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There is a sleep clinic in a nearby city which is prescribing supplemental oxygen (no CPAP) for UARS treatment. I know of three female patients, in their fifties with no complicating health issues, who are reporting better sleep and much more energy.

 

Is supplemental oxygen an accepted therapy for UARS?

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j n k said:
Dr. Rapaport discussed it a little in the Manhattan A.W.A.K.E. meeting a few months back...
I think that TNI may be a fabulous alternative for UARS patients with inability to tolerate CPAP. Dr. Rapaport notes that TNI probably works in the same way as CPAP, but while one may automatically assume that it inflates the area of obstruction, I believe the real benefit could be realized by the pressure gradient that is created-- the area above the obstruction has positive pressure relative to the airways. Consequently, a "pressure support" phenomenon may occur that will prevent the increased negative inspiratory pressure that goes to create RERAs. If this is truly what is being looked at in the study, then one would want to watch for the activity in RIP belts and Pes catheters, and if there is reduction in the arousals of RERA.

This could be especially helpful where the obstruction is fixed (although the PS phenomenon occurs in CPAP, BiPAP, etc.as well, you don't have the leak obsession to contend with).

Boy, takes a while to get used to html lingo again. I mean, look at that ">" up there. I can't for the life of me figure out how or why it's stuck there.

NM, found it.

mollete
I can see trying TNI if you absolutely "refuse to wear a mask".
Well, now what we know what population (predominantly Rem Events or Hypopneas) is targeted we can let Germany, Switzerland, and Austria work out the kinks. I don't know if the Eurpean market would accept an American Doctors prescription and cash, but I'm sure there's a way to work around that. Hopefully they have the clout to get approval in America.
For those of us who check the efficacy of our CPAP therapy with the manufacturers' software, how would you check on the TNI therapy?
I am working in Colorado right now. Due to the altitude o2 is used alot more here.
Rock, Being used in general or for CPAP patients or both?

Are the generators as noisy as reported in this thread or are there new models which are reasonably quiet?

Do the generators create heat in the bedroom as reported here?
Judy said:
My 02 concentrator (5L) is an Invacare Platinum XL and it is NOT a constant, steady noise. It huffs and puffs like an iron lung. Prior to the Invacre I had a DeVilbiss and it also huffed and puffed like an iron lung. DEFIINITELY NOT a white noise type of steady noise!!!! Probably like some of those real old CPAPs from the early days that huffed and puffed w/inhalation/exhalation.

Invacare PlatXL noise level looks to be ~50 db. Newer concentrators are~38-45 db:

http://www.oxygenconcentrators.org/

Still a far cry from what cpap.com defines as a "quiet" machine at 28 db:

http://www.cpap.com/cpap-compare-chart/CPAP

Of course, "quiet" is relative to the ears of the beholder...

mollete
Thanks, Mollette. I know nothing about 02 concentrators really. My DME provider brings one out and I use it. That's the extent of my knowledge about them.

The two concentrators I've used throw a lot of heat, Banyon. That's the best that I can tell you.
welcome mollete 99 has missed you and your informative ways again welcome
Banyon,

Well that makes sense to me -- I assume getting plenty of oxygen overnight would really help, especially if your overnight oxygen levels were low. But your post indicates these three women had "no complicating health issues," -- you mean other than needing CPAP.

I remember two days after my bypass surgery when my oxgen was so low the alarms were going off all night, until I went into A-fib or whatever it is, and my heart went to 250 bpm. This is odd because HIGHEST I could ever get my heart to go in my life, back in my traithelon days, was 125. And normally my heart rate was in the low 60's.

So Im a big believer in O2 overnight if it stops the dayum alarm buzzers. Or stops CAD. Or postpones my autopsy until Im good and ready.

Of course all this stuff is very complicated. Everytime I think I know something, I find out that was an illusion, too.

Does the oxygen adjust itself, somehow? I mean the machine pumping it. Can it pump more oxygen than your body needs, and cause some problems? Is there a way to just give you the Oxygen you lack, when you need it?
The oxygen concentrators I am aware of come in two sizes, 3L and 5L. The amount of 02 generated is set and can be adjusted. The maximum output of the 3L is 3Ls and the maximum output of the 5L is 5Ls. My setting is for 2 Ls as that is what has been determined that I need. They are continuous flow concentrators.

There are portable concentrators that can be set to continuous flow or pulse, they are the type that Molette linked us to. They would NOT be acceptable or compatible w/CPAP.

For instance, when I was in Pulmonary Rehab I was to use as much 02 as needed (up to 5L) to maintain my Sp02 at 95% and my target heartrate was 122 bpm. This was with a portable concentrator and I (the patient) had to adjust the 02 output as needed.

If I had had my 5L (not portable) concentrator at PR I could have adjusted the output as needed up to 5L. I think that 5L is the maximum output on any 02 delivery device.
Banyon, could you PM me the sleep clinic where this is taking place?

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