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Permalink Reply by Deborah Williams on January 28, 2011 at 10:17am

I wear my mask every time i lie down as i know i'll end up dozing off...sorry for your loss

Debbie

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Permalink Reply by Bex on January 28, 2011 at 11:11am

Thanks Sheila, I will try that, because you described exactly what happens to me.  I have an appointment sceduled for Monday and maybe I will get a full face mask.

Sheila Knowles said:

Bex....I don't know if this will help you or not..but a LOT of the time I feel like...even with ALL the air blowing into my mouth and nose that there is NO air in there once the suction takes place..so I lay on my left side and place my left hand on my pillow just above where the air is venting out of it. This way I feel the air blowing on my hand..and instantly I can feel all the air inside the mask and somehow it reassures me that there IS all that air blowing in there and I can breath better and deeper. If I don't feel the air on my hand tho' I feel like I am a bit claustrophobic and that there is NO air anywhere for me to breath. I don't know if it is a psychological thing or what..but THAT is what works with me. I then start to relax..enjoy the air blowing, breath better and deeper through my nose AND my mouth.. and I am asleep before I know it. I have a full face mask.

Bex said:

I am so sorry to hear that. Last night I decided that I was done with the CPAP. I have been going to bed with the mask on and falling asleep, but then waking up multiple times and just listening to the whistling of my breath or feeling like I can't breath freely. It is not improving my quality of life because I can never have a full nights sleep. Since I am unable to keep it on, I see no reason to KEEP it at all.

 

Alternatives anyone? I do plan to lose weight, after that I would consider jaw reconstruction.

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Permalink Reply by Sherry Rachauskas on January 28, 2011 at 9:24pm

I am so sorry! I was diagnosed a little over a year ago, and I will not go to bed w/o my CPAP. I recently had a procedure in the local hospital, which I had to be knocked out for. I told my doctor and EVERYONE I talked to in the hospital, that I had to have my CPAP put on in recovery. My sleep doctor told me to never have a procedure without it. Well, they all told me no problem, but when I woke up in recovery, guess what? No CPAP. They put it in a locker with my clothes and that's where it stayed until they released me. If a hospital won't put it on you after a procedure, how do you protect yourself?  I know they had me on a heart monitor, but that wouldn't do anything to tell them if I were to have a stroke! I just don't get it, why would they not listen and try to accomodate?

 

I will never have another procedure in that hospital, but what if the next hospital is the same way? Has anyone else had this happen? What if anything should I do now?

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Permalink Reply by Mary Z on January 29, 2011 at 8:35am

I had a procedure in the hospital where I couldn't wear the CPAP because the surgery was on my head.  The apnea monitor went off all night, but they didn't pay any attention to it. I was in Neuro intensive care. LOL!  I couldn't wear it for about two weeks while my head healed up.  SInce nothing could be done about it I just crossed my fingers.

Sherry Rachauskas said:

I am so sorry! I was diagnosed a little over a year ago, and I will not go to bed w/o my CPAP. I recently had a procedure in the local hospital, which I had to be knocked out for. I told my doctor and EVERYONE I talked to in the hospital, that I had to have my CPAP put on in recovery. My sleep doctor told me to never have a procedure without it. Well, they all told me no problem, but when I woke up in recovery, guess what? No CPAP. They put it in a locker with my clothes and that's where it stayed until they released me. If a hospital won't put it on you after a procedure, how do you protect yourself?  I know they had me on a heart monitor, but that wouldn't do anything to tell them if I were to have a stroke! I just don't get it, why would they not listen and try to accomodate?

 

I will never have another procedure in that hospital, but what if the next hospital is the same way? Has anyone else had this happen? What if anything should I do now?

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Permalink Reply by Remy Thierry on March 1, 2011 at 12:45pm

Sheila, would you like to share your thoughts about your daughter's friend and severe sleep apnea on Sleep Apnea Guide website? There is a special place where people can share their stories or condolences related to sleep apnea death.

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