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not to get off topic, but if centrals without desaturation of O2 aren't a problem, shouldn't the same be true of obstructive events without O2 desaturation?
j n k said:A nice explanation in harmony with Rock Hinkle's mention of CO2 in the bloodstream: http://www.apneos.com/csa.html
'The brain continuously monitors the body's status and continuously decides the proper rate and depth of breathing to command. In particular, the brain continuously monitors how much carbon dioxide is contained in the bloodstream.
'Breathing is normally controlled by a simple cycle of events:
'1. When the level of carbon dioxide gets too high, the brain sends a "breathe now" command to the breathing muscles.
'2. The act of breathing lowers the level of carbon dioxide in the blood.
'3. There is no stimulus to breathe until the level of carbon dioxide rises again to the "too high" level.
'4. Since the body continuously produces carbon dioxide, the "too high" level is reached again in a few seconds. The cycle starts again at step 1. '
funny that Judy said try 10. i think he was at 10 for awhile, and was doing better than he is now. . . making real progress. then we thought that if we raised the pressure more, that we would zero out the remaining apneas and do even better. maybe it was a case of pigs getting slaughtered...
... fascinating information about the central vs. obstructive, and how obstructives can actually be far more damaging than centrals. intuitively, centrals sound scarier because it makes you think something is terribly wrong here with the brain and we have no idea how to fix it... at least with obstructives, you can make sense of it all and it seems like something that can be easily dealt with by upping the positive airway pressure. your last post makes me rethink all of that.
When you say "we" do you mean that the 2 of you raised the pressure on your own?
Mike said:funny that Judy said try 10. i think he was at 10 for awhile, and was doing better than he is now. . . making real progress. then we thought that if we raised the pressure more, that we would zero out the remaining apneas and do even better. maybe it was a case of pigs getting slaughtered...
... fascinating information about the central vs. obstructive, and how obstructives can actually be far more damaging than centrals. intuitively, centrals sound scarier because it makes you think something is terribly wrong here with the brain and we have no idea how to fix it... at least with obstructives, you can make sense of it all and it seems like something that can be easily dealt with by upping the positive airway pressure. your last post makes me rethink all of that.
guilty as charged. yes, he changed it on his own. is that something you feel strongly about?
Rock Hinkle said:When you say "we" do you mean that the 2 of you raised the pressure on your own?
Mike said:funny that Judy said try 10. i think he was at 10 for awhile, and was doing better than he is now. . . making real progress. then we thought that if we raised the pressure more, that we would zero out the remaining apneas and do even better. maybe it was a case of pigs getting slaughtered...
... fascinating information about the central vs. obstructive, and how obstructives can actually be far more damaging than centrals. intuitively, centrals sound scarier because it makes you think something is terribly wrong here with the brain and we have no idea how to fix it... at least with obstructives, you can make sense of it all and it seems like something that can be easily dealt with by upping the positive airway pressure. your last post makes me rethink all of that.
I do understand the need and the want to control a persons own treatment. Some of you might even have become quite the experts on it. That does not change the fact that these studies are done in a lab setting for a reason. Alot of things can go wrong when you are messing with the gas exchange in your bodies. What if by chance your friend's centrals was underlying complex apnea brought on by a heart condition? You raise his pressure thus messing with the gas exchanges in his body causing a chain reaction. 