization that sleep apnea CAUSES weight gain. A person gets so exhausted from lack of energy from lack of quality sleep - they look to other sources ( food ) to attempt to bolster their energy levels. Good luck!

I went to many, many doctors trying to find out why I was so weary and tired.

I did have a serious candida problem. A decade ago I found an alternative doctor who recognized many of my symptoms and put me on a candida diet. I was on it for one year. Even my alternative doctor was amazed that I was so completely faithful to the regime of no sugar which meant not even eating high-sugar content vegetables. My diet was limited to fish, meat, (low-sugar content) vegetables, olive oil (no butter), and eggs. For the nutrients I was missing, I was on a regime of vitamins as well as an herbal regime to kill off the excessive candida.

I felt WONDERFUL, lost about 30 pounds (which I needed to lose) but...I still didn't sleep well. The alternative doctor had no suggestions about that problem.

I did the rounds of doctors, not one of whom suggested sleep apnea including the doctors at a sleep disorder clinic! (Sleep Disorders Institute in New York City on West 55th Street). DSI  "treated" me for insomnia, put me on a sleep restriction protocol and gave me all kinds of sleep hygiene tips and tricks. Needless to say, nothing helped. I concluded that if even the "experts" couldn't help me, there was just no answer.

The person who diagnosed me is a friend with whom I shared a hotel room when we attended an out-of-town event. She knew about sleep apnea; she knew I had it.

I went to Sleep Medicine Associates (East 26th Street in New York City) immediately after returning from the trip. The scheduled overnight revealed a severe case of sleep apnea, a condition that should have been diagnosed -- or at least suggested -- by someone decades ago. So much suffering would have been avoided.

I am very grateful to my friend Myra for her diagnosis. She may have literally saved  my life; she has certainly made it much, much better: I'm now awake enough to live it!

And I LOVE my CPAP machine!!!  Love it!!!

My husband told me I was snoring a lot and not breathing continually. He told me to go to the doc. The doc - a GP - actually said I should go to a sleep clinic. He set me to the sleep doc to have it set up. It really helps to have someone else notice.

I had also been given the usual anti-depressants and anti-anxiety drugs. I kept telling them I'm not anxious per se. I was anxious because I kept waking up in a panic and with a racing heart and high blood pressure. But it wasn't a panic attack like they said; it was from apneas. Sheesh.

I simply became unable to stay awake during the day.  I could not drive.   Would fall asleep in appointments.  Before that I was taking four or five hour naps during the afternoon where I was dead to the world.  I saw my GP who scheduled me for a sleep study and found out I had OSA.

Mine was mild at that time and I was given a choice of CPAP or wait ands see.  I jumped at the chance for CPAP because my sleepiness was ruling my life.  After four years I haven't had great improvement with CPAP so I am preparing for a trial of ASV.

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