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I had a sleep study on Wednesday, the 8th.   It was a trial of ASV for me.  I haven't been able to achieve an AHI even close to normal range and I have lingering, drug resistant depression, plus I'm on a laundry list of meds, some quite sedating so my doc ordered a trial of ASV.  We started out with straight CPAP and at some point switched over to ASV.  It was one of those nights I just did not, or at least felt like I didn't sleep.   Part of that was once the ASV kicked in the pressure was all over the place and I was having lots of trouble with mask leaks at the higher pressures.  I understand now how people wonder "did I sleep enough for the study?".

I have had the same tech for 4 sleep studies so I know him very well so I asked him the night before that if (in hindsight this makes no sense because of the nature of ASV)  he thought I would be better off at another pressure than my CPAP 9.4  would he think about telling me.  He said that if he did my doc could never know.  But the next morning he said the ASV was all over the place so there was no one pressure he could recommend.

Even though I didn't sleep well that night I had the greatest sense of well being the next day that I have ever had on the machine.  For the first time since starting CPAP  I actually felt like a normal, non depressed person.  Life was good.  This was on one night's sleep, not even good sleep, with proper breathing.

I'll see the doc as soon as I can get an appointment to go over the results, but I sure hope I can at least do a longer trial of the ASV.  It was very difficult to get used to- I never did in one night.  I've been having insomnia and the changing pressure was distracting because of the mask leaks it caused.  But, I felt so good the next day!

I'll post the results of the test when I see the doc.

 

 

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After a year on the ASV I am feeling great.  No more mandatory four to five hour dead to the world afternoon naps. No more Provigil.  My med resistant depression has disappeared, partly due to a med change, but I'm sure also due to the machine.  After five years using the machine is automatic.  I was toying with the idea of the MMA  procedure, but after looking at some videos on YouTube  I decided no.  I'm 60 with osteopenia and I'm old for elective surgery.

The moral of the study is to never give up or settle for feeing just "OK".  I was lucky to have a doctor who worked with me to find the best therapy and  not insist I give up some of my meds to achieve a low AHI (The doctor and I have always thought that my 18.6 AHI was due to the many meds I take).  My AHI is now 4-8. and I'll say it again- I feel great (or I'm manic maybe both!).

So pleased to read this Mary :)  There's a similar story on our SleepGuide sister UK site of another man who struggled on, not knowing ASV was for him http://hope2sleepguide.co.uk/forum/topics/no-need-to-suffer-are-you...

Mary Z said:

After a year on the ASV I am feeling great.  No more mandatory four to five hour dead to the world afternoon naps. No more Provigil.  My med resistant depression has disappeared, partly due to a med change, but I'm sure also due to the machine.  After five years using the machine is automatic.  I was toying with the idea of the MMA  procedure, but after looking at some videos on YouTube  I decided no.  I'm 60 with osteopenia and I'm old for elective surgery.

The moral of the study is to never give up or settle for feeing just "OK".  I was lucky to have a doctor who worked with me to find the best therapy and  not insist I give up some of my meds to achieve a low AHI (The doctor and I have always thought that my 18.6 AHI was due to the many meds I take).  My AHI is now 4-8. and I'll say it again- I feel great (or I'm manic maybe both!).

 

Dear Mary,

It is sooooooo good to hear that you have achieved SUCH success.  I can hardly believe how much you've improved after the years of miraculously manipulating a variety of masks and xpap machines - and persisting, persiting, persisting . . .

I love the idea of no mandatory 4 - 5 hour naps and no Provigil AND ! - the disappearance of treatment resistant depression - WOW & WOW & WOWWWWWWW ! ! !  And I'm glad for you that you have a good doctor who worked with you while you struggled valiantly.

I am so very pleased to read your joyful post.  And I would like to thank you for sharing so as to give others support. 

My very best wishes,

Renee

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Mary Z said:

After a year on the ASV I am feeling great.  No more mandatory four to five hour dead to the world afternoon naps. No more Provigil.  My med resistant depression has disappeared, partly due to a med change, but I'm sure also due to the machine.  After five years using the machine is automatic.  I was toying with the idea of the MMA  procedure, but after looking at some videos on YouTube  I decided no.  I'm 60 with osteopenia and I'm old for elective surgery.

The moral of the study is to never give up or settle for feeing just "OK".  I was lucky to have a doctor who worked with me to find the best therapy and  not insist I give up some of my meds to achieve a low AHI (The doctor and I have always thought that my 18.6 AHI was due to the many meds I take).  My AHI is now 4-8. and I'll say it again- I feel great (or I'm manic maybe both!).

aw, shucks, Renee! Thanks for the very kind words.

Mary

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