1st his co2 levels go crazy in his lungs, causing him to hyper/hypoventilate, causing a panic attack, causing increased heart rate and unwanted stress on an already sick heart, causing him to go into cardiac arrest. In a lab setting we are trained to deal with these things as they happen. In a hospital setting they have a team seconds away to treat the pt. WE MONITOR THE HEART! I am not saying that this is what is going to happen but it could. There are reasons that so many things are monitored during the study. Some for better treatment of your sleep, and some to make sure that you don't die during the process. Yes for some people that have gone a long time without treating their apnea, death is a possibility. Generally it is not the sweet death of just going to sleep and not waking up. Untreated or improperly treated apneic pts go out with massive heart attacks, strokes, or siezures. or worse yet a slow health declining death do to a lack of o2 in the blood stream. mike I don't know what you do, and i mean you no disrespect, but are you trained to handle anyone of these situations? I am. Not only am I trained, but I(we) practice to perfection exactly what to do. As a trained sleep specialist I am evaluted on how I perform these drills, and my job is dependent on my evaluation. What would you do if you punctured a lung due to high titration? Collapsed a lung? Collapsed an airway. Could you, or any of you perform a tracheotemy if you had to on the fly? Could you live with the fact that your titration advice killed someone. The answer to your question is yes I feel strongly about this subject. I am also a little upset about this post. Mike you lead me to believe that this might be a bad titration done by a tech, in a lab setting. I went to my peers and instructors for advice for you and your friend. I spent hours researching this subject looking for answers! When in fact it is a bad titration done by you/or your friend. By all means people experiment with your machine, change your mask, your straps, your humidity! Try mouth pieces and surgery, positional therapy. Remember one thing changing your pap pressure is changing a prescription, and now matter what way you look at it, it can and eventually will lead to a dangerous side effect. Maybe I am being a little dramatic, but these are the worries that have been beatin into me as I have gone through my training. I personally have had to blow life back into a pt. I have seen people turn blue. I hope that no one here ever has too. I have to go through 2 years of training just to be able to perform a psg or CPaP study, yet this still does not entitle me to be able to determine a persons PaP pressure. This is a Dr.s' job. If you are not satisfied with what oyur Dr. tells you or how you are diagnosed. I am sure that there is another Dr. right next door, down the street that would be happy to reevaluate you.
Mike said:guilty as charged. yes, he changed it on his own. is that something you feel strongly about?
Rock Hinkle said:When you say "we" do you mean that the 2 of you raised the pressure on your own?
Mike said:funny that Judy said try 10. i think he was at 10 for awhile, and was doing better than he is now. . . making real progress. then we thought that if we raised the pressure more, that we would zero out the remaining apneas and do even better. maybe it was a case of pigs getting slaughtered...
... fascinating information about the central vs. obstructive, and how obstructives can actually be far more damaging than centrals. intuitively, centrals sound scarier because it makes you think something is terribly wrong here with the brain and we have no idea how to fix it... at least with obstructives, you can make sense of it all and it seems like something that can be easily dealt with by upping the positive airway pressure. your last post makes me rethink all of that.
i understand your point of view and respect it. i can tell you that if we had just left the treatment up to him and his doctor, we'd be nowhere now -- his doctor refused to even look at the data, and would only ask him subjectively how he felt. if he said he felt better than when not using the CPAP, even if he still felt lousy, his doctor declared victory/treatment success. He is working to find a way through this maze, yes, sometimes taking matters in his own hands, but also under the supervision of doctors. We'd of course rather all this happen under the close supervision of doctors, but the realities are such that nothing would ever get done if we solely relied on them, and not on ourselves as well.
i know this is a touchy subject, and i don't mean to diminish anything you've said or done. he has an appointment tomorrow with a very prominent sleep specialist, and armed with all the research that you and others on this forum have done, he'll be able to have an intelligent conversation with the doctor about what to do next. i hope you will not be discouraged by our actions and leave us. most of us will not adjust our own pressures, but for those who would, they should hear about the risks from folks like you... then make their own decisions. anyhow, your professional/trained viewpoint is much needed here. we just want to do what's right.
