I
am a 25 year old male college student with idiopathic hypersomnia and
ADD, possible mild OCD. I have spent the past several years seeking
diagnosis and treatment for this condition yet the answers continue to
elude me. Though similar to narcolepsy, I do not experience cataplexy
or sleep paralysis but do experience hypnogogic halucinations.Numerous sleep studies show a mild sleep apnea without oxygen desaturation (93)
- most providers do not feel this contributes to the disabling sleep
attacks I experience while processing information. I am currently using
CPAP but don't feel it has any effect on my condition.
As mentioned, I am a college student. During class lectures I get sleepy,
lose focus and am asleep within minutes. Classmates continually attempt
to rouse me to no avail. I am an RN in the ER but my job is at risk due
to my inability to focus and process information quickly. Needless to
say, as this condition has come to define my very life I also
experience depression.
At various times and in various combinations I have tried Provigil, Nuvigil, Vyvance, Adderal ER,
Adderall IR, Ritalin, Ambien, Effexor, Lunesta, Prozac, Paxil,
Wellbutrin, Lexapro, Buspar, Celexa, Klonopin, Lorazepam and Xyrem.
This is by no means a complete list but a representation of years of
attempts to create a manageable life.
I am hoping to locate any information regarding anyone who has experienced similar symptoms. I had been seen by specialists throughout the west coast, most recently Stanford. I am beyond desperate to find some relief or at the very least some coping skills as I contemplate my future monopolized by this condition. If anyone has any information or suggestions I would be tremendously grateful to hear from you.