"please keep me updated about oximeters "
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What features would YOU want on YOUR ideal xPAP?
DeVilbiss Marketing asked in another support forum what we users would like in our ideal xPAP. Here's my wish list w/a couple of "borrowed" wishes from other members:
I like the PR S1 swivel hose attachment atop the humidifier. I like the Resmed S8's clear view of the humidifier water tank. I like being able to lift the humidifier water tank lid to let the condensation in the tank dry out and also the S8's continuing to run low for awhile to aid in drying out that condensation. I like the clear, easy to see fill markings on the humidifier tank. I like the easy access to and the amount of data available via the S8's well-lit LCD screen. I like EncorePro's Wave Form graphs. I like EncorePro's Daily Events Per Hour table. I like the "adjustable" graphs ResScan allows.
I don't like the PR S1's humidifier being so "secure". It seems it is an over-reaction to the M Series humidifier fiasco. I don't care for the "locked away" water tank on the humidifier. I don't like the limited "lift" to the humidifier lid. I detest the lack of a backlight for the LED screen. I DETEST the "power brick" of the S9s and the Respironics and PR PAPs. I DETEST the platform that Respironics has relied on in the past w/the Legacy and M Series'. I "might" appreciate the "comfort features" of the Resmed VPAPs "if" the sleep professionals I have to deal w/had the slightest idea of how to "use" them to improve my therapy comfort. If those features are too complicated for "the professionals" how does one expect patients to benefit from them?
I would hope that manufacturers would plan ahead for the day when patients will not only be "allowed", and not only "encouraged", but will be "expected" to take an active part in their PAP therapy just as has had to happen for diabetics. Since software must be developed to collect and report the data from PAP therapy I wouldn't expect for there to be too much extra expense in providing a patient version at a REASONABLE price. When we can find FDA recording oximeters AND software available in the $100 - $150 price range it doesn't seem unreasonable to hope for oximetry options w/our PAPs at a REASONABLE price. I'd like to see the Leak rates better reported, easier for the patient to determine. Rather than each manufacturer's list of masks for their machines and Mask Selection I'd prefer an option of selection based on "allowed vent rate". Patient's would then only have to check their mask literature to determine which Mask Selection to use.
As for "aesthetics" - not very important to me, seems kind of a shallow concern for a therapy device. Frankly I always thought the color combo on the S8s was rather attractive and the black of the Respironics Legacies and M Series rather unappealing. But first and foremost I want good therapy! Stacking is okay I guess but I would be some concerned about "tip-ability". The space the S8s and the PR S1's take up on my night stand I can live w/w/o concern of their tipping over. The taller something is the more likely it is to get accidentally "brushed" and tipped or knocked over.
Machine software upgradeable via a PC USB interface! And a well-padded travel case w/room for our mask as well
Accurate times on the graphs of the data. [Not the asinine 1, 2, 3, etc that Encore Viewer and Encore Pro use to demark the hours through the night].
On-board data that updates when the machine is turned OFF. The S9 has this; the System One updates the data at noon GMT and this silly fact cannot be changed by either the user or the DME.
A system clock the user can set. An option to change the "noon-to-noon" reporting window for the data so that folks who do shift work or night work can still easily look at their data for one sleep session as a whole instead of having it artificially split between two days just because they sleep across "noon".
No way for the DME or doctor's office to lock the user out of any of the features
No "compliance data only" machines at all.
I suppose its kind of stretching it a bit - but - you know what would be nice?? If there were some way a couple of EEG "leads" could be implanted in the headgear of our masks and reported to the data collection of our PAPs - but I suppose the necessary placement of leads to collect that data would NOT make for very comfortable mask headgear. *sigh*
What features would YOU want on YOUR ideal xPAP?
I like the PR S1 swivel hose attachment atop the humidifier. I like the Resmed S8's clear view of the humidifier water tank. I like being able to lift the humidifier water tank lid to let the condensation in the tank dry out and also the S8's continuing to run low for awhile to aid in drying out that condensation. I like the clear, easy to see fill markings on the humidifier tank. I like the easy access to and the amount of data available via the S8's well-lit LCD screen. I like EncorePro's Wave Form graphs. I like EncorePro's Daily Events Per Hour table. I like the "adjustable" graphs ResScan allows.
I don't like the PR S1's humidifier being so "secure". It seems it is an over-reaction to the M Series humidifier fiasco. I don't care for the "locked away" water tank on the humidifier. I don't like the limited "lift" to the humidifier lid. I detest the lack of a backlight for the LED screen. I DETEST the "power brick" of the S9s and the Respironics and PR PAPs. I DETEST the platform that Respironics has relied on in the past w/the Legacy and M Series'. I "might" appreciate the "comfort features" of the Resmed VPAPs "if" the sleep professionals I have to deal w/had the slightest idea of how to "use" them to improve my therapy comfort. If those features are too complicated for "the professionals" how does one expect patients to benefit from them?
