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I'm new to this forum, referred by a Daily Strength friend.

 

I had a sleep study done a couple of months ago and then the titrate, picked up my machine two weeks ago today.  From the onset, I woke feeling extremely horrible - not just as bad or a little worse, but significantly worse.  I woke in what felt like a stupor (like I was drunk or blood sugar severe drop); I was nauseated, and the fatigue was 10 times worse than it had been prior to trying to use the machine.  I used the machine six days - and wasn't getting anywhere with getting the technician out to Rockford (from Chicago) to bring a chin strap, although I told her I am a mouth breather and was this why I was feeling so ill?  And, she'd told me twice the machine 'probably' needed more pressure and to do it myself - but I told her there were NO instructions how to do that - so I was waiting for her to come from Chicago and I couldn't go through any more days after using that machine - in the shape I was in.  By Friday night, my bp was 189/104 - I was almost on the way to the ER, but I got it to come down with some calming techniques.  Now, I am not claustrophobic - that is not the issue here.  I WELCOMED that machine, anticipating it would help lower my bp, help alleviate the insidious fatigue - I didn't care what I looked like!  I didn't have trouble 'sleeping' - I just woke feeling so very, very ill, every single day I used it.

 

If someone could help me understand this report, I sure would appreciate it.  I'm going to send this post by itself, because earlier, when I tried to send the attachment, it never went thru.  Will send the report attachment in a different post.  Here's a brief synopsis from the first page -


I don't have a copy of the titration, but I did look at it and it went up to 11.

Axis A: OSA/Hypopnea Syndrome - Mild (327.23)
Axis B: Polysomnogram (89.17)
Axis C: Obesity

Recommendations:
1. Mild OSA/HS, associated with mild oxygen desaturations and significant sleep fragmentation.
a. PAP tritration
b. Oral appliance or ENT surgical procedures, altho likely less sucessful given the degree of sleep disordered breathing
c. weightloss

No Central or Mixed Apnea indicated; OSA 25 (4.4); Hypopnea 9 (1.6) AHI (RDI) 6.8
Baseline Sao2 96; Desaturation Index while sleeping 13 (2.6); Lowest Desaturation 57

Arousals: N1 1 Apnea; 2 Hypopnea; Spontaneous 25 (36.6)
N2 3 (.08); 1 (0.3); Spontaneous 15 (4.)
N3 (none)
N4 (none
REM (none)

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First, your DME provider should respond to your calls much better and if they don't let your physician and sleep lab know.  Then call another DME provider, one in Rockford would be best so you can go to them if they can't go to you. 

Without seeing your study, my first question is why do you need a pressure of 11 with an RDI of 7?  I would ask that you try a auto pap trial for a week or 2 to see where the machine takes you.  Auto titration is not an optimal way to find your pressure but can help.  The problem is the DME provider needs to be responsive, I mean they need to check the data, adjust the machine and then follow up until you are doing well.  Good luck.

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