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depressing day~hopeless again~NEED FF MASK FOR TINY FACE!!!!!!

Went to my doctor's office for re-fitting of ANOTHER mask ( I feel fortunate she offers this free service, since my DME company is so unhelpful!) Now to try the Mirage Quattro in size XS  But the very nice RT (who also is on CPAP) said that this one is actually too large for my tiny face too.  I asked what I would do if I could not find a fit...his response  "people have given up on CPAP due to this".  I told him that was not an option.  So if this one does not work I guess I am stuck with the Quattro FX which works maybe 3-4 days out of 7.  That is not good.  I feel helpless and hopeless.

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Hey Ginny,  None of the masks for kids work?? what about the cloth mask that would fit most size and shapes,?  just a thought,

                                                                   Good Sleep,Chris

The RT said that there were no full face masks for teens/kids.  Guess I will just die, sooner rather than later.  :)

Chris H said:
Hey Ginny,  None of the masks for kids work?? Just a thought,Good Sleep,Chris
Kath hope has lots of pede stuff on her forum worth a look" hope2sleepguide" dont take that one rt opinion ..........their is an answer just keep googling.
will contact hr~thanx

Chris H said:
Kath hope has lots of pede stuff on her forum worth a look" hope2sleepguide" dont take that one rt opinion ..........their is an answer just keep googling.
Can you use a nasal mask? Respironics has refitted the old comfort classic nasal for pediatrics. It is a very good mask.
I wish I could use a nasal.  Even with my lips taped, at any pressure over 8, my cheeks puff!  That wakes one up frequently.  I am now on a pressure of 11.  The RT I spoke with today felt that any Reps that came to their office seemed to think most people could use nasal.  I don't think that is true.  I find it hard to believe that I am the only person needing a full face mask that has a small face.

If that were the case they would not need to make Full Face Mask.

Ginny Edmundson said:

I wish I could use a nasal.  Even with my lips taped, at any pressure over 8, my cheeks puff!  That wakes one up frequently.  I am now on a pressure of 11.  The RT I spoke with today felt that any Reps that came to their office seemed to think most people could use nasal.  I don't think that is true.  I find it hard to believe that I am the only person needing a full face mask that has a small face.
A very small full face...maybe we should go in to business and manufacture something?  :)

RockRpsgt said:

If that were the case they would not need to make Full Face Mask.

 

Ginny Edmundson said:

I wish I could use a nasal.  Even with my lips taped, at any pressure over 8, my cheeks puff!  That wakes one up frequently.  I am now on a pressure of 11.  The RT I spoke with today felt that any Reps that came to their office seemed to think most people could use nasal.  I don't think that is true.  I find it hard to believe that I am the only person needing a full face mask that has a small face.

I would look at something called The Ultimate Chin Strap.  http://sleepapneasolutionsinc.com/?page_id=2

It would allow you to use a nasal mask.  I know if you look at it you might say "no way", but I have heard nothing but good things about this strap.  It's supposed to be very soft and will help with the cheeks puffing out with a nasal mask.  I would contact the inventor as you might need a custom size.  I believe it comes with a guarantee.

There have got to be pediatric size masks out there, perhaps Kath in the UK can be of some help.

Good luck.

I need to contact Kath.  (just got off work)  I have tried the ultimate chin strap with an open mind and I just could not stand being mummified (that is what it felt like to me) Plus th eone I had was so big.

Mary Z said:

I would look at something called The Ultimate Chin Strap.  http://sleepapneasolutionsinc.com/?page_id=2

It would allow you to use a nasal mask.  I know if you look at it you might say "no way", but I have heard nothing but good things about this strap.  It's supposed to be very soft and will help with the cheeks puffing out with a nasal mask.  I would contact the inventor as you might need a custom size.  I believe it comes with a guarantee.

There have got to be pediatric size masks out there, perhaps Kath in the UK can be of some help.

Good luck.

Ginny, I'm new, completely new, to all of this. (Got my CPAP 6/10/11.) BUT this might help you:

I had cheek-puff problems. Ditto open-mouth breathing problems. I ordered the so-called Ultimate Chin Strap mentioned by Mary Z ( www.sleepapneasolutionsinc.com ) and it has made a difference.

Two cautions, however:

1. I'm female and slim. I was asked what size chin strap I wanted. My choices were regular size and petite. Since I'm not petite, I took regular size. Actually, I suspect that the other size, i.e., petitie, is more of a woman's size; I probably should have selected it.

2.  I developed leakage problems. I went to the RT with my machine and all related paraphernalia and asked him to check out whether I was putting everything on right. When he saw me put on the the chin strap, he knew what the problem was immediately. The part of the strap that covers my mouth goes directly under the nose. Result? My mask seal wasn't tight enough  The RT recommended that I bring the fabric down lower.  BINGO! Now that the mask isn't over the strap, it's working fine for me. No puffy cheek. No mouth breating. (I had resorted to taping my mouth shut but that didn't help the puffing.)

 

Hope this helps.

 



Ginny Edmundson said:

I wish I could use a nasal.  Even with my lips taped, at any pressure over 8, my cheeks puff!  That wakes one up frequently.  I am now on a pressure of 11.  The RT I spoke with today felt that any Reps that came to their office seemed to think most people could use nasal.  I don't think that is true.  I find it hard to believe that I am the only person needing a full face mask that has a small face.

You have learned much Zollistar finding the right set up is a daunting process but as you will see it is worth it. Ginny is their a orthotist (person whom makes prosthetic arms and such)  near you?They know how to make things fit .Perhaps a little foam added in the right place could be just the thing for you.Do not limit yourself to find answers ......Think outside the mask. Good Sleep,Chris

ZolliStar said:

Ginny, I'm new, completely new, to all of this. (Got my CPAP 6/10/11.) BUT this might help you:

I had cheek-puff problems. Ditto open-mouth breathing problems. I ordered the so-called Ultimate Chin Strap mentioned by Mary Z ( www.sleepapneasolutionsinc.com ) and it has made a difference.

Two cautions, however:

1. I'm female and slim. I was asked what size chin strap I wanted. My choices were regular size and petite. Since I'm not petite, I took regular size. Actually, I suspect that the other size, i.e., petitie, is more of a woman's size; I probably should have selected it.

2.  I developed leakage problems. I went to the RT with my machine and all related paraphernalia and asked him to check out whether I was putting everything on right. When he saw me put on the the chin strap, he knew what the problem was immediately. The part of the strap that covers my mouth goes directly under the nose. Result? My mask seal wasn't tight enough  The RT recommended that I bring the fabric down lower.  BINGO! Now that the mask isn't over the strap, it's working fine for me. No puffy cheek. No mouth breating. (I had resorted to taping my mouth shut but that didn't help the puffing.)

 

Hope this helps.

 



Ginny Edmundson said:

I wish I could use a nasal.  Even with my lips taped, at any pressure over 8, my cheeks puff!  That wakes one up frequently.  I am now on a pressure of 11.  The RT I spoke with today felt that any Reps that came to their office seemed to think most people could use nasal.  I don't think that is true.  I find it hard to believe that I am the only person needing a full face mask that has a small face.

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