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   What would you do in the case where an undiagnosed apnea patient was to afraid of being trapped to wear a mask long enough to be diagnosed?  Mind you this person only has an IQ of 69 and will never progress past an age of 14.  He also suffers from attacks of fear so great it disturbs his sleep and wakes or keeps him up at night.

 

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That's just about it.  Except for his girl friend.  I don't know her mental inteligence so won't comment, except if she is willing to live with him, she can't be to smart.

Judy said:
He lives on his own w/no supervison, no custodial care?

Reply by jim allAn 6 hours ago.  He doesn't live with his parents because he is almost impossible to control.  He is right and can not be convinced otherwise.

What you have written sounds like you are convinced the friend has sleep apnea and should use CPAP. What do you think life would look like for your friend if he is diagnosed and prescribed CPAP? Would he use CPAP? Would he be able to adjust a mask to get an acceptable leak rate? Would he be able to manage the hose in bed? Would he be able to maintain the equipment even in a rudimentary way?

 

If the answers to those questions paint a very poor picture, what are you trying to accomplish?

 

The same thing your trying to accomplish with your friends. If we walked away from every seemingly hopeless situation the world would be a very dark place.

Banyon said:

Reply by jim allAn 6 hours ago.  He doesn't live with his parents because he is almost impossible to control.  He is right and can not be convinced otherwise.

What you have written sounds like you are convinced the friend has sleep apnea and should use CPAP. What do you think life would look like for your friend if he is diagnosed and prescribed CPAP? Would he use CPAP? Would he be able to adjust a mask to get an acceptable leak rate? Would he be able to manage the hose in bed? Would he be able to maintain the equipment even in a rudimentary way?

 

If the answers to those questions paint a very poor picture, what are you trying to accomplish?

 

Jim we have used this tecnique with men and women as mature as 50. The dynamics of the game time my change just a bit but it still game time and having the patient become accustomed to the tools and technologist.

jim allAn said:
So sorry.  Your mention of parents made me realize I made a mistake somewhere or have been badly misinformed.  My friends parents are alive OK and not that old.  So judging by their age My friend can't be more than 30, but that is still a problem.  He doesn't live with his parents because he is almost impossible to control.  He is right and can not be convinced otherwise. 
  
Judy said:
So, no parents then. That leaves the caregivers to perform the role. This 40 y.o is still only 14 mentally and requires the assistance a 14 y.o. w/that "mind set" or "hang up" regarding sleep study "wiring" and CPAP and mask.
I have worked with several people in that situation.  We worked with the doctor to do tours of the facility and had the parent sleep in the room on a cot.  It is always important that the first time a young person like that has a study that they come in and understand the equipment I even taped some of tke electodes on.  I also used a very noninvasive pillows type mask to allow them to get used to the therapy without the trapped feeling

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