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Permalink Reply by RockRpsgt on October 4, 2010 at 10:40pm

Try finding the right sleep doctor to work for. It's tough as I seem to have a unique perspective.

Mary Z said:

I know this is off topic, but it distresses me that we have to work so hard to find good physicians. We go through doc after doc after doc trying to find the ones that know their field and are willing to work with us rather than dictate to us. We turn to groups such as SleepGuide, and thank goodness for them, to learn that there are different and sometimes better ways to deal with our many disorders. I had to learn about a "soft start" for my DBS system from a discussion forum, rather than the doc or the company rep (a way of turing on a DBS system that doesn't give an uncomfortable feeling of electric shock to the brain). I had to learn about exploring other avenues of treating my sleep apneas such a pursuing an ENT consult, rather than continually increasing pressures. Maybe I'll continue to need high pressures, but if they aren't controlling my sleep apnea something else needs to be looked at.
Maybe these docs need more sleep.


Pat Kniel said:

Rock, It doesn't surprise me that you never heard that. This doctor did not impress me. I have a neuromuscular disorder that affects all of my muscles, including respiratory muscles. After a long conversation he said 'you don't have a sleep problem, you have a breathing problem.' Duh. I knew that. But I have this need to breathe when I sleep.
I was just trying to find out if anything he said made sense. I think I have found a better doc and I will be having yet another sleep study tomorrow night. I'm keeping my fingers and toes crossed.

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