Rock Hinkle said:I do understand the need and the want to control a persons own treatment. Some of you might even have become quite the experts on it. That does not change the fact that these studies are done in a lab setting for a reason. Alot of things can go wrong when you are messing with the gas exchange in your bodies. What if by chance your friend's centrals was underlying complex apnea brought on by a heart condition? You raise his pressure thus messing with the gas exchanges in his body causing a chain reaction. 1st his co2 levels go crazy in his lungs, causing him to hyper/hypoventilate, causing a panic attack, causing increased heart rate and unwanted stress on an already sick heart, causing him to go into cardiac arrest. In a lab setting we are trained to deal with these things as they happen. In a hospital setting they have a team seconds away to treat the pt. WE MONITOR THE HEART! I am not saying that this is what is going to happen but it could. There are reasons that so many things are monitored during the study. Some for better treatment of your sleep, and some to make sure that you don't die during the process. Yes for some people that have gone a long time without treating their apnea, death is a possibility. Generally it is not the sweet death of just going to sleep and not waking up. Untreated or improperly treated apneic pts go out with massive heart attacks, strokes, or siezures. or worse yet a slow health declining death do to a lack of o2 in the blood stream. mike I don't know what you do, and i mean you no disrespect, but are you trained to handle anyone of these situations? I am. Not only am I trained, but I(we) practice to perfection exactly what to do. As a trained sleep specialist I am evaluted on how I perform these drills, and my job is dependent on my evaluation. What would you do if you punctured a lung due to high titration? Collapsed a lung? Collapsed an airway. Could you, or any of you perform a tracheotemy if you had to on the fly? Could you live with the fact that your titration advice killed someone. The answer to your question is yes I feel strongly about this subject. I am also a little upset about this post. Mike you lead me to believe that this might be a bad titration done by a tech, in a lab setting. I went to my peers and instructors for advice for you and your friend. I spent hours researching this subject looking for answers! When in fact it is a bad titration done by you/or your friend. By all means people experiment with your machine, change your mask, your straps, your humidity! Try mouth pieces and surgery, positional therapy. Remember one thing changing your pap pressure is changing a prescription, and now matter what way you look at it, it can and eventually will lead to a dangerous side effect. Maybe I am being a little dramatic, but these are the worries that have been beatin into me as I have gone through my training. I personally have had to blow life back into a pt. I have seen people turn blue. I hope that no one here ever has too. I have to go through 2 years of training just to be able to perform a psg or CPaP study, yet this still does not entitle me to be able to determine a persons PaP pressure. This is a Dr.s' job. If you are not satisfied with what oyur Dr. tells you or how you are diagnosed. I am sure that there is another Dr. right next door, down the street that would be happy to reevaluate you.
Mike said:guilty as charged. yes, he changed it on his own. is that something you feel strongly about?
Rock Hinkle said:When you say "we" do you mean that the 2 of you raised the pressure on your own?
Mike said:funny that Judy said try 10. i think he was at 10 for awhile, and was doing better than he is now. . . making real progress. then we thought that if we raised the pressure more, that we would zero out the remaining apneas and do even better. maybe it was a case of pigs getting slaughtered...
... fascinating information about the central vs. obstructive, and how obstructives can actually be far more damaging than centrals. intuitively, centrals sound scarier because it makes you think something is terribly wrong here with the brain and we have no idea how to fix it... at least with obstructives, you can make sense of it all and it seems like something that can be easily dealt with by upping the positive airway pressure. your last post makes me rethink all of that.
I am not going anywhere. I like this site. It is only one of 2 that I have not and probably won't give up on. Just next time be honest with me. I DO UNDERSTAND that this is not an easy process for everyone. At least if you do change the pressures, have someone sit with you during the process. JUST IN CASE! I have learned alot from this post as well. I am sure that this will not be the first time I disagree with someone on this site. God forbid that would be boring! I do apologise for the post. We don't know each other personally, but I have come to enjoy talking to and listening to quite a few of you. I would not want to see anyone seriously injured, or worse due to a bad titration. Besides it's just one man's opinion.
Mike said:i understand your point of view and respect it. i can tell you that if we had just left the treatment up to him and his doctor, we'd be nowhere now -- his doctor refused to even look at the data, and would only ask him subjectively how he felt. if he said he felt better than when not using the CPAP, even if he still felt lousy, his doctor declared victory/treatment success. He is working to find a way through this maze, yes, sometimes taking matters in his own hands, but also under the supervision of doctors. We'd of course rather all this happen under the close supervision of doctors, but the realities are such that nothing would ever get done if we solely relied on them, and not on ourselves as well.
i know this is a touchy subject, and i don't mean to diminish anything you've said or done. he has an appointment tomorrow with a very prominent sleep specialist, and armed with all the research that you and others on this forum have done, he'll be able to have an intelligent conversation with the doctor about what to do next. i hope you will not be discouraged by our actions and leave us. most of us will not adjust our own pressures, but for those who would, they should hear about the risks from folks like you... then make their own decisions. anyhow, your professional/trained viewpoint is much needed here. we just want to do what's right.
