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ZolliStar posted a discussion
Sunday
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Clueless in Redwood Shores replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"I had it on the same outpatient basis.  Much pain, no long term gain.  I did not have the annual repetition - that might or might not have made the difference. "
Apr 20
Mary Z replied to richard graham's discussion mouth breathing
"glad to hear it, Richard.  Keep us posted."
Apr 13

What was the last straw or deciding factor that made you decide to seek treatment? Perhaps we could use this information to encourage others with sleep apnea to stop avoiding treatment and to seek help. 

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i was continually tired and it took about thirty years for a diagnoses 

After being diagnosed with Depression(instead of Sleep Apnea)and after the continual uping of antidepressants and sleeping pills with no effect, I was at my wits ends. I alway knew I had a sleep problem since I was a baby but no one put two and two together to make four. When it got to the stage that I was getting 1-2 hours non quality sleep and going to work still drugged up, that was the last straw. Apart from all that, I felt I wasn't far away from dying probably from a heart attack. Sometimes you have to take things into your own hands. Good Discussion Janna and welcome.

There were several straws, actually.  I woke up feeling exhausted each morning, kept falling asleep sitting up during the day,felt as though I was in a fog, and couldn't think straight.  It got worse and worse over the course of a year or so, and I thought I was losing my mind... until my family physician referred me to a sleep clinic.  I will always be grateful to that doctor for recognizing symptoms of sleep apnea.  Life is 100% better now!

Wow! Sounds exactly like my case. Exact same scenario. My Docs kept telling me my sleep apnea was caused because I'm overweight. I wasn't overweight when I was snoring at the age of two. Well, now there is a growing realization that sleep apnea CAUSES weight gain. A person gets so exhausted from lack of energy from lack of quality sleep - they look to other sources ( food ) to attempt to bolster their energy levels. Good luck!

I went to many, many doctors trying to find out why I was so weary and tired.

I did have a serious candida problem. A decade ago I found an alternative doctor who recognized many of my symptoms and put me on a candida diet. I was on it for one year. Even my alternative doctor was amazed that I was so completely faithful to the regime of no sugar which meant not even eating high-sugar content vegetables. My diet was limited to fish, meat, (low-sugar content) vegetables, olive oil (no butter), and eggs. For the nutrients I was missing, I was on a regime of vitamins as well as an herbal regime to kill off the excessive candida.

I felt WONDERFUL, lost about 30 pounds (which I needed to lose) but...I still didn't sleep well. The alternative doctor had no suggestions about that problem.

I did the rounds of doctors, not one of whom suggested sleep apnea including the doctors at a sleep disorder clinic! (Sleep Disorders Institute in New York City on West 55th Street). DSI  "treated" me for insomnia, put me on a sleep restriction protocol and gave me all kinds of sleep hygiene tips and tricks. Needless to say, nothing helped. I concluded that if even the "experts" couldn't help me, there was just no answer.

The person who diagnosed me is a friend with whom I shared a hotel room when we attended an out-of-town event. She knew about sleep apnea; she knew I had it.

I went to Sleep Medicine Associates (East 26th Street in New York City) immediately after returning from the trip. The scheduled overnight revealed a severe case of sleep apnea, a condition that should have been diagnosed -- or at least suggested -- by someone decades ago. So much suffering would have been avoided.

I am very grateful to my friend Myra for her diagnosis. She may have literally saved  my life; she has certainly made it much, much better: I'm now awake enough to live it!

And I LOVE my CPAP machine!!!  Love it!!!

My husband told me I was snoring a lot and not breathing continually. He told me to go to the doc. The doc - a GP - actually said I should go to a sleep clinic. He set me to the sleep doc to have it set up. It really helps to have someone else notice.

I had also been given the usual anti-depressants and anti-anxiety drugs. I kept telling them I'm not anxious per se. I was anxious because I kept waking up in a panic and with a racing heart and high blood pressure. But it wasn't a panic attack like they said; it was from apneas. Sheesh.

I simply became unable to stay awake during the day.  I could not drive.   Would fall asleep in appointments.  Before that I was taking four or five hour naps during the afternoon where I was dead to the world.  I saw my GP who scheduled me for a sleep study and found out I had OSA.

Mine was mild at that time and I was given a choice of CPAP or wait ands see.  I jumped at the chance for CPAP because my sleepiness was ruling my life.  After four years I haven't had great improvement with CPAP so I am preparing for a trial of ASV.

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