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A friend just sent me this link. (See below.) Anyone know anything about Apnicure? And could it be the answer for people who can't stand masks?
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I think it looks very intriguing. They have only two pieces of research on the website, which unless I'm mistaken, were conducted by the parent company. The machine only records hours of usage.
I'm not very good with graphs so I'll leave reading those to you. Most of their research was done by men. I did not see any results with an AHI below 5. "Responders were easily identified, and achieved median AHI reduction from 28.0 to 5.3."
As they say it's a "novel" approach, not yet available and I'm sure would serve a portion of the population very well. Depending on cost it may be valuable as a second machine.
It certainly seems to be viable option for those who can't stand masks.
Thanks for the link Zollistar. I look forward to some discussion about this. Please look at the abstracts and tell us what you think. They're kind of hidden- under Physicians, Clinical evidence.
More information from the FAQ-"
> When will Winx™ be available in my area?
The Winx product will be available in limited geographic areas of the United States in late 2012. Please complete the contact form and we can let you know as soon as the product is available in your specific area so you can contact your physician.
Winx will not be available outside the United States until late 2013.
> Do I need a prescription? How can I get a prescription?
Yes, the Winx product is available by physician prescription only. You will need to check with your sleep specialist or physician to see if the Winx product is appropriate for your specific requirements.
> Is Winx covered by insurance and Medicare? What is the expected price?
ApniCure is working with insurance companies to establish coverage for the product. The cost of the Winx Sleep Therapy System will be comparable to alternative therapy systems.
> Can I enroll in a study?
If you are interested in participating in a study, please let us know by filling out the contact form and we will contact you if a clinical study is available for enrollment in your area."
About cost- I guess it could run fro hundreds to thousands. I cannot imagine paying more than $300 looking at the unit- it's very simple.
I suspect that we would/could use a chin strap.
btw, I wrote to ApniCure to let them know that if they're looking for study subjects, my hand is raised!
Mike C (STILL at the Beach!) said:
Curious on how a mouth breather could use this?
But I thought you told us all a while ago that you finally found some relief with a totally different approach.
Did I misunderstand????
Mike C (STILL at the Beach!) said:
I assumed the same & just put in MY own request to be a guinea pig ass well. With the thousands I lost on PAP, the hospital bills, my hearing loss, $6K hearing aids I now have to wear, with NO treatment to treat my OSA....well, I could USE a "lifeline" about now!
A cure would be wonderful. Some relief is at least...well, some relief. Do you feel a little better during the day compared to how you felt before?
Mike C (STILL at the Beach!) said:
Found some relief but nowhere near any cure.
This is Not Good. I'm so sorry to hear this.
Wouldn't it be wonderful if you could be an Apnicure study subject? You could find out gratis whether this would work for you. In that connection I'll mention that I doubt if mouth breathers will have a problem using Apnicure: we'll just trot out our handy-dandy chin straps.
As you know, I'd like to buy a data capable machine, but am putting it off ($$$$). I wonder about buying an oximeter, however. Less money and the data might make a difference for me. You seem to be very happy with your oximeter. What kind do you use?
~ ZolliStar
PS: FUN video!
Mike C (STILL at the Beach!) said:
Depends on how my AHI numbers went. And no longer in possession of my APAP machine with software to record that I only have my trusty recording pulse oximeter that shows I am having "events" of sinus tach (or not) to help me just any effectiveness. On bad nights I still show a heart rate spike with my heart jumping from 58-62 beats per minute, jumping all the way to 184 beats per minute when I am sleeping.
I use this pulse oximeter to help me judge which home remedy helps if any. I am reluctant to try an oral appliance due to all the expense and as I understand it, they need to be replaced often as well. Then there is the fact I am a mouth breather again....to this date I have yet to find a HUMANE treatment for OSA! The WINX seems to show some promise to me yet I suppose the cost will keep me out of contention after the thousands I lost on PAP?
Thanks for this, Mike. I appreciate the advice: buy this; don't spend three figures.
Mike C (STILL at the Beach!) said:
This is the one I use. However, I was a MORON who paid an insane $120.00 from an online CPAP Company. Don'y make that mistake! It has also lasted almost 2 years with NO issues where my expensive made in America Nonin turned to crap in about 11 months....
http://www.ebay.com/itm/160644454327?var=460030130444&ssPageNam...
I emailed and got a response that nearest place was in SC. I live in NC.
Mike C (STILL at the Beach!) said:
For the record, I contacted Apnicure withe questions 4 times now. Not A SINGLE response from them.......
I just realized I made an error in my reply yesterday. It was the "Winx" system that replied to my emails.... Not Apnicure.
I understand Apnicure makes the Winx....
Mary
Yes, after I posted it, I realized my error. Had not had time to correct!! Wonder how it is working for persons?
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