Rock Hinkle said:I do understand the need and the want to control a persons own treatment. Some of you might even have become quite the experts on it. That does not change the fact that these studies are done in a lab setting for a reason. Alot of things can go wrong when you are messing with the gas exchange in your bodies. What if by chance your friend's centrals was underlying complex apnea brought on by a heart condition? You raise his pressure thus messing with the gas exchanges in his body causing a chain reaction. 1st his co2 levels go crazy in his lungs, causing him to hyper/hypoventilate, causing a panic attack, causing increased heart rate and unwanted stress on an already sick heart, causing him to go into cardiac arrest. In a lab setting we are trained to deal with these things as they happen. In a hospital setting they have a team seconds away to treat the pt. WE MONITOR THE HEART! I am not saying that this is what is going to happen but it could. There are reasons that so many things are monitored during the study. Some for better treatment of your sleep, and some to make sure that you don't die during the process. Yes for some people that have gone a long time without treating their apnea, death is a possibility. Generally it is not the sweet death of just going to sleep and not waking up. Untreated or improperly treated apneic pts go out with massive heart attacks, strokes, or siezures. or worse yet a slow health declining death do to a lack of o2 in the blood stream. mike I don't know what you do, and i mean you no disrespect, but are you trained to handle anyone of these situations? I am. Not only am I trained, but I(we) practice to perfection exactly what to do. As a trained sleep specialist I am evaluted on how I perform these drills, and my job is dependent on my evaluation. What would you do if you punctured a lung due to high titration? Collapsed a lung? Collapsed an airway. Could you, or any of you perform a tracheotemy if you had to on the fly? Could you live with the fact that your titration advice killed someone. The answer to your question is yes I feel strongly about this subject. I am also a little upset about this post. Mike you lead me to believe that this might be a bad titration done by a tech, in a lab setting. I went to my peers and instructors for advice for you and your friend. I spent hours researching this subject looking for answers! When in fact it is a bad titration done by you/or your friend. By all means people experiment with your machine, change your mask, your straps, your humidity! Try mouth pieces and surgery, positional therapy. Remember one thing changing your pap pressure is changing a prescription, and now matter what way you look at it, it can and eventually will lead to a dangerous side effect. Maybe I am being a little dramatic, but these are the worries that have been beatin into me as I have gone through my training. I personally have had to blow life back into a pt. I have seen people turn blue. I hope that no one here ever has too. I have to go through 2 years of training just to be able to perform a psg or CPaP study, yet this still does not entitle me to be able to determine a persons PaP pressure. This is a Dr.s' job. If you are not satisfied with what oyur Dr. tells you or how you are diagnosed. I am sure that there is another Dr. right next door, down the street that would be happy to reevaluate you.
Mike said:guilty as charged. yes, he changed it on his own. is that something you feel strongly about?
Rock Hinkle said:When you say "we" do you mean that the 2 of you raised the pressure on your own?
Mike said:funny that Judy said try 10. i think he was at 10 for awhile, and was doing better than he is now. . . making real progress. then we thought that if we raised the pressure more, that we would zero out the remaining apneas and do even better. maybe it was a case of pigs getting slaughtered...
... fascinating information about the central vs. obstructive, and how obstructives can actually be far more damaging than centrals. intuitively, centrals sound scarier because it makes you think something is terribly wrong here with the brain and we have no idea how to fix it... at least with obstructives, you can make sense of it all and it seems like something that can be easily dealt with by upping the positive airway pressure. your last post makes me rethink all of that.
Personally, I advocate getting diagnostic sleep studies done. It is my opinion that it is good to screen patients for other conditions when the patient can afford to get that done. I also advocate getting a professional initial titration. PLMs and centrals can be unmasked during that process, and they may turn out to be serious enough to address in some cases. But once a patient is diagnosed plain vanilla OSA and a sleep doc thinks that patient can be trusted with an autotitrating machine, that is a green light to self-titrate, in my opinion. After all, I ain't no genius, but I'm smarter than the average auto algorithm that docs are trusting patients with in machines set wide open at 4 to 20 cms. Now THAT is dumb. On the other hand, self-titrating plain vanilla OSA is the best way for any patient to optimize treatment for the best health possible.
Only one man's opinion.
It may be worth noting, though, that many sleep docs advocate allowing the patient to adjust pressures. It's the way the industry is headed, I believe.
Here's an interesting article on simplified protocols too:
http://www.sleepreviewmag.com/sleep_report/2009-03-18_03.asp
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