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Permalink Reply by Mike on April 27, 2009 at 1:54am

Hi Madeline, you've come to the right place -- so many knowledgeable good people here. CPAP is hard to adapt to, and it will get better. That's been my experience, and the experience of almost everyone else I know. It's very rare not to have some initial troubles. If you don't have a data capable machine, you need one ASAP. Without it, you are flying blind without any idea whether the treatment is working. If it's not working, then your muscle aches could be from the lack of oxygen and the related health effects of untreated sleep apnea.

so do you have a fully data capable machine that gives efficacy data on AHI, leak, etc.? If you need to cross reference your machine against a list of fully data capable machines, go to the top navigation bar and look under the FAQs. It has a list.

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Permalink Reply by Mike on April 27, 2009 at 1:58am

actually, Judy just posted this helpful list of fully data capable CPAPs

Mike said:

Hi Madeline, you've come to the right place -- so many knowledgeable good people here. CPAP is hard to adapt to, and it will get better. That's been my experience, and the experience of almost everyone else I know. It's very rare not to have some initial troubles. If you don't have a data capable machine, you need one ASAP. Without it, you are flying blind without any idea whether the treatment is working. If it's not working, then your muscle aches could be from the lack of oxygen and the related health effects of untreated sleep apnea.

so do you have a fully data capable machine that gives efficacy data on AHI, leak, etc.? If you need to cross reference your machine against a list of fully data capable machines, go to the top navigation bar and look under the FAQs. It has a list.

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Permalink Reply by Dave Post on April 27, 2009 at 8:38am

Are you saying you had an AHI 142? I have not seen anyone with one that high? Of course I am new at this kind of forums as well. My last study was AHI 99 . with no rem. Thus the Trach option.

Dave

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Permalink Reply by RockRpsgt on April 27, 2009 at 4:58pm

Hello Madeline, your body aches could very well be from the cpap. It sounds like you have a great doc who is checking everything. You might want to talk to him about making sure that you are getting the right amount of vitamins. A vitamin D/C deficiency will result in those same body aches. Probably not the problem, but it never hurts to make sure. Don't give up! With an AHI 147 you have a lot of sleep debt to pay back. You will start to feel better soon. Good Luck!

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Permalink Reply by Dan Lyons on April 27, 2009 at 7:56pm

Welcome Madeline.

It might be that these aches and pains have been masked by the symptoms presented by the sleep apnea. Your actually feeling more rested and as a result you are doing more with each passing day. The result, you body is finally waking up from the depression it had been placed in and you are re-finding those muscles and joints.

Just an idea - Try keeping a detailed daily journal of your activities. The clue you are looking for may appear.

Keep up the search and communications with your physician. When the solution is found, let evryone here kow also. Your findings and results might help someone else.

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Permalink Reply by RockRpsgt on April 28, 2009 at 5:45pm

I find it very interesting that you only actually only went through 1 sleep cycle in your entire study. A sleep cycle consits of all stages of sleep back to back. In the earlier cycles you will have more s3/4 or slow wave sleep with less REM. In the later cycles it reverses. Your sleep cycles run off of your circadiam rythm, which is your bodies clock. It takes about 90 minutes of good sleep to run a sleep cycle. Most people need 3-5, at least, good sleep cycles a night. You only slept for 137 minutes. Meaning that you had 1 complete but broken sleep cycle in a 6 hour study. It is possible depending on what type of events you had, that you slept less than 10 minutes of every actual sleep hour during and before you began CPAP treatemnt. If you have an AHI of over 200 it is possible to not sleep at all and still think that you had. You spent the majority of your sleep in stage 1. Some will argue that stage 1 is not a true sleep. You barely got any restoritve sleep! I am surprized you hit REM at all.

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Permalink Reply by Sugarshirl on April 29, 2009 at 3:20am

It will get better and I had some of those same body aches that you are having. Mine were from sleeping more still and for longer periods. Since I am overweight, my shoulder and hip were hurting because of the pressure on them. Even my ear hurt sometimes. I used to flip flop from one side to the other all night long to try to get rid of the sore spots but eventually they just went away. Sometimes I think that my body was just not used to sleeping so long in the same position. When I was tested I had 90 events per hour and my pressure has been set on 14 for the last two years. My CPAP machine is like my security blanket, I know it gets me through the night safely and I am so much happier and healthier because of it. Good luck and be well.

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