Join Our Newsletter

New? Free Sign Up

Then check our Welcome Center to a Community Caring about Sleep Apnea diagnosis and Sleep Apnea treatment:

CPAP machines, Sleep Apnea surgery and dental appliances.

CPAP Supplies

Latest Activity

Mary Z replied to ZolliStar's discussion Non-invasion approach that can relieve mild sleep apnea
"Hi ZolliStar, I've heard before that speech therapy, or singing lessons can help sleep apnea.  The problem at that time was there was no way to determine which exercises help.  Getting research done, rather than anecdotal would be…"
Jul 28
ZolliStar posted a discussion

Non-invasion approach that can relieve mild sleep apnea

Some people report that singing -- singing! -- really helps their sleep apnea. Dr. Stephen Park said that myology (which are exercises to strengthen muscles around the inside of one's mouth area) helps some. I think singing would be better.  If you read all the FAQs on this (click below), I think you'll agree that it makes sense for some. Maybe you.http://www.singingforsnorers.com/index.htmSee More
Jul 28
ZolliStar posted a discussion
Jul 20
liz4cps commented on liz4cps's group Prince William Co, VA support group
"I talked to Kimberlie at the Novant Sleep lab last week (at Prince William Hospital) and she said they would not be holding any meetings this year but are planning to start holding meetings again next year.  I'll let you know when we have…"
Jul 14
richard graham posted a status
"I just have mask called the Wisp. Hope it works. Anybody have experience with it. I have an ultra mirage nasal mask and get leaks at brid"
Jul 9
Andy posted a discussion

Resmed S8 AutoSet II - No Longer Collecting Data??

Hi All,First off, my apologies for not checking in for a long time.I've been using my Resmed S8 AutoSet II for almost 3 years! I feel great, have lost almost 30 lbs, am no longer sleepy during the day, sleep through the night, and have my short-term memory back.Yay!I've told my doctors that I'm the "poster child" for Sleep Apnea and CPAPs! It's been, and continues to be, such an amazing experience that I want everyone to know!Everything has been going well in CPAP-land, but in the last few…See More
Jul 7
hifay replied to richard graham's discussion mouth breathing
"What type of chin straps?"
Jul 6
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"No real improvement in sleep study.  Just not having to use cervical neck color.  What a bummer. Surgeon wants another sleep study in about a month or so (home one) Not sure if will do or not. "
Jun 22
Mary Z replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"Ginny, how are you doing after the tongue procedure?"
Jun 22
Mary Z posted a discussion

AHI finally under five.

I have been on CPAP since March 2008 and had a good AHI when I started therapy (under 5).Then my AHI started getting worse- for a while it stayed in the 20's, then we got it to the high teens.  Nothing we did would help.  My doctor said it was due to the meds I take.  For a couple of years I just tolerated the high AHI.  I did another sleep study and changed to an ASV machine.  For two years I still had a AHI around 11-13.  Then all of a sudden - a month ago I noticed my AHI was running five or…See More
Jun 22
ZolliStar replied to richard graham's discussion mouth breathing
"FWIW, I've been alternating between my mouth device and my APAP. I haven't used humidity at all when I use the APAP -- and don't miss it, either. "
Jun 14
richard graham replied to richard graham's discussion mouth breathing
"I still use humidity but less of it. It seems to be working OK.."
Jun 14
ZolliStar replied to richard graham's discussion mouth breathing
"I rarely use the humidifier. I think it's less necessary during the summer when there is humidity.   I also switch between my mouth device and the APAP.  I like each for different reasons. Not sure with which I sleep better, though.…"
May 21
Mary Z replied to richard graham's discussion sick again
"I've been doing well.  I think you were going to try the cpap without humidity- did that help at all?  I haven't had a cold for a couple of years."
May 14
Ginny Edmundson replied to richard graham's discussion sick again
"CPAP seems to cause stuffiness in many of us.  ANother reason I hate it so much!Do you rinse your nose with saline once a day…maybe before you go to bed for the night? "
May 5
richard graham replied to richard graham's discussion sick again
"I do wake up stuffed up most days"
May 5
richard graham replied to richard graham's discussion sick again
"I do have non allergic rhinitis. Now I'm thinking that's probably it because I only feel that way for a day or 2. Thank you"
May 4
Ginny Edmundson replied to richard graham's discussion sick again
"I have been lucky.  Not one cold past three years. Could some of your problem be allergies?"
May 4
richard graham posted a discussion

sick again

It seems like I am sick with colds more often when I'm on the CPAP. Anybody experience that.
Apr 30
Ginny Edmundson replied to Ginny Edmundson's discussion Scheduled for evaluation and possible procedure next day
"As of now I no longer have to use a chin strap.  I am anxious about the sleep study.  Wondering if I will be able to sleep WITHOUT the CPAP….even thought I hate it it is a part of every night now and is what I am used to.  "
Apr 20
Hi! Ready to Rock This Forum?
Thank you for visiting the SleepGuide discussion forum. We are committed to allowing freedom of expression for our members, and that includes maintaining a safe space for people with opposing views to express themselves. We get posts from patients and pros all over the country and even the globe, so needless to say, people come with different viewpoints on Sleep Apnea. We see this diversity and variety as a real strength-- dialogue and debate are an integral part of the educational process, as well as an important tool in exploring different sides of complex issues.

SleepGuide Code of Conduct
Okay, I know we said we want you to have the freedom to express yourselves. And we do. But a few rules never hurt, right?
• Be nice! No flaming. Many posters come here for information, not to be called names.
• Please respect the different backgrounds and education of posters—especially when it comes to diverse perspectives on Sleep Apnea from patients and pros alike.
• No one needs to hear you correct them on proper grammar and spelling. Let’s talk Sleep Apnea, not the difference between affect and effect.
• Wanna talk about religion and race? Well, we don’t. We wanna talk about Sleep Apnea.
• Don’t gang up with other posters against one person. It’s not nice!
• Did I mention you should…talk about Sleep Apnea? Cool! Now get to it and have fun!

