New? Free Sign Up
Then check our Welcome Center to a Community Caring about Sleep Apnea diagnosis and Sleep Apnea treatment:
CPAP machines, Sleep Apnea surgery and dental appliances.
Tags:
Well - you've been through quite a lot! Sounds like you have a realistic perspective, after all. Everyone is different in how much and how quickly they respond to xPAP therapy. Considering the comorbidities you have already experienced, there would not be a simple answer. Sounds like a wise pulmonologist to me, that put you on the APAP, rather than having you stop xPAP use because of the "did not meet criteria" status of your sleep studies. The APAP will adjust to your needs, even if they vary from night to night. Sounds like you have the opportunity to turn your health around, if you can maintain and continue to improve the lifestyle changes that have helped you lose weight, and be consistent using your APAP. Be sure to check out any complimentary ways of supporting your eye health, like antioxidants, and keeping your blood pressure in a good range. The tissues and nerves of the eyes are so tiny and delicate, I've read they are easily affected by many of the body's systems.
As a fellow patient, I see xPAP therapy as a way to prevent a myriad of other serious conditions. Which ones an individual gets, and how quickly depends on many personal factors. You've had some close calls already. I hope you'll be able to develop a strong motivation to make your APAP therapy part of who you are, long term, adjusting as needed, but not stopping, even after you see improvement. I believe I did read about something like the condition you describe, but haven't heard anyone talk about having it. More often, it is macular degeneration or cataracts that develop. You've already shown yourself you can do this. Find a way to keep it up.
My brief review of pseudo tumor cerebri - http://en.wikipedia.org/wiki/Pseudotumor_cerebri
also indicates potential effects on brain health, potentially leading to "Cheyne-Stokes respiriation" or central apnea.
Also, intracranial pressure - http://en.wikipedia.org/wiki/Intracranial_pressure
- the complexity of this makes it possibly challenging to diagnose and treat. Sounds to me like the APAP is just one of the things you need to treat this condition. If that doesn't work, you may need to use a VPAP. (servo-ventilator) which you can find out about on other SG threads. Hopefully, your pulmonologist knows about this, but maybe the APAP will do fine. Keep in touch with your doctors, and, maybe start a journal to keep track of your experiences to share with your doctors.
As I'm not a medical professional, please take my comments with that perspective.
© 2025 Created by The SleepGuide Crew.
Powered by