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Guy Brown
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Guy Brown's Discussions

Central Apnea

All of my Doc's are certified with sleeping disoders. One of them has fully recovered from his sleeping disorder. Money is not an issue, my father is very wealthy and wise. One item that I didn't men…

Replied Feb 10

Central Apnea

I no longer drive, thinking about getting a horse!

Replied Feb 9

Central Apnea

Thank you everyone for the advice. I have had several sleep studies done while using severval types of machines. Nothing works because when I stop breathing for minutes at a time, I wake up swinging,…

Replied Feb 9

Central Apnea
14 Replies

I am 47 years old and have severe central sleep apnea. I have tried both the CPAP and Bi-PAP machines. The problem that I have been having is the I still stop breathing with the machine on and even h…

Started this discussion. Last reply by j n k Feb 10.

 

Guy Brown's Page

Latest Activity

If money were no object for me, and I was desaturating from centrals likely caused by damage to the nervous system or brain, I would probably (1) ask my sleep doc to write an Rx for an AVAPS, (2) order it out-of-pocket express-shipped with the softw…
February 10
All of my Doc's are certified with sleeping disoders. One of them has fully recovered from his sleeping disorder. Money is not an issue, my father is very wealthy and wise. One item that I didn't mention about the accident is that I was dead for 15…
February 10
If insurance is a problem you might want to look into medicaid. My brother got it in a short time because of unemployment. If you have medical problems you should be able to get it fast if you qualifiy. The only problem with medicaid is you have to…
February 9
Can you be more specific on you hallucinations? When and how often are they happening? What types of visuals are you having? This could have some bearing on your case.
February 9
One more consideration - did you have on your team of doctors one who is either a Pulmonologist or a Neurologist, either one being certified in Sleep Medicine? Those are the types of M.D.s that would know about the servo ventilator xPAPs. Some of th…
February 9
I have no experience with central sleep apnea, but do know it is not something to be taken lightly. I am surprised that your doctor hasn't prescribed one of the more sophisticated machines. It would appear from what you have told us you are a candi…
February 9
Good to hear. I had to restrict myself for a while, myself. A tracheotomy may not likely be effective for true central apnea, but depending on other factors, I wouldn't reject the idea if an experienced surgeon suggested trying it to address any ob…
February 9
I no longer drive, thinking about getting a horse!
February 9
Trache ain't such a bad operation these days. Get it done, find a way to make something else work eventually once the rest of you heals, then get the trache operation undone, since it is totally reversible. The angels should be just fine without y…
February 9
Thank you everyone for the advice. I have had several sleep studies done while using severval types of machines. Nothing works because when I stop breathing for minutes at a time, I wake up swinging, like I am drowning in my sleep, and I rip off the…
February 9
Here is the kind of machine the professionals are talking about: http://www.resmed.com/us/products/vpap_adapt_sv/vpap-adapt-sv.html?nc=clinicians At the very least, you should likely be on a machine with a timed backup rate that will initiate a br…
February 9
I agree. If CPAP and BPAP have both failed then some sort of servo ventilator is the next step.
February 9
Steve is right. You need to talk to your doctors about trying a machine with some type of auto servo controller. It will likely require another full night polysomnogram with titration. I have seen these machines work wonders on pt's in the past. Ch…
February 9
Hi, have you ever had a full polysomnography to see if you have central sleep apnea? If you have central apnea the cpap or bipap wont do the job. you may need a macine that actually gives you breaths when you stop breathing . The machines are call s…
February 9
Guy Brown added a discussion
I am 47 years old and have severe central sleep apnea. I have tried both the CPAP and Bi-PAP machines. The problem that I have been having is the I still stop breathing with the machine on and even have vomited into the mask. Several Doctors tell me…
February 8
January 21

Profile Information

My Interest in Sleep Apnea
I have Sleep Apnea
Treatment Being Used, if any
No treatment
If Machine Being Used, What Type? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Machines don't work!

Comment Wall (2 comments)

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At 9:57pm on January 21, 2010, sleepycarol said…
Welcome to the forum!!

We are glad you joined. Here you will find information about sleep apnea, treatment options, and other sleep related disorders.

If you are fairly new to the world of sleep apnea, please check out the FAQ tab and under the Groups tab, the new users group and the collective wisdom section. You may find those of particular importance in learning the language often used on the forum, solutions to common issues patients may have, and other information you may find useful.

If you have been around the world of sleep apnea for a while, we hope you still find the site informative and of interest.