Tags: apnea, community, sleep, welcome

Views: 971

Reply to This

Replies to This Discussion

There are machines you want to avoid- one being the ResMed Escape because it only gives compliance data, and you'll want to get more data from the machine than that.  There comes a point where you just have to trust your doctor.  You would be completely in the dark choosing your own supplier and there is an advantage to the supplier and doctor having a relationship.  If later you find you want to change suppliers this is easily done.  I like the supplier I use now- the company is one that my second doc used (I have since changed docs, but kept the same DME)  Often any problems with a supplier can be solved or avoided by dealing with the same tech all of the time and if there's a problem a call to the supervisor- they don't want to lose your business.

 

There are many fine machines out there.  The brand doesn't matter. As I've said before, you want a machine that tells you AHI, AI, and leak at the very least.  Explain this to the supplier, tell him/her that you want to be involved in your care and learn all there is to learn about therapy.  There's a steep learning curve- you won't know exactly what to ask until you get into therapy.  I suggest going to cpap.com and reading up on the popular machines- you may have some questions about what you read, ask us or ask the supplier.  One of the most important aspects to therapy is finding a mask that is comfortable and doesn't leak.  This takes practice.  You may want to have the supplier help fit you with a mask.  Did you like the mask used in your titration?  Find out their return policy, usually a mask can be exchanged for a different mask during the first 30 days.

Don't be scared. Get familiar with the machines.  Read the information available on the site. This is an excellent post- http://www.sleepguide.com/forum/topics/top-five-things-new-pap-users.  I would not worry about copies of the sleep study aand such just yet.  It wasn't important to me.

 

I don't know of any lemon machines out there.  Before you actually use the machine you may want to write to the forum and ask if it's a good machine.  As I keep repeating, data capable.  You don't want a machine tht only tells the hours used.

Be alert, don't let the supplier rush you, get their phone number, be satisfied before they leave.

Don't be scared or nervous.

HI all i arnt sure if ive posted in the right place

Thanks for the welcome yes i am new to this i started treatment for sleep apnea about 4 weeks ago but i have been struggling big time i stuck with a mask that i could not get along with cos i did really long how long to struggle on trying with it . That in the end ive gone off sick from work  i then found hope2sleep site and Kath and have had lots of support from there i am just hoping as time goes on all the will become second nature to me . i am a comunity nurse in a little place in England called hornsea and have been nursing for the last 34 years  and even i have no idea about sleep apnea well untill i few weeks ago any way now it is time to learn again

ginax

Hi Gina, yes this is a fine place to post your intro.  Glad you are getting support from our UK sister site.  The mask fitting is the hardest part (one of them!) in getting used to using the machine.

Good luck, keep us posted.

Mary Z. 

i have a long way to go !!!!

Gina, we all have a long way to go.  It's just one night at a time.  Problems can come up for any of us at any time.  Of course we hope once you get going you never have to look back.  Keep us posted on your progress, please.

ok i will do thanks x

 

Hi, 

My name is Steve Sklar, and I’m a Minneapolis-based musician and sound-healer. Recently, I founded the Worldwide Sleep Apnea-Didgeridoo Network. Just launched in January, 2012, we already have 23 teacher members in nine countries! I invite you to visit us online at http://sleepapneadidgeridoo.com

Thanks,

Steve

We have so  many new members I thought I would bump this discussion up a notch- there is so much information in these 13 pages- be prepared for some reading!

My husband has had sleep apnea for a number of years. I have had an oximeter test which was abnormal. This is supposed to be 85% accurate in predicting whether a person has sleep apnea. My sleep study is scheduled for next weekend. Any tips or insights? I also have Afib and am on coumadin. I have been so sleepy, taking long naps and still sleeping at night.

susan finn said:

Hi, I'm Susan, from NC...I was diagnosed w/ OSA 3 years ago...went on my honeymoon for my 2nd marriage & my husband said, "Baby, you snore!"....well my ex had told me that, but his mouth was open which usually meant he was lying...actually, this time he was telling me the truth! Got back home from the honeymoon & when my hubby started threatening to sleep in the other room, I went to the E.N.T. b/c I thought it was sinus related, it wasn't & you all know what happened from there...I used to be very diligent about wearing my CPAP, but I've gotten slack lately, for one thing, hubby started truck driving over a year ago & now I don't have to worry about disturbing him w/ my snoring...I can most definitely tell a difference when I don't wear it, on a really bad night I wake up feeling like I've been run over by a train! A lot of days though I can't tell a big difference, until I get REAL sleepy at work or worse, driving!

I'm glad to have found this forum...sorry I'm such a bad example for consistent use!!!

you may have circulation problems try the oxymeter on the ear

Geez, I haven't been here in like....forever! Good to see this site is still pumping with lots of info and knowledgeable contributors! I see some folks on here that I know. Just thought I'd check in and see what's happening with the community! Hi y'all!

Carolyn, take something comfortable and loose to sleep in.  If you have a special pillow that you like take that.  Take a list of all your meds.  If you think you'll have any trouble sleeping with all the wires and gear ask your doctor for a sleeping pill.  It should not affect the results of the test. Take your evening/night meds with you or take them before you go.

Good luck and keep us posted on the results.

Reply to Discussion

RSS

© 2014   Created by The SleepGuide Crew.

Badges  |  Report an Issue  |  Terms of Service