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Permalink Reply by Ginny Edmundson on April 4, 2012 at 4:02pm

It seems that most of what we finally "arrive" at as being the best for us for CPAP therapy is determined by how hard we pursue all avenues and keep asking questions  (whether on this board or elsewhere.  "The Squeaky wheel.......  :)

Mary Z said:

Sleep docs never seem to know about mask fitting.  I was lucky with my last DME to have an RT who helped me a lot with mask fitting, but I found my present, favorite mask on my own and even that took some experimenting to make it work .You can call the sleep lab, or your DME and see if any techs there can help you with mask fitting.  There is also the CPAP mask library keeping in mind the questions raised by Mollete about sterilization.  CPAP.com has a section where you check different requirements you have for a mask and that may help.  Their advisors may be able to help.  The same with other online retailers.  You may also be able to come up with some mask fitting guides from them or the manufacturer.

 

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Permalink Reply by Terry Vella on April 4, 2012 at 7:18pm

Ginny, eventually you will be able to give them more advice than they give you. Even the little things they don't tell you like mask liners, hose lifts etc. I told mine about sleepguide and other sites and they weren't aware of them or didn't really want to know. Foolowing on from Mary, you do have to do a lot of this yourself and take control of things yourself to get the right treatment.

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Permalink Reply by Kay Day on April 4, 2012 at 10:42pm

I have a palate abnormality, and no matter how much weight I lose, I'll always have sleep apnea, as do my normal weight brother, sister, and several cousins who all have the same genetic palate abnormality.

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