Please feel free to share your thoughts, ideas, comments, questions, etc.

Again, Welcome to the forum!!
At 5:36am on January 21, 2010, 99 said…
he guy welcome to sleepguide
 
 
 

CPAP Supplies



Latest Activity

Yup, if you've got insurance, your insurance dictates which local DME providers you can use. Just because you bought your CPAP elsewhere does NOT mean that your insurance contracted providers can't or won't provide your masks and other accessories.…
38 minutes ago
Linda, thanks your your help. When I call Apria, I wil ask them why they did not offer me a payment plan. Good luck!
1 hour ago
Hi Candace, Apria is giving me a payment plan for 10 months, after that I will buy it if I still need it. In the mean time, all of the folks here are so helpful they told me the best cpap to get and low and behold, Apria did not give me a newer mode…
1 hour ago
Linda, I read your question re: CPAP Machine and Apria. I also am not impressed with them. I have Kaiser and Kaiser will not pay for my equipment. Apria says that I have to pay all costs up front. Are you on a payment plan with Apria. I have severe…
1 hour ago
candace wells, Jon and CLIFTON MCDONALD joined SleepGuide
1 hour ago
First, let me say, Thank you for going to bat for us. I think you are doing a fantastic job in spreading OSA awareness and providing us with OSA a place to go for support. Apparently there is no connection between a college degree and intelligence,…
3 hours ago
You hit the nail on the head. I had a similar experience last year with another organization, The Alzheimer's Association. I ask for permission to pass out a flyer, "Does Sleep Apnea Cause Alzheimer's Disease?," at one of their annual meetings regar…
3 hours ago
Then she should say that... Say anything other than the falsehood that the connection between OSA and heart disease isn't sufficiently proven. 
4 hours ago
"Respironics recommends that new patients purchase their devices, masks and initial accessories from a homecare company that can provide an individualized patient equipment set-up, clinical and after-sale support, and a program to assist patients wi…
4 hours ago
Maybe you should be the communications director for the AHA ;-).
4 hours ago
I believe that individuals should be free to make decisions for themselves. This goes for the patients and the providers. The patient is free to decide what to do and who to pay for what services. The provider is free to decide what services he offe…
4 hours ago
I'M NOT A 100% SURE OF THE NAME OF MY MASK I THINK IT'S CALLED A PROFILE LITE IT HAS A THICK GEL CUSHION ON THE FORHEAD PIECE AND THE ALL AROUND THE MASK. I STILL END UP WITH RED MARKS ON THE BRIDGE OF MY NOSE AND FOREHEAD BUT THEY FADE IN AN HOUR O…
5 hours ago
by no means am i suggesting that this one person believes one thing or another. rather, she is the director of marketing and communications for the AHA. it is her job to communicate the organization's viewpoints to the public, and that's what she wa…
5 hours ago
HEY, I read the funny e-mails! HAH, I'm heading north tomorrow...
5 hours ago
Jon added a discussion
I received my machine in March with a nasal pillow mask. I switched to a full face mask because I was breathing thru my mouth.I was struggling with getting used to wearing the mask, finally got to the point of wearing it every night.I could not get…
5 hours ago
Ah ha, BirdShell!!! You can ignore me, but we managed to lure you out of your hiding place w/this thread, eh?? Too bad too. Danielle, Ashley, Nicole and I are all meeting at La Placita in Saginaw for lunch tomorrow. I'll be thinking of you!!!! Nico…
6 hours ago
I agree with your advice,Mike.Once I was treated for a sinus infection,I had replaced everything .Also, it is a good idea to use saline to cleanse the sinuses at least twice daily . You may look into the use of a Nettie Pot,,,,that can throughly cle…
6 hours ago
I tried wearing a band aid on the bridge of my nose the other night and it helped, but not enough. Most of the "solutions' that I've found end up causing to much air to leak. I started wearing the bandana (folded in several layers and tied like a he…
6 hours ago
I have to comment! I ran Jump Rope for Heart (JRFH) activities/fundraisers in my classes for years. (For more information: http://www.aahperd.org/jump/ and http://www.americanheart.org/presenter.jhtml?identifier=2360 This is a good condensation of t…
6 hours ago
I've beeb using Sleep Strip for years. It's a good screening test that correlates pretty well with formal sleep studies. It won't give you a number, but rather ranges from none, to mild, moderate or severe. You still need a doctor's prescription. Ty…
6 hours ago

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