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TRACHEOSTOMY BY A QUALIFIED SLEEP DR. JUST FOR SEVERE SA.

I have gone through the gammit with drs. I have had this beast for most of my life, but as I get older (51) everything else is catching up to me , HBP , Deppression, cholesterol, borderline diebetic, overweight. I have tried all the cpap machine with all the different masks. I could not handle it. Then I had a septoplasty. that made things worse. Then came the UPPP with rf tongue, and turbinate reduction. Now it is even worse .( AHI 99 ) All the mucous in the back of the throat, swallowing, etc. I have tried every pill / spray, nothing works. I do use Ambien to help with the insomnia . It just keeps me from staring at the walls. I was consdering an MMA , but after reding more about it I think a thrach might be the best option. I'm getting desperate. If anyone has any names of drs.who are experts in sleep disorders , that understand all aspects of treatment . please let me know. Or have had a trach. let me know the results.

Thanks,
Dave

To add to the UPPP problems. I just got back from the university of Maryland for a consult. I picked up a bug of some kind . I went to the emergency room after returing home for fear I had another epoglotis problem. Now I have bronchitis. With the UPPP it just makes it twice as bad.

Dave

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Permalink Reply by Dave Post on April 28, 2009 at 10:30pm

Well after 20yrs of dealing with this thing a hole in the throat would not bother me at all if it worked. If you are talking about the vanity issue, those days are long gone. Living is now my whole goal, and when someone tells me this could be 100% effective I have to give it strong consideration. As with any surgery something could go wrong, but if I do nothing I will guarantee you something bad will happen . It is just a matter of when , and how.

Dave

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Permalink Reply by Mike on April 29, 2009 at 3:10am

Dave, i personally love and use CPAP every day of my life, but i hear you loud and clear that you've given it your best, and that you've decided it won't work for you and that you're at the end of your rope and considering an irreversible and terribly invasive surgical procedure where they break your jaw and then reconfigure it (the MMA) that is not much more likely to help you than not to help you, let alone cure you, so . . . . (worst run-on sentence i've ever written)

... you have the option to try a 100% reversible procedure that is also a 100% cure (the tracheostomy), and you're willing to go for it. i say more power to you. yeah, a hole in your throat isn't sexy, but neither is being worm's meat 6 feet under. i think you're on the right track. i wouldn't say it if i couldn't sense your feelings of frustration after years and years of trying, and that you feel that if you leave your sleep apnea untreated, you'll be dead. sounds like very level headed, reasonable decision-making to me.

Dave Post said:

Well after 20yrs of dealing with this thing a hole in the throat would not bother me at all if it worked. If you are talking about the vanity issue, those days are long gone. Living is now my whole goal, and when someone tells me this could be 100% effective I have to give it strong consideration. As with any surgery something could go wrong, but if I do nothing I will guarantee you something bad will happen . It is just a matter of when , and how.

Dave