"please keep me updated about oximeters "
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"Smashed Face Syndrome" - I object to this title. Do you?
Just been reading this report, and am not happy with the label "Smashed Face Syndrome." Yes, I've noticed some minor facial changes myself, but the benefits of CPAP far outweigh this. Besides, when we're more refreshed from proper sleeep, this positive effect shows in our faces too! Interestingly, there are several links in the article to the Ihatecpap site, which I refuse to link to here to give them more hits LOL. Well, I have to admit that in the first few weeks I did hate CPAP, but it's grown to be my best friend :)
Here's the report
Views: 895
Replies to This Discussion
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Permalink Reply by Tim on
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Ihatecpap is a very "special" site, and its entire purpose is to drive people away from CPAP and to an oral device -- that they sell.
I have been on CPAP for about 16 years, and I don't have any indication of a "Smashed Face Syndrome". Also, the new masks are worn with less facial pressure than the old masks were, which reduces the pressure on the face.
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Permalink Reply by RockRpsgt on
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I believe that this is one more reason to encourage "hand holding" in the sleep industry. More often than not during CPAP clinics the biggest problem is either the mask is wrong for that person, or they are fitting it way to tight. Both would cause the facial problems mentioned in the article.
j n k said:All the newer masks that basically float on top of a cushion of air should prevent this.
All this proves (to me) is that patients using older masks need newer ones and need to be trained to stop overtightening their masks.
I think that sometimes researchers have a few too many and get a little smash-faced themselves. :-)
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Permalink Reply by Rooster on
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My OSA cannot be controlled by CPAP while backsleeping, so I sleep primarily on my tummy and occasionally on my sides. My headgear is adjusted so that my full face mask applies light pressure on my face. I often awaken mornings having moved during the night and the mask is being pressed between my face and pillow.
Recently I had to be at a client's office at 8:00 a.m. and get a photo ID for building security. Well of course when I woke that morning the pillow was squashing the mask into my face. Believe me, that photo ID could make me the poster child for "Smashed Face Syndrome".
I think some day when I have a late afternoon appointment with that client, I am going to "lose" my ID and see if they will shoot another one.
I don't think we should be covering up or glossing over the many problems with this primitive therapy which we depend on.
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jnk, The 25% longterm compliance rate of this therapy is direct contradiction of the attitude expressed in your post.
However, I don't fault you for being enthusiastic about CPAP. I am also enthusiastic because it is keeping me alive and because I don't want to discourage anyone who is starting or needs to start CPAP therapy.
I am a little surprised to see you post "the many serious problems you seem to be having"? To help me, maybe first you can tell me what your perceive as many serious problems. ?
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jnk, The 25% longterm compliance rate of this therapy is direct contradiction of the attitude expressed in your post.
After the first year who is actually monitoring the treatment to come up with these numbers? Most people according to you Rooster can't get effective treatment during the first six months! let's say I am a sleep doc. I decide to do a study on long term compliance. PSG, Titration, and PAP set up are done on 100 people. I monitor them at 1 year, 5 years, and 10 years. After 10 years only 25 are left on PAP. What can I conclude from this study. what is the common denominator? Easy Me the sleep doc. They always leave this one out of the equation. I let 75 people not get the treatment they needed so I could write a research paper. These compliance studies are a joke. Let's do a study on how to get more people to live on PAP. I wonder how many of that 100 would still be on PAP if I had called them once a week for ten years to check on there therapy. Maybe even sent someone out once a month.
Someone recently told me that 85% of statistics are made up. The also told me that there were 3 kinds of lies: Lies, Dam lies, and statistics.
You should not let the statistics, and others inability to cope with treatment effect your therapy. These numbers are based on old technology, poor quality of treatment, and little sleep education. With the development of new masks, machines, and options sleep is improving. Just in the last 5 years sleep has come a long way.
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Rooster represents to me one of the helpful, yet straight-talking, board members whose posts were most helpful to me.
I agree! My offer to help is not an inside joke though. I would love the opportunity to run a titration on him.
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You two little obsequious sycophants are wasting your fawning flummery.
CPAP is primitive: adjective - Characterized by simplicity and crudity.
Good-bye.
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CPAP is primitive: adjective - Characterized by simplicity and crudity.
How can you call sticking a blower motor on a computer primitive? You act as if I am trying to beat the apnea out of people with a homemade hammer.
Why not go with the trach Rooster? There is and never will be a cure for muscle atonia that does not effect your sleep.. It is a part of our evolutionary process. Which has stopped according to scientist. Without muscle atonia we would all have narcolepsy, Somnambulism, or REM behavior disorder just to name a few. I have seen some mild cases of Narcolepsy, but I still think you are better off with PAP.
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