I would hope that manufacturers would plan ahead for the day when patients will not only be "allowed", and not only "encouraged", but will be "expected" to take an active part in their PAP therapy just as has had to happen for diabetics. Since software must be developed to collect and report the data from PAP therapy I wouldn't expect for there to be too much extra expense in providing a patient version at a REASONABLE price. When we can find FDA recording oximeters AND software available in the $100 - $150 price range it doesn't seem unreasonable to hope for oximetry options w/our PAPs at a REASONABLE price. I'd like to see the Leak rates better reported, easier for the patient to determine. Rather than each manufacturer's list of masks for their machines and Mask Selection I'd prefer an option of selection based on "allowed vent rate". Patient's would then only have to check their mask literature to determine which Mask Selection to use.
As for "aesthetics" - not very important to me, seems kind of a shallow concern for a therapy device. Frankly I always thought the color combo on the S8s was rather attractive and the black of the Respironics Legacies and M Series rather unappealing. But first and foremost I want good therapy! Stacking is okay I guess but I would be some concerned about "tip-ability". The space the S8s and the PR S1's take up on my night stand I can live w/w/o concern of their tipping over. The taller something is the more likely it is to get accidentally "brushed" and tipped or knocked over.
Machine software upgradeable via a PC USB interface! And a well-padded travel case w/room for our mask as well
Accurate times on the graphs of the data. [Not the asinine 1, 2, 3, etc that Encore Viewer and Encore Pro use to demark the hours through the night].
On-board data that updates when the machine is turned OFF. The S9 has this; the System One updates the data at noon GMT and this silly fact cannot be changed by either the user or the DME.
A system clock the user can set. An option to change the "noon-to-noon" reporting window for the data so that folks who do shift work or night work can still easily look at their data for one sleep session as a whole instead of having it artificially split between two days just because they sleep across "noon".
No way for the DME or doctor's office to lock the user out of any of the features
No "compliance data only" machines at all.
I suppose its kind of stretching it a bit - but - you know what would be nice?? If there were some way a couple of EEG "leads" could be implanted in the headgear of our masks and reported to the data collection of our PAPs - but I suppose the necessary placement of leads to collect that data would NOT make for very comfortable mask headgear. *sigh*
What features would YOU want on YOUR ideal xPAP?
Views: 48
Replies to This Discussion
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Permalink Reply by Judy on
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I'm not laughing, Rock Hinkle. Those are genuine wishes. And frankly, I am delighted and impressed that DeVilbiss Marketing is spending the time browsing the various forums, listening to our wishes, learning our problems, etc. and I greatly appreciate that DM is doing so. So take your tongue outta your cheek and quit yanking my chain or I'll trade you in on a goat and shoot the goat!!!
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I agree with jnk . Would also like better air filtration (activated charcole for smells and ) possibly germ killing light in humidifier tank .Good Sleep Chris
j n k said:
I want ALL the "clinician" data that you presently need software for (including charts) to be given clearly from a smartphone-sized full-color screen on the top of the machine. That would be cheaper for manufacturers, clinicians, and patients alike in the long run, in my opinion. After all, why should my phone be smarter than my PAP machine? An SD card could then be used to transfer a relatively tamper-proof pdf, or jpeg, shot of those graphs and reports from within the machine to the clinician by whatever means is most convenient for the patient.
I want full disclosure of all algorithmic calculations of baseline and of events (for both reporting and reaction) and the ability to customize an auto's reactions to flow limitations (flattening) and snores--at least a low/medium/high selection for each.
Most of all, I want companies to show respect for patients by not having Internet price controls that limit patient access to the machines that save lives but are much less dangerous than most over-the-counter meds.
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I also agree with Judy and jnk. In addition:
- I would like the machine to have the option of easily working off a battery. We get hurricanes and other storms where I live so in the late summer we often lose power. My machine can run off a battery and that is a comfort to me.
- I would like the capability of transmitting the data to a device like a smart phone or Ipad. (I don't have either so, I don't know how reasonable that is.)
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Permalink Reply by Mary Z on
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I'd like to see all manufacturers adhere to a standard reporting algorythym for AI, AHI, etc. (LIke EKG machines). Would like to see all machines report CA (my S8 does not). Would like to see the sleep industry as a whole conduct classes on use, cleaning, titration of machine- like classes given to diabetics. Mandatory. No compliance data only machines, and again people taught to view and use the data. I like my S8, can't think of how I'd improve the design.
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